Akaheather's Turn

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby Arcee » Tue Oct 06, 2009 4:40 pm

How cool! That will be a video clip to watch. Best of luck, and have fun with it!
diagnosed RR in spring '04
1 stent placed in left jugular vein 7/15/09
on and off Copaxone
allergric to interferons and Tysabri
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Postby catfreak » Tue Oct 06, 2009 4:53 pm

Heather,

Wow!! How cool. You will be in our prayers and don't forget to smile for the cameras!!

Cat
Holly - Shine On You Crazy Diamond - Pink Floyd

9/3/09 Stanford - Dr Dake - Stent in R-J to unblock Arachnoid Cyst in Sigmoid Sinus. Stent in narrowed L-J. Balloon in narrowing where R & L Jugulars meet.
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Postby mrhodes40 » Tue Oct 06, 2009 5:15 pm

Well if you are dripping with diamonds and Versace we'll know you overdid your look............ :wink:

Great news and good luck to you!
I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics
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Postby magoo » Tue Oct 06, 2009 5:21 pm

Best of luck :) You will be in my thoughts.
My appt. is next week. Keep us posted. I am anxious too.
Remember, we will be better for our kids!
Rhonda~
Treated by Dake 10/19/09, McGuckin 4/25/11 and 3/9/12- blockages in both IJVs, azy, L-iliac, L-renal veins. CCSVI changed my life and disease.
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Postby akaheather » Thu Oct 08, 2009 12:11 pm

MRV done.
ultra sound done.
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Postby Jamie » Thu Oct 08, 2009 1:25 pm

Good stuff Heather!
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Postby akaheather » Thu Oct 08, 2009 1:30 pm

Lew, is your buddy here?

I'm waiting to see dake, I'll let y'all know how it goes.
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Postby Loobie » Thu Oct 08, 2009 1:38 pm

She's out next Monday. I wrote it down wrong.
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Postby Sharon » Thu Oct 08, 2009 1:56 pm

Waiting for your report --- hope all is well with you

Sharon
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Postby akaheather » Thu Oct 08, 2009 4:12 pm

The results are in .... Stenosis in high right jugular, probable stent in lower right jugular and possible stent in left jugular. Surgery tomorrow! Yikes!
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Postby CureIous » Thu Oct 08, 2009 4:17 pm

akaheather wrote:The results are in .... Stenosis in high right jugular, probable stent in lower right jugular and possible stent in left jugular. Surgery tomorrow! Yikes!


Well "congrats" on not coming away empty handed, just know that everyone here will be watching and waiting to hear how things went.

We are with you!

Mark.
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap
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Postby Jamie » Thu Oct 08, 2009 4:38 pm

No one's pretending this'll be easy Heather but we're very hopeful you'll be helped!

Take care and don't be a hero with the pain meds! If you need 'em (and they don't make you puke!) use 'em!

Jamie
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Postby mrhodes40 » Thu Oct 08, 2009 5:33 pm

Wow Heather, I wish you well!! Ditto Jamie--take the meds and get rest after the fact....
I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics
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Postby Shannon » Thu Oct 08, 2009 5:54 pm

*\o/* *\o/* *\o/* Cheering for you!!! *\o/* *\o/* *\o/*
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Postby catfreak » Thu Oct 08, 2009 8:07 pm

Hi Heather! Hope you are resting! We are all thinking about you.

Cat
Holly - Shine On You Crazy Diamond - Pink Floyd

9/3/09 Stanford - Dr Dake - Stent in R-J to unblock Arachnoid Cyst in Sigmoid Sinus. Stent in narrowed L-J. Balloon in narrowing where R & L Jugulars meet.
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