I just got a call from my PCP's office! They said that Dr. Dake's office called yesterday, but they need more information. She also said that when patients need to go out of state for procedures, it is a specialist who writes a letter to the insurance company stating why the procedure cannot be performed locally. Well, the only specialists I currently could ask would of course be my neuros, but one of them I haven't even spoken to about this yet and the other I did speak to. He had not heard of CCSVI but he did seem interested in the information. He is referring me to an MS specialist that I see in January and he wants me to bring along the best printed material I can find about it to show the specialist. I wonder if this neuro would be able to write the letter to the insurance company? Anyhow, I just e-mailed Alex back letting her know what I found out and I sent her the contact information for the neuro that I already mentioned this to, suggesting that maybe she could get in touch with him about the specifics. I also suggested that maybe I should get a referral for a local vascular specialist who would then confirm that it was something that he couldn't do himself and he could write the letter. *Sigh* Well, Alex did say that it can take a lot of time and there would be a lot of hoops which is why she suggested I get the ball rolling as soon as I possibly could. I just hate the bureaucratic nonsense! I will keep everyone updated on what happens next.