CCSVI - Aussie Action!

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Re: mixed feelings

Postby kezzcass » Thu Mar 11, 2010 3:16 pm

hwebb wrote:am curious to see your videos...but a bit scared too as my procedure is on Wednesday. I was planning to not look at anything during the procedure...and take a sedative if offered. I want to pretend it's not happening. Not sure how successful this approach will be. My family want to come along to the procedure - they think it's a show!

Helen


Hi Helen, I didn't opt for a sedative because I wanted to be aware of what was happening fully. If I can say anything of encouragement I would say Prof T and his team were excellent, professional and put me well at ease.

I did 'zone out' for the ballooning a little, concentrate on breathing and going to that 'happy place' but apart from that there was no pain or discomfort. You will be allowed to have someone come in with you which may reassure you.

I am just uploading vids now - but will take several hours to be ready (currently says 7 hours remaining!!)

Thoughts with you, Kerri
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Postby Lovafish » Thu Mar 11, 2010 10:46 pm

You are out Kerri.
How are yu feeling?

no sedative huh? Brave girl.

So keen to follow progress.

Thoughts are with you
Peter
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Postby taxi » Fri Mar 12, 2010 1:46 am

awesome that they let someone in ... now i can go in with my girl and hold her hand! :) that's really great to know.

helen you must be seeing prof. T just after we get out of surgery!

looking forward to hearing everyone's stories.

where's adolfo? probably out playing footy, or hang gliding, or something..? :)

m.
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Postby Opera » Fri Mar 12, 2010 4:18 am

Kerri, Viewed your videos on Youtube in the CCSVI Australian Facebook. Thank you for sharing your experince with us. You are a real inspiration. I wish you all the very best.

Trust we will hear about the positive outcome of the treatment in the near future.
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Postby kezzcass » Fri Mar 12, 2010 5:16 am

G'day everyone. I have posted three videos today on Youtube. The first two show my explanation of the procedure and some thoughts, the third is footage of my scans and some commentary during the procedure.

http://www.youtube.com/user/kezzcass?feature=mhw4

This should link you through to my channel.

Thanks to all and will keep sharing info as it comes up. Kerri :D
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Postby kezzcass » Fri Mar 12, 2010 5:19 am

Lovafish wrote:You are out Kerri.
How are yu feeling?

no sedative huh? Brave girl.

So keen to follow progress.

Thoughts are with you
Peter


Hi Peter, haha yeah so brave! Hey I won't see you next infusion day(couldn't fit me in) but will prob catch you the next month. Check out my channel for more info if you haven't already - you can get the whole story.

Kerri
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Postby Rokkit » Fri Mar 12, 2010 8:17 am

Wow, Kerri, so cool! Thanks for sharing it!
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Postby nico » Fri Mar 12, 2010 4:05 pm

Good morning all,
I had my procedure yesterday and I would like to firstly commend Prof T and his team - they were completely brilliant!!!!
My Doppler scans had not revealed a stenosis in my neck, yet blood flows were really bad indicating a stenosis somewhere. Imagine my surprise when Prof T found 3 stenoses in my left jugular, a stenosis near my left collarbone and a stenosis stretching 8 cms (the length of the right jugular) in my right jugular. This was all ballooned. The procedure took 2hrs. Initial results? I can turn my head left and right without pain at the base of my skull. Keep your posted and I wish all those having the procedure over the coming weeks, all the very very best.
Go MSers go!!!!
Cheers, Nico
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Postby kezzcass » Fri Mar 12, 2010 4:08 pm

That is excellent news Nico! Every good experience is an encouragement for more people to get on board! So look forward to hearing how you go over coming weeks.

8cm stenosis! wow.

My thoughts were with you yesterday, Kerri
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Postby nico » Fri Mar 12, 2010 4:20 pm

Howdy Adolfo and Bree,

l have indeed responded to your emails but they're still sitting in my outbox - grr!

any ideas on how to actually send pls?

cheers, Nico
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Postby nico » Fri Mar 12, 2010 4:27 pm

kezzcass wrote:That is excellent news Nico! Every good experience is an encouragement for more people to get on board! So look forward to hearing how you go over coming weeks.

8cm stenosis! wow.

My thoughts were with you yesterday, Kerri


thank you Kerri, l'm glad l didn't know beforehand! l hope you are doing really well cheers, nico
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Postby friday_fc » Fri Mar 12, 2010 5:01 pm

Nico, did thet check your azygos?
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Kerri's amazing video

Postby hwebb » Fri Mar 12, 2010 5:52 pm

Hi Nico + Kerri,

I believe Dr Haacke calls these long stenosis "pencil stonosis". Very happy that this was all dealt with by Prof T and his team.

Kerri - amazing video ...especially of that stubborn stenosis. Good to see you looking so relaxed during the procedure. I'm freaking out less now :)

Helen
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Postby elaine » Fri Mar 12, 2010 6:06 pm

The more i read about you guys and especially watching Kerri's video the more excited i am about having my first meeting with proffesor T on Tuesday.Can't wait.
elaine
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Postby nico » Fri Mar 12, 2010 7:24 pm

friday_fc wrote:Nico, did thet check your azygos?


sure did, 'fat and juicy' according to Prof T! no problems there...

cheers, don't stress, Nico
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