This Is MS Multiple Sclerosis Community: Knowledge & Support

I go back for my followup on the 3rd.

My husband and I would love to meet others who are there.

Cat

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Holly - Shine On You Crazy Diamond - Pink Floyd

9/3/09 Stanford - Dr Dake - Stent in R-J to unblock Arachnoid Cyst in Sigmoid Sinus. Stent in narrowed L-J. Balloon in narrowing where R & L Jugulars meet.

Sorry, bumping this up just in case someone has an appointment the same time.

Cat

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Holly - Shine On You Crazy Diamond - Pink Floyd

9/3/09 Stanford - Dr Dake - Stent in R-J to unblock Arachnoid Cyst in Sigmoid Sinus. Stent in narrowed L-J. Balloon in narrowing where R & L Jugulars meet.

I could reschedule! I almost got this coumadin thing licked, whats a month among friends?

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RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap

If I could, I'd be there to meet you two! Maybe someday?

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Rhonda~
Treated by Dake 10/19/09, McGuckin 4/25/11 and 3/9/12- blockages in both IJVs, azy, L-iliac, L-renal veins. CCSVI changed my life and disease.

Maybe me!
I have good news… ALEX CALLED!!!! Now I wait for Dake's call, I FedEx'd my stuff for his perusal and Alex said it looks like the end of November for me!!! I'm going to tell her to put me on the waiting list for cancellations tho...My symptoms have been getting worse and my MRI in June showed nothing active, but a few additional lesions over the last year. So....??? (Isn't that the criteria for moving you from RRMS to Secondary? Does anybody know? I thought I heard/read that if your symptoms are getting worse but you have no active lesions...that means secondary....) I'm scared something might not 'remit' before i can get to Dake, causing damage that wont be reversible at all...

Maybe I'm just freaking myself out...thinking too much...but I'm sure you probably understand how when you don't feel good and the fatigue has really got you...well, i get depressed, of course, and then my mind starts playing the 'what if' game...gotta stop that...and just be happy that we all have this to look forward to!!

Keep on keepin' on!

Lisa, aka CNClear
RRMS dx 1983, age 50
Waiting for Dake's call! (singing California, Here I come…)

Bumping this up in case anyone is scheduled for the 1st week in November.

Cat

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Holly - Shine On You Crazy Diamond - Pink Floyd

9/3/09 Stanford - Dr Dake - Stent in R-J to unblock Arachnoid Cyst in Sigmoid Sinus. Stent in narrowed L-J. Balloon in narrowing where R & L Jugulars meet.

Bumping up!! Anyone!! Hello!! I go Tuesday for my follow up MRV and to see DR D.

Cat

_________________
Holly - Shine On You Crazy Diamond - Pink Floyd

9/3/09 Stanford - Dr Dake - Stent in R-J to unblock Arachnoid Cyst in Sigmoid Sinus. Stent in narrowed L-J. Balloon in narrowing where R & L Jugulars meet.

Second week here. Buying my tickets after I get off of here. Just missed again!

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http://myhopefuljourneyintoactualmsreco ... ogspot.com

I'm still hoping but not sure. If not this week hopefully next when Lew is there. Also, if any of you happen to be in the east bay during your travels, let me know if you want to meet up for a cup of coffee or EGCG .

Rad, I would love to take you up on the offer. No scheduled time for the next appointment. Hopping very soon! I will let ya know ASAP. Are you in the east bay area? I spent allot of time in the bay area. I grew up in Nor Cal. Peace, Mark

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Plant a BIG Garden Live in the Moment

Hi Mark, yes, Berkeley. Might not be a big detour on the way down form Oregon, and depending on other constraints I may also be able meet in SF.

Cool, We went the back way through Oakland the last trip down and found it much easier than the 101 traffic in the city. Cheers, Mark

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Plant a BIG Garden Live in the Moment

We are here, got here yesterday afternoon. Halloween night is San Francisco is crazy. We are in a hotel on uni0n Square and we are staying a week.

Seeing Dr Dake on Tuesday.

Cat

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Holly - Shine On You Crazy Diamond - Pink Floyd

9/3/09 Stanford - Dr Dake - Stent in R-J to unblock Arachnoid Cyst in Sigmoid Sinus. Stent in narrowed L-J. Balloon in narrowing where R & L Jugulars meet.