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Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

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akaheather
 Post subject: Akaheather's Turn
PostPosted: Wed Sep 30, 2009 9:00 am 
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My appt is scheduled on October 8 and 9. I am totally scared to death!
I don't really like flying and am really sad about having to leave the children with Grandma. :cry:

However, I want to find out if I have a problem that can be fixed!

So for those of you that are praying...I am hoping for a safe flight, something worth fixing, a quick painless surgery, an equally painless recovery, and a safe quick flight back to Texas. Did I miss anything? I hope that isn't too much to ask for. 8)

Heather
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CRHInv
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PostPosted: Wed Sep 30, 2009 9:51 am 
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Okay! I will keep you in my thoughts and lets hope you get everything you are hoping for. Take good care!
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Loobie
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PostPosted: Wed Sep 30, 2009 10:02 am 
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Heather,

Good luck with everything. Also you will be out there at the same time as my good friend and his daugther (she's the one with MS). She is a little blond gal of 24 whose name is Erin. They are extremely nice people and I'll ask Tom if he minds if I give you his cell phone. It was good hooking up with Randi out there; comforting if you will. We're all in this together!

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ErikaSlovakia
 Post subject: Re: Akaheather's Turn
PostPosted: Wed Sep 30, 2009 11:04 am 
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akaheather wrote:
My appt is scheduled on October 8 and 9. I am totally scared to death!

Do not worry! October 8 is LUCKy day because I was born, so everything will be just fine! :D
I wish you the best!
Erika

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Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
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MaggieMae
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PostPosted: Wed Sep 30, 2009 11:21 am 
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Heather,

You are doing this for your kids too. Think of it that way. Because what you find out, may help them some day.
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mrhodes40
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PostPosted: Wed Sep 30, 2009 11:22 am 
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Heather good luck on this new journey to discover what is up with you. Dr Dake has learned with every person so he has experience with us MSers now so that is all good. :D :D

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I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics


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sewwhat
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PostPosted: Wed Sep 30, 2009 7:59 pm 
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I am hoping for a safe flight, something worth fixing, a quick painless surgery, an equally painless recovery, and a safe quick flight back to Texas.

Wishing you the best on all of the above ~ You will be in my thoughts n prayers ~ tc :) ((hugs))
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whyRwehere
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PostPosted: Thu Oct 01, 2009 4:47 am 
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I'm the same way...I hate flying...can you take a train? Good luck!!
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akaheather
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PostPosted: Tue Oct 06, 2009 2:25 pm 
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Angela called today to tell me that Canadian film crew was going to be at Dakes office on thurs doing a story about ccsvi. She said that the show was the Canadian equivalent of 20/20. She also said that they may use some/all of the footage for American broadcasting.
Very interesting stuff!

( I told Angela that I would need Dake to send me some cash so that I could go get my hair done for my big debut! But seriously, I may need a new outfit.)

Akaheather
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bestadmom
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PostPosted: Tue Oct 06, 2009 2:30 pm 
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How exciting. Good luck with your procedure and get a mani/pedi while you're at it!
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cheerleader
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PostPosted: Tue Oct 06, 2009 2:34 pm 
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akaheather wrote:
Angela called today to tell me that Canadian film crew was going to be at Dakes office on thurs doing a story about ccsvi. She said that the show was the Canadian equivalent of 20/20. She also said that they may use some/all of the footage for American broadcasting.
Very interesting stuff!

( I told Angela that I would need Dake to send me some cash so that I could go get my hair done for my big debut! But seriously, I may need a new outfit.)

Akaheather


Hey girl...send your hairdresser our way first! The film crew comes to visit our home all day tomorrow. I'm still dusting....

I hate flying, too...and that 11 hour trip to Bologna was a long one. Remember what you're doing this for, and know we are all holding you up in our prayers.
traveling mercies,
Joan

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Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS


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Loobie
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PostPosted: Tue Oct 06, 2009 2:38 pm 
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cheerleader wrote:
akaheather wrote:
Hey girl...send your hairdresser our way first! The film crew comes to visit our home all day tomorrow. I'm still dusting....Joan


Jeff is ground zero :lol:

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radeck
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PostPosted: Tue Oct 06, 2009 3:10 pm 
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The news about the Canadian film crew touring California for CCSVI is fantastic!

All the best for testing and (possibly) procedure, Heather...
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CureIous
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PostPosted: Tue Oct 06, 2009 3:16 pm 
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akaheather wrote:
Angela called today to tell me that Canadian film crew was going to be at Dakes office on thurs doing a story about ccsvi. She said that the show was the Canadian equivalent of 20/20. She also said that they may use some/all of the footage for American broadcasting.
Very interesting stuff!

( I told Angela that I would need Dake to send me some cash so that I could go get my hair done for my big debut! But seriously, I may need a new outfit.)

Akaheather


Very exciting thanks for the report!

_________________
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap
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Sneaky
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PostPosted: Tue Oct 06, 2009 4:05 pm 
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wow .. enjoy the limelight and good luck with everything!
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Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

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