Tracking Results

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby radeck » Sat Oct 24, 2009 11:35 am

I have an italian translation of the introduction/scheme of the tracking project. What do people think, should I put it below the english introduction, making that site a bit more cluttered, or start a new Italian tracking thread?
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Postby SammyJo » Sat Oct 24, 2009 12:12 pm

Congrats on the translation project!

If you think the responses will be in Italian, we better start a new thread, and call it Italian CCSVI Tracking. Add a note & link suggesting if they know English, would be great if they could post it in both.

Want to add a note suggesting people add their stenosis images to their log?
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Postby radeck » Sat Oct 24, 2009 12:18 pm

Thanks Sammy for the thoughts! I just posted the new Italian tracking thread! My Italian isn't good enough to add items there, but I'll add the request for posting pictures. I noticed that some of the hard core CCSVI folks have promised to post pictures elsewhere, but never did. I think that might be because not everybody has a public domain site they can post to. I used photobucket for mine and will recommend this in the english tracking. Let me know if you know better options.
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Postby skydog » Sat Oct 24, 2009 12:21 pm

Great Idea! A picture is worth a lot of words. Soon as I can figure out how to scan and post my Pics i will. Just noticed a typo on my tracking post, had 6/01/09 instead of 9/01/09 as my follow up date. Fixed! Hands not working well so not posting much, but reading all posts. Thanks Everyone, Mark
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Postby mrhodes40 » Sat Oct 24, 2009 1:00 pm

Maybe add a translator link in a post to the thread so English speaking persons can read them or do you mean to keep it separate?
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Postby SammyJo » Sat Oct 24, 2009 10:20 pm

Someone asked about a picture hosting site, here's http://www.lookpic.com/

Upload photo, it returns links, the one for Forums uses the format here for urls so you just copy/paste.
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Postby radeck » Sat Oct 24, 2009 10:33 pm

Thanks! lookpic is perfect, especially with the ability to resize (made me update my avatar). note that it renames .jpg's to .jpeg, which TIMS doesn't like, so folks will have to go with either .gif or .png
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Postby radeck » Thu Nov 19, 2009 10:50 pm

Hey Folks, what do you all think about including pictures of our blockages in the tracking thread? I was just thinking again the last couple of days how I haven't really seen many cases and how incredibly useful it would be to assemble a data base of this here. Now that Dr. Haacke is pointing to us from his site, maybe we can return him a favor! As cheer said, a picture says a thousand words. The only downside of this would be that the thread would get big. Let me know what you think. Thanks
Last edited by radeck on Sat Dec 19, 2009 12:19 pm, edited 1 time in total.
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Postby cheerleader » Thu Nov 19, 2009 11:05 pm

radeck wrote:Hey Folks, what do you all think about including pictures of our blockages in the tracking thread? I was just thinking again the last couple of days how I haven't really seen many cases and how incredibly useful it would be to assemble a data base of this here. Now that Dr. Haacke is pointing to us from his site, maybe we can return him a favor! As cheer said, a picture of jugs as f****d up as ours can tell a 1,000 words (actually, cheer didn't use expletives :-)). The only downside of this would be that the thread would get big. Let me know what you think. Thanks


done. Great idea for the folks who have pics. Just edited - check out those f'ed up veins! :wink:
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Postby radeck » Thu Nov 19, 2009 11:13 pm

Oh, by the way, you can all request CDROM's with all your MRV images and an included convenient viewing software (windows only unfortunately) free of charge from Stanford! Just sent Alex an email.
Once you have the CDROM's, I can tell you which series to look for if you can't find it yourself, and there are many pieces of software that can take screenshots or grab parts of the screen. Then you can upload to one of several sites hosting images and link in the thread to that. I can help with any of these steps if needed.
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Postby radeck » Fri Nov 20, 2009 1:15 pm

I also posted my pictures in the tracking thread.

And for all who are willing to post their images, the best site I've come across (I think SammyJo recommended this) is http://lookpic.com/.

All you need is an image in any size, then lookpic will offer you to resize it to web forum format on their site. It should literally take 5 minutes, just as long as establishing a new thread posting. So you got no excuses, if your tracking entry is missing it officially means you DON'T WANT us to see your info&images and help research into CCSVI!!!

I know, I can be a stubborn fellow...

...but hey, it's true! :D
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Postby mrhodes40 » Fri Nov 20, 2009 2:29 pm

So you got no excuses, if your tracking entry is missing it officially means you DON'T WANT us to see your info&images and help research into CCSVI


or maybe a technophobe :oops: :oops:
I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
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Postby Loobie » Fri Nov 20, 2009 4:19 pm

Short thread Hijack!

Calling SammyJo! I sent you a PM and would love a quick response since it has to do with my LDN. I'll also Facebook you!

Thread unhijacked!
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Postby skydog » Fri Nov 20, 2009 6:31 pm

or maybe a technophobe Dito for me on this just because I seem to crash and burn when on the puter. Love to show off my pics if I can just figure out how. Have all three sets of cd's but hard to get just a good picture out of them yet. Help radeck give us a outline of what to do. Thanks, Mark
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Postby radeck » Fri Nov 20, 2009 6:50 pm

I'd love to help as much as I can! Here are the steps involved.

1) find images of your stenosies. You have to find a series of images. First step is to double-click on the big M executable in the CD, this is the image viewer. Then to jump to the next series click the right arrow button that has a "Se" on it. To move forward in images within a series, click the right arrow with an "Im" on it. There's a lot of stuff on those CD's that seems pretty useless, i.e. the images show nothing. One that's really nice is called MRV COR 2d TOF. It's on the third CD in my case. That's the one Joan showed of Jeff I'm guessing, with all cerebral veins and outflow routes shown in a 3D rendering. The problem is that in case of some patients the operator seems to have aborted that scan at jaw level, i.e. if you don't have stenosies above that like me, you won't see yours on this series but will have to take something less nice. It's chopped off in my case...:-(, so I took the next best, called "AX GRE BH LOWER", which shows horizontal cuts (assuming a standing individual here). Just skip forward until you're at the height of your stenosis. For the sideview, the series is called "SAG TRICKS POST".

2) You have to capture that image from your screen. There's a software for this on Macs called "Screencapture Plus", a widget. It's so easy, literally one click. I don't know what to use on a PC to be honest, since I'm not smart enough to use those :-) There are many applications in Linux, so ask me if you have that.

3) Go to http://lookpic.com/ and upload the picture. It's just one click and localization of the screenshot on your computer. Let me know if you have a question.

You and Marie have my email address and are more than welcome to send me the screenshot and I'll take care of the rest. Others can pm me if they need any help, or just ask on this thread.

Thanks...
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