Holly's Obituary and Donation Fund

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Holly's Obituary and Donation Fund

Postby Sharon » Fri Oct 02, 2009 11:56 am

To All,
Holly's sister, Trudy, sent me a copy of the obituary - the family wanted it posted on TIMS.
We also now have a way to make a donation in memory of Holly thanks to the hard work of Cheryle aka "Needled".

Holly's Obituary
Holly Elizabeth Shean, born December 18, 1958, died on August 19,
2009. She is survived by her parents, James and Dorothy Shean, her
three sisters Trudy Roughgarden, Jill Griffith and Laura Walker, her nephew Tim Roughgarden,
niece Veronica Kirkland, great-nephew Wesley Kirkland, and her loving companion John Blaise.
Holly grew up in Levittown, Pa., graduate from Neshaminy high school and attended
Bucks County Community College. She moved to Chicago, where she
received her Bachelor of Arts and Master's Degrees in Marketing from North Park College.
After 20 years in Chicago, and having been
diagnosed with Multiple Sclerosis, she moved to Prescott, Arizona, a
state she discovered and fell in love with at age 14. Holly's passions
were travelling (especially with her good friend Kathy), music, visual
arts, animals , Native American culture and The Grateful Dead. She was
also passionate about MS research and in constant communication with
doctors and others with MS. PLeas make any donations in Holly's
memory to the Multiple Sclerosis Society.
**************
Making a Donation
Dr. Dake has a fund in place. “The MS Innovations Fund is dedicated to the development of novel therapeutic approaches for the treatment of patients with Multiple Sclerosis and related neurodegenerative disorders through the exploration of associations with arterial and venous abnormalities. The Innovations Fund supplies resources to support both preclinical and translational research that directly impacts patients by providing leading edge management strategies. These therapies are based on new understandings of the factors that cause and influence the progression of multiple sclerosis. The Fund provides assistance for the purchase of laboratory equipment, database management, clinical trial coordination, and other important contributions that benefit the pursuit of new therapeutic paradigms to help MS patients and their families.”

There are three ways to make a donation:

1. Call Stanford toll-free at 866-543-0243. Please be sure to say that the donation is in memory of Holly Shean for Dr. Dake's "MS Innovations Fund."

2. Send a check payable to Stanford University and mail it to Stanford University, Office of Development, Gift Processing, 326 Galvez Street, Stanford, CA 94305-6105. Please be sure to write on the check that the donation is in memory of Holly Shean for Dr. Dake's "MS Innovations Fund."

3. On-line at www.givingtostanford.stanford.edu. Click on the red box in the lower right hand corner, "Make A Gift Now," then click on "Other" to select the school or group to which you wish to make a gift. On the next screen, under "Further Designation," click on "Other Designation." Complete the next three questions. Then where they ask if the gift in is someone’s honor or memory, leave it as “No.” Next go to the "Special Instructions" box, and type in “This donation is made in memory of Holly Shean for Dr. Michael Dake’s “MS Innovations Fund.” Please note that although the donation is in memory of Holly, if you click yes in that box, the next screen will ask for information on who should be notified of your gift. Stanford will have that information. Because you have already given Holly’s name in the “Special Instructions” box, Holly’s family will be notified of your gift even though you haven’t checked “yes” in the “in memory of” box. Click on continue and finish filling out your information

********
I have made my donation by going online. Cheryle's directions worked perfectly.
Thanks again Cheryle for making the phone calls and getting everything tied together. TIMS members are incredible!

Sharon
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Postby Arcee » Fri Oct 02, 2009 1:04 pm

Thanks so much Cheryle and Sharon. I am glad we have this additional way to commemorate Holly, and support important MS research. Will donate today.
diagnosed RR in spring '04
1 stent placed in left jugular vein 7/15/09
on and off Copaxone
allergric to interferons and Tysabri
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Postby LR1234 » Fri Oct 02, 2009 1:09 pm

me too, missing you Holly x
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Postby mrhodes40 » Fri Oct 02, 2009 1:41 pm

The MS Innovations Fund is dedicated to the development of novel therapeutic approaches for the treatment of patients with Multiple Sclerosis and related neurodegenerative disorders through the exploration of associations with arterial and venous abnormalitie


wooohoooo!!!! yipppeee!! God bless Holly's beautiful soul....and the people who loved her who created her legacy in the same spirit. This will benefit people with MS forever...
I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics
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Postby fernando » Fri Oct 02, 2009 1:54 pm

God bless Holly.
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Postby cheerleader » Fri Oct 02, 2009 3:17 pm

Thank you dear, sweet Holly. For encouraging us all.
Thanks to Holly's family and loved ones for sharing her with us. Our time with her was too brief- and we miss her...we can't fathom your loss.
Thanks to Cheryle and Dr. Dake for instigating the memorial to Holly and the MS Innovations Fund. Thanks to Sharon for staying in touch with the family and posting the obituary and fund information.
I'll share this on the Facebook page.
wow...what a community.
cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Postby javaneen » Fri Oct 02, 2009 5:04 pm

Thank you Cheryle and Sharon for posting this for us and giving us a way to make a donation in Holly's memory. Thank you so much for putting all this together Cheryle. The MS innovations fund sounds like something that would make Holly very happy. This really is an amazing community!
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Postby catfreak » Fri Oct 02, 2009 7:29 pm

Oh how I miss Holly. I can not imagine how her family is managing with their loss.

God bless all of you that had a hand in this memorial. Holly would be very happy.

Cat
Holly - Shine On You Crazy Diamond - Pink Floyd

9/3/09 Stanford - Dr Dake - Stent in R-J to unblock Arachnoid Cyst in Sigmoid Sinus. Stent in narrowed L-J. Balloon in narrowing where R & L Jugulars meet.
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Holly

Postby Rose2 » Sun Oct 04, 2009 10:00 pm

Dear All.
I am new here and have entered after Holly has been here.
I would like to respectfully ask about Holly and her history without offending anyone. I realize she did not know me.
I apologize if there is a place here to find it, I just can't find her info or what happened?
If I am overstepping my bounds, please let me know.
Curious of course and most sorry for everyone's loss.
Sincerely, Rose
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Postby Needled » Mon Oct 05, 2009 2:23 pm

Rose, The last post in this link has a couple of other links.
http://www.thisisms.com/ftopict-7925.html
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Postby catfreak » Wed Oct 07, 2009 8:59 am

I made my donation to Stanford in Holly's memory for Dr. Dake's Ms Innovations Fund.

I challenge everyone who can to do the same.

What a blessing Holly was to our community here at TIMS.

Cat
Holly - Shine On You Crazy Diamond - Pink Floyd

9/3/09 Stanford - Dr Dake - Stent in R-J to unblock Arachnoid Cyst in Sigmoid Sinus. Stent in narrowed L-J. Balloon in narrowing where R & L Jugulars meet.
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Postby gibbledygook » Wed Oct 07, 2009 9:39 am

This is great. I had asked Prof Dake several times if there was a vascular research fund...and now, thanks to Holly, there is. Yay. Dollars on their way!
3 years antibiotics, 06/09 bilateral jug stents at C1, 05/11 ballooning of both jug valves, 07/12 stenting of renal vein, azygos & jug valve ballooning,
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Postby gibbledygook » Wed Oct 07, 2009 9:41 am

That link to Stanford doesn't work. Does anybody know the right url?

actually it does exist, just slightly different.
3 years antibiotics, 06/09 bilateral jug stents at C1, 05/11 ballooning of both jug valves, 07/12 stenting of renal vein, azygos & jug valve ballooning,
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Postby catfreak » Wed Oct 07, 2009 10:02 am

Holly - Shine On You Crazy Diamond - Pink Floyd

9/3/09 Stanford - Dr Dake - Stent in R-J to unblock Arachnoid Cyst in Sigmoid Sinus. Stent in narrowed L-J. Balloon in narrowing where R & L Jugulars meet.
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Postby catfreak » Thu Oct 08, 2009 8:10 pm

Bumped for everyone.

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Holly - Shine On You Crazy Diamond - Pink Floyd

9/3/09 Stanford - Dr Dake - Stent in R-J to unblock Arachnoid Cyst in Sigmoid Sinus. Stent in narrowed L-J. Balloon in narrowing where R & L Jugulars meet.
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