This Is MS Multiple Sclerosis Community: Knowledge & Support

In case it hasn't been posted here yet, I found his article here

CCSVI – A Huge Breakthrough in MS?
http://brain.hastypastry.net/forums/sho ... 418&page=2

Only cheerleader could explain it as well . Incredible.

Mr. Success

I had NOT seen that - thanks for the post, that is awesome and he clearly 'gets' it.

THanks SJ!

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http://myhopefuljourneyintoactualmsreco ... ogspot.com

What impressed me was that this is a PhD researcher --don't remember this field-- who has been doing literture research into MS material for about 10 years because his son has MS. He has developed one of the most respected patient sources for information about MS .

He was very positive on this research calling it "solid". He referred to the liberation data released on the cx symposium as factual data, which it is, rather than throwing rocks at it and pretending that somehow because it does not answer all the questions a person might have it is suspect. He acknowledges the earliness of this work while still recognizing, as did Cheer and I, the stunning concordance of 100% means it is better work than other ideas. Not once does he claim that the 100% is somehow specious, as did skeptics here.

I am reminded of Cheer's comment that the debate in Bologna was respectful and decorous.....

this had the same tone.

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I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics

Yeah and how come no one makes the same argument about the EBV research? How dare they claim 100% of MS'ers have EBV, when everyone knows there's a gob of misdiagnosed in their pool?

Rokkit

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I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics

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hey, look...it's Bob!


Yes, Marie...the docs in Bologna were wonderfully respectful with each other.

I saw the Ashton Embry article pre-release in MS Pathways in Bologna. He sent Dr. Dake an e-mail and a copy of it, and Dr. D showed it to me on his infamous blackberry. Dr. D saw it as a positive movement, since many docs (neurologists, even!) in Canada respected Mr. Embry and his work and research for MS patients- and had also contacted him regarding CCSVI study.

Nick posted it on here in the general section, but it's good to have it down here in CCSVI land.
Thanks, SammyJo!
cheer

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Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS

Thanks Cheerleader. I'm trying to stay quiet, cuz I'm still in CCSVI-for-dummies mode, having just learned about this on 9/15. Marie has been bringing me up to speed. I have my first talk with Dr D tomorrow, see if I am a candidate. Regardless of my kinks, I am darn proud of the pluck (and patience) all the participants are showing in this forum. I look forward to helping out under the guidance of those like you who are leading the charge to help other patients learn about this. My LDN website gets several hundred visitors a day, so I'd like to add some links to the CCSVI info soon. Will have y'all check it out so the facts are straight.

All the pieces are fitting together, SammyJo. Your hard work on LDN, Ashton's hard work with Best Bet Diet and vitamin D...all the folks who looked to the vascular system for symptom relief in MS.....all that hard work is being brought together under the umbrella of venous congestion. No dummies here. We're all learning from each other, and it's so exciting and gratifying to finally see a paradigm for MS causation that MAKES SENSE! Have a good talk with Dr. Dake, and send him our best-
continued hope and healing,
cheer

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Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS

while I'm all for someone playing the devils advocate as oft times this gives some balance to any argument ....the above poster is clearly drawing a blank position ...and instead chooses to take the lowest road possible ....and questions the qualifications of others.

A geologist ! we are told ! Good Heavens ...what would a geologist possible know about CCSVI ?

Give your head a shake man. Ashton Embry is a educated man and respected MS author.

I'll take his research and opinions over your cheap devils advocate comments ....anyday.



Mr. Success

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Funny that people find a geologist who has an interest in MS reputable but when it comes to neurologists and physicians who question CCVSI they are in the pockets of pharmas, stuck in old ways of thinking, etc. Thanks for doing your research Bob. I am not sure when someone posting a fact on this board makes you a Devil's Advocate????

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