CCSVI MELBOURNE FLASH MOB
13TH NOVEMBER 2010
12.00noon Pre-event meet at City Square, cnr Swanston and Collins Streets
12:50pm Flash Mob circulates amongst the general public in Bourke Street Mall.
1:00pm Drum begins to signal start of Flash Mob.
What is a Flash Mob?:
A flash mob is a large group of people who assemble suddenly in a public place, perform an unusual act for a brief time, then quickly disperse. The term flash mob is generally applied to gatherings organized via telecommunications, social media and viral emails.
The bystanders watch wondering what the group is doing and why. Our aim isn’t solely to convince people at the Mall to understand our cause (although there may be interest). Our aim is to gain the attention of the media, in order to convey our message. Television and print media have been invited to the event, and we will create a video for upload to the internet.
Our presentation will be simple and communicate the struggle people with Multiple Sclerosis have to obtain testing and treatment for Chronic Cerebrospinal Venous Insufficiency (CCSVI). Our presentation highlights the blockages we encounter when trying to access treatment. At a high level, these include the dependence of Neurologists on Pharmaceutical treatments for MS, lack of funding directed towards non drug-based therapies, and medical politics (red tape) as hospitals withhold treatment from people with MS, after misguidance from neurologists. The presentation ends with a sense of hope which is represented by the blue balloon.
What we are asking you to do?
Please be circulating around Bourke Street Mall by 12:50 with your blue t-shirt covered if possible. At 1:00 there will be a drum played at the Swanston Street end to gain attention. We will then begin to form a line from the Swanston Street end so just join the line from wherever you are. As the line slowly builds we will weave through the crowd past DJs and Myer to the 'public purse' sculpture. You may have someone dressed as a doctor offer you medication so just wave them away if they approach you. We will stop at the public purse (this is a 'blockage' and represents research dollars). The purse will have red tape strewn across it (the red tape represents the hospital politics and infighting between neurology and radiology, etc). On the other side of the purse we have two people dressed as doctors (Vascular Radiologists!). They will disrobe from their white coats, dismantle the red tape and walk around to the front of the purse and start to hand each blue person a blue balloon (the balloon represents the angioplasty treatment and is a symbol of hope and freedom). We then have brochures that can be given to anyone who is curious about what we have just done. You can stay and do this for as long or as little as your choose as this is officially the end of the event.
We may well arrange a place nearby to re-connect afterwards for those who want to.
Things you need to know:
The Myer Christmas Parade is on that same day. It will run down Bourke Street from 11:00-12:30 so please be aware it will be busy in town. We see this is a good thing as there will be plenty of media filming the parade and plenty of spectators – we may just need to be flexible and should the Mall be blocked we’ll approach the public purse from Elizabeth Street rather than the Swanston end. (This will be confirmed when we meet at the City Square at 12:00). Should the Mall be impossible, plan B will be Federation Square. We will confirm beforehand when we meet at the City Square.
We have purchased 100 blue t-shirts in various sizes and encourage you to wear one so we all look as uniform as possible. They cost $5 each and we’ll have them available from 12:00 at the city square.
** Toilets are located at the in the GPO building behind the ‘public purse’ sculpture. Disabled toilets are located in “The Walk” arcade, directly off the Bourke St Mall.**
Thanks for your willingness to participate.