This Is MS Multiple Sclerosis Community: Knowledge & Support

Hahaha, I did wonder who he was, just figured it was a high volume blog so alls the better. That's what I thought the intent of the post was not to imply that he was some expert.

No matter!

I can't come to bed honey, someone's WRONG on the internet!

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RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap

Does anyone have the original citation for this Embry article? Did someone say MS Pathways? I looked on his website and couldn't find it. I'd like to be able to have the original reference to send along to people. That is probably one of the clearest explanations about CCSVI I have read yet. Thanks.

I have the whole article - sent by Mr. Embry himself. He is very clever Scientist, truly admire him.

Ditto what CureIous said.
Sometimes I wonder if Bob and Scorpion write this stuff, just to have all the lights flashing on the CCSVI threads and forums. They are meanwhile, probably, trying to find some place to invest their money in this...after all their stock in Drug companies hasn't done so well.

Dunno if this fits in here, is worth reading anyway - it's an account of the reseacher crowd's reaction to Dr.Zividanov's poster at ECTRIMS 2009 (cut&pasted from "MSNews")

http://www.bostoncure.org:8080/node/3571

"I confess that I did not spend much time at the Thursday poster session -- perhaps jet lag was affecting my ability to concentrate on detailed scientific information in a crowded environment. I did notice that Robert Zivadinov's poster on chronic cerebrospinal venous insufficiency (CCSVI) had a big crowd. There seems to be growing interest in this theory that insufficient blood drainage from the brain plays a role in MS. It will be interesting to see where it leads."

I do not know about Bob but I am not interested in any lights flashing. I am happy for everyone here who has been enlightened in ways others of us on thisisms have not. Onward CCSVI soldiers. By the way remember that I do have MS and deal with it everyday and I also know Bob's wife has MS. There is nothing more I would like then something like CCSVI to be the real deal but I am extremely skeptical since I have seen theories like this come and go before. First are the claims of miraculous recoveries, then there are a couple studies that show some success, then in time people begin to get worse, then the die hard followers continue to come up with reasons as to why people are getting worse, then the new paradigm is history. Since the CCSVI research is quite interesting I wish this forum would be a place where we could discuss CCSVI intelligently but since there seems to be no room on this board for doubters I will let the chosen few continue to spread the "word".

I think being sceptical is a useful tactic, but I wish you would stop trying to force everyone else to be AS sceptical as you. Why can't you let other people have an opinion that is different to yours. I do not insist that you believe in ccsvi, we are just discussing the subject here, and you keep popping up to accuse us of of of, of what?! Being optimistic??!! God forgive us. Anyhow, I hope we can still be friends.

WhyRwehwe,

I would grab a drink with you anytime. I guess we would have to follow the old adage thought" don't discuss religion, politics, or CCSVI!"! Have a good one.

Good to hear, good to hear.....until we do this again, then

Yes, it is in next month's issue of MS Pathways, prof. Dr. Dake and Nick (who works with Ashton) had copies pre-release. Nick posted a copy here, as well as on other MS sites.

As far as all the other stuff (which is all just words, not action)... I'm talking about causation and potential help for MS. No one uses the C word, no one makes inflated claims. I realize that my husband's incredible recovery from fatigue, heat intolerance, pain and spasms is merely anecdotal. The fact that he no longer gasps for air with sleep apnea, no longer thrashes with spasms at night, and wakes up refreshed, is only our opinion. That he had two severely occluded jugular veins which now flow freely, and was diagnosed with MS is fact.

My main concern is to get the medical community looking at the new paradigm as researched and outlined by Dr. Zamboni, and wonderfully enunciated by Ashton Embry. I want to convince actual doctors to look at this. We shouldn't really care what an online community chooses to pick at. Does anyone really care what some anonymous person thinks about this research? and that includes my opinion....read it for yourself! Let's get it into doctors' hands...that's the action. Actions speak louder than words.
cheer

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Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS

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Whale Oil Beef Hooked!...... it's Bob!!

Hey Bob, Someone said you didn't think much of CCSVI - Could this be true??

Phil

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RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap