Hi, thank you so much for the replies.
daniel - I think hearing the doc say it just hit me like a ton o bricks. I'm sure it did for all of us...but your so right there's cause for hope. I feel so lucky to have found this site, with the great people & information.
~Amélie is my favorite movie
always cheers me up
CureIous - Thanks:) I am just so scared of needles and this one is the biggie lol I will be lucky enough to have some ativan before hand so I'm hoping I will be so mellow that it will be doable lol I am just prone to panic attacks and that's what I am fearing happens as they insert the needle!
I am not too sure on the diagnosing procedure either but neuro did say the LP was a must to confirm. I thought since I have so many lesions that I could avoid it but...no such luck. Truthfully I wanted the vascular doc to start the testing for CCSVI right away and get going but I will just stop n take a breath and see how the next appt goes. I wish I had the money available to just take off to Stanford but I will just keep saving.
LR1234 - I was born in CA but both parents are from Ireland.
I always heard my mom saying the "ducks in row" thing, among other fun sayings lol
mrhodes40 - "The natural history studies of MS show that people with RRMS will not get to a EDSS of 3 for about 15 years (depending on study)--3 is still really functional pretty normal no cane or anything like that"
Wow that puts me at ease here. I have been hearing so many horror stories from "friends" that I feel like I am in panic mode.
I have changed my diet completely, started exercising and added supplements. I do plan on starting a CRAB but need to do more research on which one to choose. That's very confusing so I have put it off..
This vascular doctor said he actually worked with Dr Dake at Stanford so that was very exciting to hear! I will definitely let you know how it goes tc n thanks for that information.
Sawdoggie - "The whole MS experience sucks to say the least."
That sums it up perfectly..I so agree.
Glad to hear another LP experience was was not too bad
IHateMS - Yep the neuro says he needs it to give me a diagnosis.
"the pain is minimal...lasts mere seconds... since i had to be undressed with the hospital gown only, i looked at it as my way of telling ms to kiss my behind."
LOVE it! lol
Sharon - Thanks for the Coca Cola tip. I have been off soda for about two weeks now but if I "need" to have it well I will lol yum At least there's something good to look forward to on thursday