Anybody going to be at Stanford the 1st week in November?

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Anybody going to be at Stanford the 1st week in November?

Postby catfreak » Wed Sep 23, 2009 9:19 am

I go back for my followup on the 3rd.

My husband and I would love to meet others who are there.

Cat
Last edited by catfreak on Thu Oct 08, 2009 8:29 am, edited 1 time in total.
Holly - Shine On You Crazy Diamond - Pink Floyd

9/3/09 Stanford - Dr Dake - Stent in R-J to unblock Arachnoid Cyst in Sigmoid Sinus. Stent in narrowed L-J. Balloon in narrowing where R & L Jugulars meet.
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Postby catfreak » Thu Sep 24, 2009 7:33 pm

Sorry, bumping this up just in case someone has an appointment the same time.

Cat :D :D
Holly - Shine On You Crazy Diamond - Pink Floyd

9/3/09 Stanford - Dr Dake - Stent in R-J to unblock Arachnoid Cyst in Sigmoid Sinus. Stent in narrowed L-J. Balloon in narrowing where R & L Jugulars meet.
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Postby CureIous » Thu Sep 24, 2009 7:57 pm

I could reschedule! I almost got this coumadin thing licked, whats a month among friends? :)
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap
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Postby magoo » Fri Sep 25, 2009 5:39 am

If I could, I'd be there to meet you two! Maybe someday?
Rhonda~
Treated by Dake 10/19/09, McGuckin 4/25/11 and 3/9/12- blockages in both IJVs, azy, L-iliac, L-renal veins. CCSVI changed my life and disease.
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Postby CNClear » Sat Sep 26, 2009 2:28 pm

Maybe me!
I have good news… ALEX CALLED!!!! Now I wait for Dake's call, I FedEx'd my stuff for his perusal and Alex said it looks like the end of November for me!!! I'm going to tell her to put me on the waiting list for cancellations tho...My symptoms have been getting worse and my MRI in June showed nothing active, but a few additional lesions over the last year. So....??? (Isn't that the criteria for moving you from RRMS to Secondary? Does anybody know? I thought I heard/read that if your symptoms are getting worse but you have no active lesions...that means secondary....) I'm scared something might not 'remit' before i can get to Dake, causing damage that wont be reversible at all...

Maybe I'm just freaking myself out...thinking too much...but I'm sure you probably understand how when you don't feel good and the fatigue has really got you...well, i get depressed, of course, and then my mind starts playing the 'what if' game...gotta stop that...and just be happy that we all have this to look forward to!!

Keep on keepin' on!

Lisa, aka CNClear
RRMS dx 1983, age 50
Waiting for Dake's call! (singing California, Here I come…)
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Postby catfreak » Thu Oct 08, 2009 8:27 am

Bumping this up in case anyone is scheduled for the 1st week in November.

Cat
Holly - Shine On You Crazy Diamond - Pink Floyd

9/3/09 Stanford - Dr Dake - Stent in R-J to unblock Arachnoid Cyst in Sigmoid Sinus. Stent in narrowed L-J. Balloon in narrowing where R & L Jugulars meet.
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Postby catfreak » Sat Oct 31, 2009 12:17 pm

Bumping up!! Anyone!! Hello!! I go Tuesday for my follow up MRV and to see DR D.

Cat
Holly - Shine On You Crazy Diamond - Pink Floyd

9/3/09 Stanford - Dr Dake - Stent in R-J to unblock Arachnoid Cyst in Sigmoid Sinus. Stent in narrowed L-J. Balloon in narrowing where R & L Jugulars meet.
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Postby Loobie » Sun Nov 01, 2009 9:40 am

Second week here. Buying my tickets after I get off of here. Just missed again!
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Postby radeck » Sun Nov 01, 2009 11:31 am

I'm still hoping but not sure. If not this week hopefully next when Lew is there. Also, if any of you happen to be in the east bay during your travels, let me know if you want to meet up for a cup of coffee or EGCG ;-).
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Postby skydog » Sun Nov 01, 2009 11:49 am

Rad, I would love to take you up on the offer. No scheduled time for the next appointment. Hopping very soon! I will let ya know ASAP. Are you in the east bay area? I spent allot of time in the bay area. I grew up in Nor Cal. Peace, Mark
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Postby radeck » Sun Nov 01, 2009 12:00 pm

Hi Mark, yes, Berkeley. Might not be a big detour on the way down form Oregon, and depending on other constraints I may also be able meet in SF.
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Postby skydog » Sun Nov 01, 2009 12:33 pm

Cool, We went the back way through Oakland the last trip down and found it much easier than the 101 traffic in the city. Cheers, Mark
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Postby catfreak » Sun Nov 01, 2009 5:40 pm

We are here, got here yesterday afternoon. Halloween night is San Francisco is crazy. We are in a hotel on uni0n Square and we are staying a week.

Seeing Dr Dake on Tuesday.

Cat
Holly - Shine On You Crazy Diamond - Pink Floyd

9/3/09 Stanford - Dr Dake - Stent in R-J to unblock Arachnoid Cyst in Sigmoid Sinus. Stent in narrowed L-J. Balloon in narrowing where R & L Jugulars meet.
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