This Is MS Multiple Sclerosis Community: Knowledge & Support

Welcome to the world's leading forum on Multiple Sclerosis research, support, and knowledge. For over 10 years, This is MS has provided an unbiased community dedicated to Multiple Sclerosis patients, caregivers, and affected loved ones.
It is currently Sat May 25, 2013 7:20 pm


All times are UTC - 8 hours [ DST ]




Post new topic Reply to topic  [ 76 posts ]  Go to page Previous  1, 2, 3, 4, 5, 6  Next
Author Message
 Post subject:
PostPosted: Thu Oct 15, 2009 6:23 am 
Offline
Family Elder
User avatar

Joined: Mon Apr 20, 2009 3:00 pm
Posts: 326
Really glad this article came out, been spreading it far and wide ... in previous efforts to spread the word, people wanted a plain-english article, not research or TIMS postings, so this is really helpful - especially because, as others have pointed out, it flat out says "this might be the cause of MS," instead of pussyfooting. :D


Top
 Profile  
 
 Post subject:
PostPosted: Thu Oct 15, 2009 6:25 am 
Offline
Family Elder
User avatar

Joined: Mon May 18, 2009 3:00 pm
Posts: 722
Location: CT
Thank you for posting this Sawdoggie. Can you continue to post links as they pop up? It is so exciting.


Top
 Profile  
 
 Post subject:
PostPosted: Thu Oct 15, 2009 7:32 am 
Offline
Family Elder
User avatar

Joined: Mon Apr 20, 2009 3:00 pm
Posts: 326
Zivadinov has roots in Italy, I wonder if that was how he got into this:

Quote:
Founding Director, Trieste Neuroimaging Analysis Center
Department of Clinical Medicine and Neurology, University of Trieste, Italy
1997 – 2002

Chief Researcher, Multiple Sclerosis
Center for Diagnosis and Treatment of Multiple Sclerosis
Department of Clinical Medicine and Neurology, University of Trieste, Italy
1999 – 2002

Neurologist on Night Guard Duty, 4th Sanitary District “Medio Friuli”
San Pietro al Natisone (Udine), Italy
1999 – 2002


http://www.bnac.net/wp-content/uploads/ ... 6-1-09.pdf

A good article about him here:

http://www.nacional.hr/en/clanak/38074/ ... usinessman

... although my paranoid side gets worried about his reliance on big pharma dollars ... in my imagination it is plausible that those who stand to lose billions if MS is a vascular condition would organize a well-publicized study that is corrupt, with the goal of discrediting CCSVI in the public eye and burying it ... 8O

Quote:
Robert Zivadinov adds that clinical research is the most profitable area of work his Centre does. "We are a centre that reads the findings of magnetic resonances for multi-centre clinical research, which means that about 100 different centres around the world send us their magnetic resonance shots for our analysis. The analysis and research is done in collaboration with the world's largest pharmaceutical companies who provide massive funding for this kind of research, and that is one of the aspects of the financing of our centre. We currently cooperate with five pharmaceutical companies for whom we are working on five big clinical research programs." Zivadinov points out that pharmaceutical companies are in recent years exceptionally interested for research into mediations for multiple sclerosis. While there were in 2001, he says, only a few such companies, there are currently at least twenty that are launching research linked to multiple sclerosis.


Of course I am aware that this is pure paranoia at this point! (But if the Italian research looks positive, Dake's stent patients do good, but then this Buffalo study comes back negative, you can bet I'll be letting the paranoia come to the forefront of my mind. :) )

Fortunately, I am sure his center will find plenty of profit in workng with the intensive imaging/MRI requirements of this potential new paradigm ...


Top
 Profile  
 
 Post subject:
PostPosted: Thu Oct 15, 2009 8:00 am 
Offline
Family Elder
User avatar

Joined: Mon Sep 10, 2007 3:00 pm
Posts: 4682
Location: southern California
Here's an actual TV NEWS story on the Buffalo release-


SUNY Buffalo news

cheer

(Zap- SUNY Buffalo neuros have worked w/Dr. Zamboni before. Dr. Zivadinov is in charge of the imaging part of the study...no worries. Even if they wanted to somehow monetize this with pharma, Dr. Zamboni's Liberation procedure has already proven successful, and I believe Dr. Dake's stenting will show the same positive results.)

_________________
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS


Top
 Profile  
 
 Post subject:
PostPosted: Thu Oct 15, 2009 8:31 am 
Offline
Family Elder
User avatar

Joined: Wed Mar 10, 2004 4:00 pm
Posts: 197
I've been forwarding all the CCSVI info to Stuart's MS newsletter http://www.msviewsandnews.org/ He has it on the top of his site and blog today

http://wwwmsviewsandrelatednews.blogspot.com/2009/10/breaking-news-ub-neurologists-try-to.html


Last edited by SammyJo on Thu Oct 15, 2009 9:03 am, edited 1 time in total.

Top
 Profile  
 
 Post subject:
PostPosted: Thu Oct 15, 2009 8:51 am 
Offline
Family Elder

Joined: Tue May 19, 2009 3:00 pm
Posts: 669
Dr Dake better get ready for an avalanche. Here's what's about to happen: People are going to hear about this, search the net, find TIMS and call Dr Dake.

And as for TIMS, get ready for an onslaught of newbie questions. I wonder if it wouldn't be a good idea to create a new sticky, a kind of "frequently asked questions" version of the monster thread. Something less daunting we could direct new people to.


Top
 Profile  
 
 Post subject:
PostPosted: Thu Oct 15, 2009 9:01 am 
Offline
Family Elder
User avatar

Joined: Sun Nov 07, 2004 4:00 pm
Posts: 1228
Location: Colorado
Rokkit - have you noticed how many newbies we have this past month? You are correct, there are going to be more. We have the thread "Getting Ready for Stanford" - maybe that could be put into a "sticky". The other newbie questions - oh, my goodness!., I think we just need to be ready to direct them to a TIMS topic -

This is going to be fun!

Sharon


Top
 Profile  
 
 Post subject:
PostPosted: Thu Oct 15, 2009 9:11 am 
Offline
Family Elder
User avatar

Joined: Mon Sep 10, 2007 3:00 pm
Posts: 4682
Location: southern California
I have been referring folks from the Facebook page to come on here and discuss all things CCSVI. Do you guys think the "Just the Facts, Ma'am" might be a good sticky?
http://www.thisisms.com/ftopicp-58782.html#58782

cheer

_________________
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS


Top
 Profile  
 
 Post subject:
PostPosted: Thu Oct 15, 2009 9:14 am 
Offline
Family Elder
User avatar

Joined: Thu Sep 23, 2004 3:00 pm
Posts: 2066
Location: USA
Here's an idea TIMSers:

Does anyone think it would be an advantage to have a whole thread for MEDIA stories? Call it media even possibly make it a sticky (or would that be too many sticky's?)

Everyone who posted one of these could repost in that thread?

It seems to me that perhaps a newbie would appreciate being able to click through a thread of such information and see all those stories in one place? It is a different kind of information than the research thread....

just a thought........... :?

_________________
I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics


Top
 Profile  
 
 Post subject:
PostPosted: Thu Oct 15, 2009 10:36 am 
Offline
Family Elder
User avatar

Joined: Sun Nov 07, 2004 4:00 pm
Posts: 1228
Location: Colorado
Cheer and Marie - both good ideas - "Just the facts would make a good "sticky". Marie I like the idea of the media "sticky" but I bet it would get hijacked. We all get so excited when we find news reports -- I am afraid we would forget it is a sticky and start posting to it.

For the newbies, I think we need to get a memo on each sticky why it is a "sticky" and that it is not for posting comments.

Sharon


Top
 Profile  
 
PostPosted: Thu Oct 15, 2009 11:59 am 
Offline
Family Elder

Joined: Mon Feb 16, 2009 4:00 pm
Posts: 398
This article today came with my google news alert email:

http://www.buffalonews.com/cityregion/b ... html?imw=Y

The buffalo release is definitely causing good publicity...


Top
 Profile  
 
 Post subject:
PostPosted: Thu Oct 15, 2009 12:01 pm 
Offline
Family Elder
User avatar

Joined: Thu Sep 23, 2004 3:00 pm
Posts: 2066
Location: USA
I agree too may "stickies" is plain obnoxious

What about if I added a section at the way bottom of research called Media reports..................

It sounds like a pain but it could make a place for it, but would anyone reference it?? I am not even sure people look at the constantly updated research thread ..................... I reference it all the time, but I amy be totally weird....I like c-span too. I am a mega nerd :roll:

_________________
I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics


Top
 Profile  
 
 Post subject:
PostPosted: Thu Oct 15, 2009 12:51 pm 
Offline
Family Elder
User avatar

Joined: Mon Jan 07, 2008 4:00 pm
Posts: 596
cheerleader wrote:
I have been referring folks from the Facebook page to come on here and discuss all things CCSVI. Do you guys think the "Just the Facts, Ma'am" might be a good sticky?
http://www.thisisms.com/ftopicp-58782.html#58782

cheer


Yes!!!

I've said it loads of times.

I keep searching for it to forward to people.


Top
 Profile  
 
 Post subject:
PostPosted: Thu Oct 15, 2009 1:45 pm 
Offline
Family Elder
User avatar

Joined: Wed Aug 05, 2009 3:00 pm
Posts: 156
Location: Australia
Dear cheer "Just the facts” would make a very, very good "sticky"! I can see it at our place. My translation Fakten, Fakten, Fakten….of your brill post is one of the most visited threads and a great help for all the newbie who are coming to our forum.
Over the time a did some additions which were inspired by the “Experts” :evil: of the German MS society.
Best
muse
http://csvi-ms.net/en


Top
 Profile  
 
 Post subject:
PostPosted: Thu Oct 15, 2009 1:48 pm 
Offline
Family Elder
User avatar

Joined: Wed Mar 10, 2004 4:00 pm
Posts: 197
Who is maintaing http://csvi-ms.net/en That would be a good site for all CCSVI resources.

I had an unused domain that I started putting all the CCSVI links and patient resources on, just so I had a quick link to send to people. Can't be hijacked! if this looks useful & anyone wants to give me suggestions let me know.

http://healingpowernow.com/


Top
 Profile  
 
Display posts from previous:  Sort by  
Post new topic Reply to topic  [ 76 posts ]  Go to page Previous  1, 2, 3, 4, 5, 6  Next

All times are UTC - 8 hours [ DST ]


Related topics
 Topics   Author   Replies   Views   Last post 
There are no new unread posts for this topic. Buffalo Neuroimaging Analysis Center (BNAC) wishes us all...

Sarahbellum

0

1104

Sun Dec 13, 2009 1:12 pm

Sarahbellum View the latest post

There are no new unread posts for this topic. Funding for Buffalo CTEVD study !! What can WE do !!??

ozarkcanoer

5

1311

Sun Nov 08, 2009 7:40 pm

jay123 View the latest post

There are no new unread posts for this topic. Buffalo CTEVD Study MRV images

Dragonfly

14

3957

Wed Dec 02, 2009 10:00 am

Dragonfly View the latest post

There are no new unread posts for this topic. CTEVD Study in Buffalo - How long for results?

willm

0

1000

Sat Nov 28, 2009 4:47 am

willm View the latest post

There are no new unread posts for this topic. Boston Medical Center- CCSVI study announced

[ Go to pageGo to page: 1, 2 ]

cheerleader

28

5134

Wed Apr 14, 2010 3:55 pm

Hope66 View the latest post

 


Who is online

Users browsing this forum: No registered users


You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum

Search for:
Jump to:  


News News Site map Site map SitemapIndex SitemapIndex RSS Feed RSS Feed Channel list Channel list
Read hundreds of Multiple Sclerosis stories on Experience Project. Experience Project is community where people connect through their life experiences. It's made by the same people who built This is MS, on the premise that no single life experience-- like having MS-- defines a person. EP covers over 10 million true stories about every possible life experience. Find yours!


Interesting: Secret Confessions | Dream Meanings | Ask Questions, Get Answers | Song Meanings