Sending Health History and MRI CD to Dr. Dake!

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Sending Health History and MRI CD to Dr. Dake!

Postby magoo » Wed Sep 23, 2009 8:00 am

Hello Everyone :)
I had a wonderful conversation with Alex yesterday. We bonded over our mutal roots in the East Bay! I'll overnight my stuff today so that it can be on Dr. Dake's desk on Thursday morning when he is in. Then I wait for his call. My insurance is fine, whew!!! I prompted Alex to save a spot for me in mid-December. They are booked that far already! What a great Christmas present to myself! I was tempted to ramble on and on, but kept my history brief and detailed. I read a few posts to see how other's had prepared, so thank you to all who "helped". I will post mine when I have a confirmed appointment. (don't want to jinx it!) I've got all fingers and toes crossed!!!!
Rhonda~
Treated by Dake 10/19/09, McGuckin 4/25/11 and 3/9/12- blockages in both IJVs, azy, L-iliac, L-renal veins. CCSVI changed my life and disease.
User avatar
magoo
Family Elder
 
Posts: 557
Joined: Thu Sep 10, 2009 3:00 pm
Location: Charlotte, NC

Advertisement

Postby catfreak » Wed Sep 23, 2009 10:17 am

Great news Rhonda!!

Everybody here on TIMS is so great and helpful. Let us know when Dr D calls you. And Alex is just an angel!

Cat
Holly - Shine On You Crazy Diamond - Pink Floyd

9/3/09 Stanford - Dr Dake - Stent in R-J to unblock Arachnoid Cyst in Sigmoid Sinus. Stent in narrowed L-J. Balloon in narrowing where R & L Jugulars meet.
User avatar
catfreak
Family Elder
 
Posts: 791
Joined: Sun Jun 01, 2008 3:00 pm
Location: Mississippi

Postby magoo » Wed Sep 23, 2009 3:37 pm

Cat,
Thank you so much! I will certainly post as soon as I speak with Dr. Dake!!!!
Rhonda~
Treated by Dake 10/19/09, McGuckin 4/25/11 and 3/9/12- blockages in both IJVs, azy, L-iliac, L-renal veins. CCSVI changed my life and disease.
User avatar
magoo
Family Elder
 
Posts: 557
Joined: Thu Sep 10, 2009 3:00 pm
Location: Charlotte, NC

Postby CureIous » Wed Sep 23, 2009 4:00 pm

:)
Last edited by CureIous on Sat Oct 03, 2009 3:34 pm, edited 1 time in total.
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap
User avatar
CureIous
Family Elder
 
Posts: 1202
Joined: Tue Jul 14, 2009 3:00 pm
Location: Riverside, CA

Postby magoo » Thu Sep 24, 2009 5:15 am

Thanks so much Mark :)
I have a few questions. How will the call with Dr. Dake proceed? Will he do most of the talking? And, I'm wondering who each of you brought with you to Stanford?
Let the waiting begin........................
Rhonda~
Treated by Dake 10/19/09, McGuckin 4/25/11 and 3/9/12- blockages in both IJVs, azy, L-iliac, L-renal veins. CCSVI changed my life and disease.
User avatar
magoo
Family Elder
 
Posts: 557
Joined: Thu Sep 10, 2009 3:00 pm
Location: Charlotte, NC

mri?

Postby jay123 » Thu Sep 24, 2009 6:31 am

Does the MRI cd help you, or do you need an MRV?
User avatar
jay123
Family Elder
 
Posts: 381
Joined: Mon Sep 21, 2009 3:00 pm

Postby magoo » Thu Sep 24, 2009 6:51 am

No need for MRV. They only need a prior MRI and your health history.
Rhonda~
Treated by Dake 10/19/09, McGuckin 4/25/11 and 3/9/12- blockages in both IJVs, azy, L-iliac, L-renal veins. CCSVI changed my life and disease.
User avatar
magoo
Family Elder
 
Posts: 557
Joined: Thu Sep 10, 2009 3:00 pm
Location: Charlotte, NC

Postby CureIous » Thu Sep 24, 2009 2:25 pm

:)
Last edited by CureIous on Sat Oct 03, 2009 3:32 pm, edited 1 time in total.
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap
User avatar
CureIous
Family Elder
 
Posts: 1202
Joined: Tue Jul 14, 2009 3:00 pm
Location: Riverside, CA

Postby magoo » Thu Sep 24, 2009 5:23 pm

Yea, I'm feeling a little crazy right now:) It is somewhat like waiting for a call from the Prez! I am going to wear myself out trying to keep busy!! (a pretty easy thing to do, lol) I appreciate the funny and timely responses!!!
Rhonda~
Treated by Dake 10/19/09, McGuckin 4/25/11 and 3/9/12- blockages in both IJVs, azy, L-iliac, L-renal veins. CCSVI changed my life and disease.
User avatar
magoo
Family Elder
 
Posts: 557
Joined: Thu Sep 10, 2009 3:00 pm
Location: Charlotte, NC

Postby magoo » Mon Sep 28, 2009 6:03 pm

I just spoke to Dr. Dake!!! I am a good candidate and it looks like I am California bound as soon as Alex gets me on the books! WOW! I can't tell you all how happy I am. He was wonderful. It was a very easy conversation:) I am just thrilled!!!!!!! Let the countdown begin:):):)
Rhonda~
Treated by Dake 10/19/09, McGuckin 4/25/11 and 3/9/12- blockages in both IJVs, azy, L-iliac, L-renal veins. CCSVI changed my life and disease.
User avatar
magoo
Family Elder
 
Posts: 557
Joined: Thu Sep 10, 2009 3:00 pm
Location: Charlotte, NC

Postby Needled » Mon Sep 28, 2009 6:53 pm

Way to go, Magoo!! You know we all want to hear about it, every step of the way. :D
User avatar
Needled
Family Elder
 
Posts: 361
Joined: Wed Jan 14, 2009 4:00 pm
Location: Connecticut

Postby CNClear » Mon Sep 28, 2009 8:12 pm

YAY, Rhonda!! I am soo happy for you! :D :D

Maybe I'll get Dake's call this week and we may be out there at the same time...if so, I can send you my cell phone number and send me yours, if you want...I'd love to be able to be there and cheer you on!

so, what was your call with Dake like? I know this probably sounds silly, but maybe you know what i am going through waiting for my 'presidential call'

What kind of stuff did he ask you? I can't wait to hear all about it!!

I am so glad you are going to get to go be another 'guinea pig', too!! This is truly a miracle medical breakthrough...and we get to be a part of it and get 'fixed' too!!

Lisa aka CNClear
RRMS dx 1983, age 50
waiting for Dake!
User avatar
CNClear
Family Member
 
Posts: 96
Joined: Fri Aug 28, 2009 3:00 pm
Location: Near Atlanta, GA

Postby CureIous » Mon Sep 28, 2009 11:16 pm

magoo wrote:I just spoke to Dr. Dake!!! I am a good candidate and it looks like I am California bound as soon as Alex gets me on the books! WOW! I can't tell you all how happy I am. He was wonderful. It was a very easy conversation:) I am just thrilled!!!!!!! Let the countdown begin:):):)


Can feel the excited tension all the way over here! Let us know if you need any reminders about anything since you might forget wink wink. This is exciting! Our pioneer patriarch has begat dozens of children! :) Mark.
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap
User avatar
CureIous
Family Elder
 
Posts: 1202
Joined: Tue Jul 14, 2009 3:00 pm
Location: Riverside, CA

Postby magoo » Tue Sep 29, 2009 6:01 am

Thanks for the cheer! I will keep posting my progress.
Lisa, I'm sure you will get your call soon:) I would love to exchange info and hopefully we can meet!
He only asked a few basic questions, and then answered a few of mine. We discused my symptoms. We talked about the progress he has made with the procedure. I explained my feelings about CCSVI. We briefly discussed my neuro (who has a packet of info on CCSVI, but had his nurse call to tell me he couldn't support it). I felt Dr. Dake's frustration, (not sure if that is the right way to describe it?) with the neurologic community. He mentioned being told not to get "our" hopes up.
Wow............ to me that says volumes about neuros, drug companies, and MS.
I explained that if there is a part of my anatomy which is compromised or not working right, I want it fixed.
Mark, I am sure I'll have plenty of questions before I go, lol! I am excited to join the club!!!
Have a wonderful day everyone :) I know I will :):):):)

PS: I have been skipping my copaxone shots a lot, and now I think I'm done.
Rhonda~
Treated by Dake 10/19/09, McGuckin 4/25/11 and 3/9/12- blockages in both IJVs, azy, L-iliac, L-renal veins. CCSVI changed my life and disease.
User avatar
magoo
Family Elder
 
Posts: 557
Joined: Thu Sep 10, 2009 3:00 pm
Location: Charlotte, NC

Postby MaggieMae » Tue Sep 29, 2009 6:27 am

Rhonda,

Last night must have been a call night for Dr. Dake. We also got our call. I just knew you got your call too.

Remember we started talking to Alex back in August. Dr. Dake said she would be calling us. He also asked my husband some health questions, like "did you ever have Mono or chicken pox?" Funny, my husband, his sister, and a neighbor who used to baby sit them all had the chicken pox at the same time. They also all have M.S.

We now wait to talk to Alex and see what our insurance will cover. My husband seemed so happy this morning. I'm a little on edge worrying about the stents. He is hoping for some relief.
User avatar
MaggieMae
Family Elder
 
Posts: 380
Joined: Wed May 23, 2007 3:00 pm
Location: Pennsylvania

Next

Return to Chronic Cerebrospinal Venous Insufficiency (CCSVI)

 


  • Related topics
    Replies
    Views
    Last post

Who is online

Users browsing this forum: No registered users