Getting an MRV... Woot woot!

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby ozarkcanoer » Thu Dec 10, 2009 6:55 pm

judi... I think the posts alternate gray and white !!
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Postby Johnson » Thu Dec 10, 2009 7:00 pm

"If I have an autoimmune disease, why do I see a neurologist and not an immunologist'

A most excellent question! I never thought of that.

To quote: you can either hit the "quote" button in the top right of the post you want to quote, which will open a reply with the tags already closed, or you can use the quote button at the top of your reply, type/paste the quote, then hit that quote button again to close the tag. Alternatively, you can learn some basic HTML, and type your own tags eg: (quote) quote here (/quote), but use brackets [ ] instead of parentheses ( ).

I hope that is more clear than the mud in my brain.
My name is not really Johnson. MSed up since 1993
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Re: Quotes

Postby NHE » Fri Dec 11, 2009 2:44 am

Hi Judi,

judipom wrote:How do you do that thing where someone elses' post is put in white? Judi


There are many text formatting options available. You can read about these in the BBCode guide. In fact, the link to the guide is in the lower left of the message composition window every time you write a new post or private message.

By the way, you may also want to take a look at the Forums FAQ thread for many other useful tips on using the forums.

NHE
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Postby judipom » Fri Dec 11, 2009 6:38 am

:) Thanks. Will do, Judi
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Postby jenf » Mon Dec 21, 2009 8:33 am

I decided to take the proverbial bull by the horns and go ahead with the MRV anyway. With all the "experts" out here, I'm sure someone can shed some light on a scan once I have it and can post it. Soooo, now I'm just waiting for an authorization from my insurance company so i can schedule an appointment. I'm just hoping that will all the recent media attention, the insurance company hasn't gotten flooded with requests, making them less likely to give authorization for this procedure. I know my Neuro gave me the script because I believed in this, not the other way around. In either event, i don't care; I just want the MRV!!
Jen
Jen

RRMS - dx 06/09
LDN - 4.5mg 06/09-present
Copaxone - 06/10-09/10
Avonex - 06/12-06/12

Late Stage Lyme - 12/10
Too many meds to list!!

Remember, today is the tomorrow you worried about yesterday..
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Postby judipom » Mon Dec 21, 2009 1:08 pm

Good luck Jen--My GP wouldn't refer me for a scan. I guess I should try my last neuro--I've just felt somewhat pessimistic about that. But it's worth a try. I noticed in the recent article out by the Buffalo folks they said it would be 2-4 years before this procedure is approved for MS. Baby, I don't have 2-4 years left to wait!!!! Good luck. Keep us posted. Judi
RRMS Diagnosed 1997
My house burned down, now I can see the moon.
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Postby jenf » Tue Dec 22, 2009 4:21 am

Hi Judipom,
I know how frustrated you must be with your doc. I went through 3 Neuro's in less than 2 months in my search for someone that would prescribe LDN. Finding someone open-minded is one thing... finding a doctor that let's you decide on your own course of treatment is another. My current Neuro is the latter. I know he really didn't believe in LDN, but he prescribed it to me because he believes in letting me decide what's best for me. When I approached him about CCSVI, while he was aware of the theory, he did not believe that it had significant implications for MS'ers. However, he did humor me by providing me with a script for an MRV. Waking up this am, I noticed I had a message on my answering machine. As it turns out, I do not need authorization for the MRV through my insurance company... Sooooo, it looks as though I got my Christmas present after all.

Don't give up searching for a doctor who will let you decide your own course of treatment. This is OUR disease, OUR bodies, and OUR lives. I am thankful to people on the various MS sites that have dedicated their lives to making the transitions into this horrid disease a little easier. I hope someday to be able to pay it forward...
Jen
Jen

RRMS - dx 06/09
LDN - 4.5mg 06/09-present
Copaxone - 06/10-09/10
Avonex - 06/12-06/12

Late Stage Lyme - 12/10
Too many meds to list!!

Remember, today is the tomorrow you worried about yesterday..
jenf
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Posts: 106
Joined: Thu Sep 17, 2009 2:00 pm
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