Holly's Obituary and Donation Fund

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby radar22 » Fri Oct 16, 2009 10:30 am

I've been wanting to thank you for starting this and seeing it through. I am glad that there will be help for CCSVI and yes it would make Holly's family proud and Holly very happy, in her own quiet way.
Thanks 4 the challange, CatFreak, i think we all need a pust sometimes.
L, Cindy
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Postby gibbledygook » Tue Nov 03, 2009 11:50 am

I'd just like to keep Professor Micheal Dake's MS Innovations Fund in memory of Holly Shean up on everyone's radar. If Professor Dake gets enough money in this fund that might mean he could run a more formal trial. I'm concerned that he needs more financial backing.

It's rather a pity it's not easier to donate with a few clicks straight to the Holly Shean/Dake Innovations fund.
3 years antibiotics, 06/09 bilateral jug stents at C1, 05/11 ballooning of both jug valves, 07/12 stenting of renal vein, azygos & jug valve ballooning,
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Postby Arcee » Tue Nov 03, 2009 12:33 pm

I actually asked about that and was told that Stanford only lists funds with high demand in drop down menus so perhaps if more people give and request simpler access, they will consider it. (The University's Development Office is quite responsive.) Perfect timing for holiday giving!
diagnosed RR in spring '04
1 stent placed in left jugular vein 7/15/09
on and off Copaxone
allergric to interferons and Tysabri
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