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A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby bluesky63 » Fri Sep 25, 2009 6:56 pm

Thanks again to everyone! :-)
Last edited by bluesky63 on Sun Mar 13, 2011 9:32 am, edited 1 time in total.
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Postby CureIous » Fri Sep 25, 2009 9:40 pm

bluesky63 wrote:Hello again!

Mark, when I hear your strong endorsement and your report on how much energy you have, it really makes me want to try this. I think that universally people with MS have FATIGUE.

In fact, didn't the disability standards get revised to specifically indicate that for MS, fatigue alone, without any other physical disability, was enough to make a person with MS qualify to receive disability?

Happy Poet, I completely understand your caution, especially if you're not sure of your dx. But if I am reading the research right, then your issues could still be affected by insufficient blood flow; it would just be around the spinal column. Am I reading this right?

Thanks again to everyone! :-)


I would be happy to have a neuro that even had a clue what fatigue WAS. He seems to equate mind numbing fatigue with weakness that affects SP'ers and PP'ers in specific locations. If you can squeeze his hand, guess what? You aren't fatigued! I swear to God if I had the energy I would have beat him about the skull with some medical books. That was before my ccsvi "awakening". I sat on the porch this afternoon in the heat for over an hour just jabbering away which in case you hadn't noticed, I am supremely talented at. That was from 2-3 in the heat HOT HOT heat. What a joy! Yo soy muy feliz! Did I mention the fatigue?

EDIT, uh, I was jabbering away ON THE PHONE lol. Promise!
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap
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