Response of Italian MS Society
Ok now I understand. Every neurologist who questions CCSVI is embarrassed they treated patients for years with medications that don't work. How embarrassing. Every neurologist who questions CCSVI is indebted to special interests. Could it be it just does not make scientific sense to them? Why do you guys get so angry when someone questions CCSVI????? Maybe Zamboni has something to lose by CCSVI being disproven????? Maybe there is someone named Dake in California getting really rich from his "corrective surgeries?" No way!!!!!! Thank God for Zamboni and Dake, the two "true" neuros who only really care about people with MS and not about their pride..
I'm not trying to be combative, I just don't see where you've offered anything that supports this claim. But you could well be right, I can't prove you're not.Lyon wrote:...odds alone dictate that it's not a couple of percentage points away from 100%.
I look forward to the first "unblinding" of the Buffalo study in November. Hopefully it will clear up, one way or the other, this particular criticism of Zamboni's paper.
I guess the implication here is I'm not one of the objective people. That's very true of course, as I sit here with stents in my jugulars, I'm obviously not unbiased. I don't think I'm trying to twist any facts though, I'm really just enjoying using my brain to try to unravel some of this while we wait for more definitive info. I'm not trying to get under anyone's skin.Lyon wrote:Not to generalize because there are objective people involved with CCSVI but what I've stated was nothing more than obvious until some people decided that desperately twisting the "facts" to prove the merits of CCSVI was the highest goal.
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I haven't seen anyone claim that. I'm only pointing out that it's not unthinkable that the rate of misdiagnosis in CDMS is low enough that Zamboni might have had 65 accurately diagnosed.Lyon wrote:ONLY the diehard CCSVI proponents are suddenly claiming that MS diagnosis is 100% accurate.
Yes, I am persistent on this point because in my opinion your criticism, although a very valid point, is still weak enough (without any data to back it up) that it deserves to be challenged.
You are right that your point was "only obvious" before. So consider this: If it was obvious to you, it was certainly obvious to Zamboni, yet he published it anyway. I would think that makes him either an idiot, or very confident.
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Dr. Zamboni's nine published papers in the last three years:
And now, back to the Italian MS Society....
cheer
http://www.fondazionehilarescere.org/en ... zioni.html"The big Idea: Iron-dependent inflammation in venous disease and proposed parallels in multiple sclerosis", 2006
in "The Journal of the Royal Society of Medicine" Vol. 99, pp. 589-593
"Intracranial Venous Haemodynamics in multiple Sclerosis", 2007
in "Current Neurovascular Research" ed. 4, pp. 252-258
"Doppler Haemodynamics of cerebral Venous Return", 2008
in "Current Neurovascular Research" ed. 5, pp. 260-265
"The value of cerebral Doppler venous haemodynamics in the assessment of multiple sclerosis", 2009
in "Journal of the Neurological Sciences"
"Chronic cerebrospinal venous insufficiency in patients with multiple sclerosis", 2009
in "Journal of Neurology, Neurosurgery, and Psychiatry"ed. 80, pp. 392-399
"Rationale and preliminary results of endovascular treatment of multiple sclerosis, the liberation procedure", 2009
in "1978-2009 -31 years- Vascular and Endovascular Controversies Update" 31° International Symposium - CX Charing Cross, pp. 71-79
"Endovascular Treatment for Multiple Sclerosis", maggio 2009
in "Vascular News" ed. 80, pp. 392-399
"Venous Collateral Circulation of the Extracranial Cerebrospinal Outflow Routes"
in "Current Neurovascular Research" Volume 6, Number 3, August 2009
"Anomalous venous blood flow and iron deposition in multiple sclerosis"
in "Journal of Cerebral Blood Flow and Metabolism", September 2 2009
And now, back to the Italian MS Society....
cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
I would have to agree, Bob. The 100% thing seems to be a big sticking point for skeptical neurologists, and it would be nice if this, among other issues, was addressed.Lyon wrote:but it would be a great help if he would just put his reasons for confidence on paper, and that's really not too much for the rest of the world to ask.
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Here's Dr. Zivadinov (SUNY Buffalo) speaking about CCSVI. There is the unblinding of the first part of Jacobs study next month...(maybe your wife's testing will be part of the first results, Bob?)
Dr. Zivadinov speaks about CCSVI
The Liberation paper is "in press" at the Vascular Journal. We just have to wait as the research unfolds. I was just showing how much work has gone into this already. As Dr. Zivadinov said in Bologna, there will be thousands of papers regarding CCSVI in the next ten years.
Back to the Italian MS Society (back OT)....if people want to wait for further studies and use caution as the MS Society suggests that's great! If they can wait two, ten, twenty years, they are very fortunate. If others want to be tested for CCSVI now and talk/write about it, that's their right, as well.
cheer
Dr. Zivadinov speaks about CCSVI
The Liberation paper is "in press" at the Vascular Journal. We just have to wait as the research unfolds. I was just showing how much work has gone into this already. As Dr. Zivadinov said in Bologna, there will be thousands of papers regarding CCSVI in the next ten years.
Back to the Italian MS Society (back OT)....if people want to wait for further studies and use caution as the MS Society suggests that's great! If they can wait two, ten, twenty years, they are very fortunate. If others want to be tested for CCSVI now and talk/write about it, that's their right, as well.
cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
http://www.neurologyreviews.com/sep00/n ... emmas.html
The Z study had inclusion criteria for CDMS...
(sorry I was working on this already)
My neuro confirmed that it is extremely unusual for a person who is CDMS--meaning specifically the pattern is established and typical (newly diagnosed persons are different) to discover later they do not have MS.Finding alternative causes in patients with classic symptoms and no atypical features was, in Dr. Cohen's experience, "very unusual." For patients in whom multiple sclerosis has already been established, he cautioned colleagues to be vigilant to overlying pathologies that might be contributing to symptoms and to always evaluate the main source of a patient's disability.
The Z study had inclusion criteria for CDMS...
(sorry I was working on this already)
I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics
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