Surgery complication that I had - verified by another

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby Sharon » Thu Oct 01, 2009 1:18 pm

Arcee wrote
Hmm, my stent is pretty high up and it hasn't been a problem for me...

Good for you!
I think what happens is the high stents are getting into a more compromised area of the neck for some of us. Anatomically we just do not have the space. You probably had some extra room and the nerves and muscles were not agitated during surgery. Also, I think Dake would have been using the smaller stent by the time you had the surgery.

Sharon
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Postby Arcee » Thu Oct 01, 2009 1:42 pm

Lucky indeed. (And very lucky that I got to meet you there, Lew!)

I was #15 and confirmed with Dr. Dake that the 7mm he used in me is the smallest one he has been using. The thing is long though! I was kind of surprised when I saw it on my follow up exam.
diagnosed RR in spring '04
1 stent placed in left jugular vein 7/15/09
on and off Copaxone
allergric to interferons and Tysabri
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Postby Out2l8 » Thu Oct 01, 2009 1:54 pm

Arcee wrote:I was kind of surprised when I saw it on my follow up exam.
Did he hand you a sample stent to look at, or show you an x-ray of the stent installed in your neck?

Not that it matters, just curious
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Postby Arcee » Thu Oct 01, 2009 2:01 pm

This actually was with a Doctor in Boston who oversaw the MRVs and MRIs so I believe it was an MRV shot that kind of looks like an xray but then you can see the blood going through. The stent is long enough that you can see it easily.
diagnosed RR in spring '04
1 stent placed in left jugular vein 7/15/09
on and off Copaxone
allergric to interferons and Tysabri
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Postby magoo » Thu Oct 01, 2009 3:16 pm

Just wanted to chime in and say that when Dr. Dake called me on Monday he mentioned adjusting the stent size. He said he thought bigger was better in the beginning. He has since learned from those of you having these nerve problems, that may not be the way to go. He said now he is adjusting the size of the stents. He didn't say it wouldn't happen, he just said he was refining the procedure.
Rhonda~
Treated by Dake 10/19/09, McGuckin 4/25/11 and 3/9/12- blockages in both IJVs, azy, L-iliac, L-renal veins. CCSVI changed my life and disease.
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Postby manojag22 » Mon Aug 16, 2010 11:21 pm

I was liberated on last wk of Feb, my right IJV was stented (60 * 10mm) just below the ear, for last two weeks I'm having weakness, stiffness in right hand from shoulder to palm.. Not sure what is causing this ?? is this be MS or due to stent, Anyone have any idea, pls advise.. (One of my MS friend mentioned that it could be... due to acc nerve getting affected by size and location of stent). What could be option I have..
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Postby manojag22 » Tue Aug 17, 2010 3:14 am

I was liberated on last wk of Feb, my right IJV was stented (60 * 10mm) just below the ear, for last two weeks I'm having weakness, stiffness in right hand from shoulder to palm.. Not sure what is causing this ?? is this be MS or due to stent, Anyone have any idea, pls advise.. (One of my MS friend mentioned that it could be... due to acc nerve getting affected by size and location of stent). What could be option I have..
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Postby manojag22 » Tue Aug 17, 2010 4:35 am

I was liberated on last wk of Feb, my right IJV was stented (60 * 10mm) just below the ear, for last two weeks I'm having weakness, stiffness in right hand from shoulder to palm.. Not sure what is causing this ?? is this be MS or due to stent, Anyone have any idea, pls advise.. (One of my MS friend mentioned that it co...uld be... due to acc nerve getting affected by size and location of stent).
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Postby Loobie » Tue Aug 17, 2010 4:41 am

Mano,
I resonded to your PM. Sounds like you got your nerve banged like I did, but I'd get a physiatrist to give you and EMG to confirm.
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Postby 1eye » Tue Aug 17, 2010 7:36 am

I want to thank you, too: as one who is going through the countdown now...

Not too worried because I know my enemy: been there somewhat before with my chest stents. Another question: does anybody know if thromboses are more common in arteries versus veins and vice versa?

Good to know that. It was because of a stent placed high up?

I don't like the idea of consuming rat poison. I have seen what your face can look like. I think I'd rather be on Plavix. But I kind of play it by ear because the push to get people through the system and up and out of the hospital, here in Canada, anyway, is a cost cutting measure, in part. So I won't be anxious to try anything (I hope I don't overdo it out of excitement). Maybe that should be listed as a known problem for Liberation: people who have not had that level of energy for 20 years and go overboard going bungee jumping or something in the first week (month, year?).

I'll just try to walk upstairs and check my foot-drop, try to do the peg test and PASAT, and see if I have any stamina by trying to stand for a while. That should be a test: how long can you stand up? I used to be able to make it for an hour when I had to: back when I had not disclosed.

Anyway if you don't see me in this forum (rejoice and be merry), I will be back to push my old same story about the edss9 squad, death and other unpleasant topics (sorry) whenever I can, report progress or not, regress (waaaaahhh!) or whatever.

See you on the flip side...
"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'MS' is over - if you want it
Patients sans/without patience
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Postby Sport » Tue Aug 17, 2010 7:42 am

Mano,
If it is the stent causing the issue, it will go away--eventually. It took me 6 months or so before I could brush or wash my hair with my right arm. I didn't get mine checked out because I knew it was a common complaint, and at that point I was really tired of seeing folks in the medical profession.
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Postby 1eye » Tue Aug 17, 2010 8:28 am

Maybe we'll get used to the fact stents often result in open-neck surgery. Is that common, or not?
"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'MS' is over - if you want it
Patients sans/without patience
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