will your insurance cover you for an endovascular procedure? Concerned that even if you got the scans, the procedure might not be covered. Did Alex tell you?
Since you are part of the UC system, is there any way you can present this research to a school in your network...UCLA, UCB, UCSD...all have outstanding medical/research schools. Maybe you can be the conduit to the UC schools getting involved? You are obviously well-versed in CCSVI, and would be the perfect person to present this research to them.
just a thought-
Here is someone at UCLA who has worked with Dr. Dake-
Dr. Kee wants to make UCLA the #1 interventional radiology dept. on the westcoast...maybe he'd be up for the challenge.