Hi all. I am pretty new to this forum and have been reading about CCSVI with interest. I don't really understand it very well, and I haven't been able to read through everyone's posts, but I did print off some of the research to give to my neuro when I see him in 2 weeks. I'm not sure how receptive he will be but I'll give it a try.
Today, I saw my pain management doctor and mentioned it to him. He was interested and was going to do some research on it.
Here is my question - Do you think that this vein problem (with the twists and stenosis) could cause chronic pain? I have had right upper quadrant pain for over 4 years now. It is always there, only helped a little by taking Lortab. It is not terrible pain, I can certainly live with it, but it never goes away. I have had every test you can imagine to try to find the source of the pain with no positive results. My gall bladder is gone, btw, and the pain is in the area of the gall bladder. The reason I wondered about this was because I thought the azygous vein might be near that area and a problem there could be causing the pain.
Anyone think this might be true? My pain doc suggested I email the Stanford clinic with my information and see what they say, but I thought I would run it by this forum first. I really don't know if they would respond to a random email from me, anyway.
Any help would be appreciated!