This Is MS Multiple Sclerosis Community: Knowledge & Support

Yeah,

Surprise to me too, but I was in private sector clinic today visiting vascular surgeon.
He was very sceptic first but I show him CCSVI article from Finnish MS-magazine and then we was able to speak the same language(maybe?)

I made a cd-disc to him, full of CCSVI documents and pictures,
all that I can found.
He said that this thing is very interesting and He is going to look at that cd and get more information from internet too.

And he schedule time for doppler scan tomorrow.
I am little sceptical for the results of the scan because surgeon claim that that kind of doppler scan is easy to make.

But we will see

Hohoo.. this is unbelieveble. Like I said you in Finnish forum.. you are the first Finnish ms-patient to chat with surgeon.. and going to dobbler tomorrow. Your surgeon said that "dobbler is easy.." but this might be the problem, but we'll know tomorrow. Good work man, and we'll wait and see. Good luck!

Good news, Blitzi!
We all hope your doctor is capable of doing the dopplers correctly. We had problems here in the US. Dr. Zamboni's team uses transcranial doppler as well as the neck doppler, to put together a complete picture of venous insufficiency. The reflux in many has been found very high in the jugular veins on MRV, and the doppler technicians in the US missed it. The transcranial doppler was not available to the Stanford patients.

Good work and please keep us posted!
cheer

_________________
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS

Blitzi

You are flying the flag for us brother. Thank god one of us managed to get some progress. We are waiting with great anticipation to hear what the scan has to say about your veins.

Good luck for tomorrow and please let us know as soon as you can

Peter

Doppler is done.

Radiologist said that there is no problem on the neck area where he is able to get picture.
He also said that with doppler he cannot get images from jugulars on c1-c3 area.
So I guess that we got here exactly the same problem than in US/Stanford
And he used only neck doppler, no transcranial doppler.

And naturally he wasn't scan the azygos because he said that with doppler that is impossible.

He recommends me that I get MRV or TESLA scan on higher areas and for azygos.

So, I am gonna get those too ASAP when I get money to do those
They are expensive, and in here Finland at least now patient pays this kind of research all by him self.

-blitzi

Dang! Was afraid of that C1-3 area....without the transcranial doppler, we just can't see what's going on.

So sorry the MRV isn't covered by your insurance- thank you so much for reporting back to us, blitzi.
Good luck on your search, and please keep us posted.
all best wishes,
cheer

_________________
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS

I was also afraid, that radiologist can't find problem - and he did'nt. Got to ask Cheer, how reliable is MRV? Easier to find problem with that?

Repeat Once more; about MRV --> is it "easier" (than dobblers) and more accurate way to find stenosis and problems in Jugulars?

--> In Finland this is so new.. too bad that we don't have educated persons related to ccsvi..

Ernst, mate - there's no answer.

Dake says yes, Zamboni says doppler but only he, his staff and someone trained at Jacobs can do it right.

It's take whats available or what the potential treating surgeon prefers.

Having said that I would hazard that the dopplers being so inaccurate if not done a specific way you would have more luck with an MRV.

Neck and head and azygous.

Thanks Jamie for answer.

It's a bit frustrating that so few can use dobblers or MRV with expertise and find problems. What about venography? Would it be better option to find ccsvi problems? - I mean for example in Finland, where this all is quite unknown for professionals.

Hi.

I am no doctor, but I believe that DSA could give the best results, if you plan to undergo an invasive method. Have a look at it:

http://en.wikipedia.org/wiki/Digital_su ... ngiography

sou

_________________
Shortest joke: "We may not be able to cure MS but we can manage its symptoms."