Rokkit wrote:i But when my wife and I were sitting there looking at pictures of my jugulars, it all changed. They were bad. They went down to almost nothing on both sides.
that's what happened with us, too...it's pretty shocking, huh?
Yes I am very interested to see if the OCB go away at some point. It seems possible. It's never happened but as Mark said, CCSVI has never been addressed either. I am very wary of things that seem to good to be true, but it is fun to think about the possibility of ten years from now having no OCB and still no MRI lesions. Although at this point I wouldn't be surprised if SWI told an altogether different story of my brain.
would love for you to see if you can get an SWI MRI...
I think what I would like to do is wait for a neurologist to come on board who is working with Dake and Zamboni and start there.
that makes the most sense, rokkit. We're doing the same...hoping there will be someone at Stanford soon.
(Don't answer if this makes you uncomfortable...but some of the biggest changes I noticed in Jeff pre-MS diagnosis were in personality. He became reclusive and depressed. Just wondering if that rings any bells?)
Your case is going to help Dr. Dake and CCSVI study so much. We all appreciate you stepping up to the plate to get tested and treated, rokkit. Wishing you healing and better days-