Hi all. Michele, my dear old friend, so happy to hear from you. So sorry to hear about Ella's anemia. It must seem to you (and her) sometimes like she's a trouble magnet.
Steve and I have been going through some dark times since the last update. In late October, Steve's personality changed suddenly. He became irritable, nasty tempered, even mean. On November 2nd, he had a sore throat about half the day and felt lousy. We saw his neurotologist on November 4th, and after testing the elements of Steve's balance and a discussion of the changed behavior and sore throat, he made a clinical diagnosis of H1N1 based on his recent experience with other patients. So Steve has done a course of Tamiflu---he was already taking Amantadine, thank goodness, or this flu could have been much more serious.
Well, it's been serious enough for my taste. Steve regressed badly, and he's been bouncing back since a few days after starting the Tamiflu. It's been very rough, though, with wildly fluctuating MS symptoms. He's been sleeping alot again, gone foggy, his balance has been atrocious, and his bladder function has wavered from "won't" to "non-stop." This Monday was a fair day, but yesterday morning he called me at work to get a phone number, and it was like talking to a drunk who was about to lose consciousness. It took a couple of minutes just to get the number across to him, and the whole time he was fumbling, fading away, and accidentally punching keys on the phone. He called back a couple of hours later because he had written the number down wrong. Today seems like a fairly good day again.
So, I guess this is a test of what happens to a newly stented MSer who gets zapped by H1N1. I sincerely hope this doesn't happen to you. It's very disheartening. I'm hopeful that that really is a light at the end of this tunnel, but frankly, it's about as bright as a small appliance bulb right now.
And Lew, your lastest blog helped alot.
Joyce (aka cypriane)~caregiver and advocate in Dallas for Steve (SPMS)----"Enter through the narrowgate..."