Date(s) & type of neurological diagnosis: 10/2002 possible RRMS dx, 07/2009 firm rrms dx
Lesion locations, number: 2002 -Signal in callosal septal junction bilaterally, 2 of these lesions radiate out in a perpendicular fashion to the ventricles. Signal in the white matter of the left cerebellar hemishere 1.2 cm, no signal in cervical spine. 2009 - following major vertigo attack in early 2009, new MRI shows 1 new lesion on the brainstem, location of lesion matches vertigo symtoms per neuro's comments. Summary 11 lesions.
MS treatments: None after "possible" dx in 2002, following "firm" dx in 2009 started LDN (gave me huge improvements) Vit D, B6, B12, ibuprophen, baby aspirin, inclined bed therapy starting this spring (much better mornings). Refused CRABs.
MS symptoms before stenosis intervention: ON and eye pain for 16 weeks in 2002 but then completely resolved, since 96 as follows: Bladder (frequent and up in the night alot, bowel (spasms), brain fog, fatigue,(better wiith LDN) dizziness, difficulty balancing and walking straight line, mood swings, shooting pains in the head, periodic visual disturbances eg flashing in line of vision, periodic choking on food and liquids, choking on saliva in the night, mild foot drop, cold feet, heat intolerance (much better with LDN), joint pain and stiffness, facial numbness and tingling, tingling arms and hands (falling asleep), buzzing, clicking and vibration sensations in head and arms all mainly in the morning (inclined bed therapy really helped this), no dreams or dreams that skip like a broken record, acid reflux, memory problems, word fishing, tinnitus in past year almost constant, loss of train of thought, cognitive confusion, difficulty writing, pain in neck and shoulders, difficulty socializing.
Number of relapses before intervention (if applicable): 2 ,one in 2002 - ON, one in 2009 - Major Vertigo
EDSS before CCSVI intervention (self-assessed or physician-assessed?): Self -3.5
FSS before CCSVI intervention:
[To calculate FSS rating, click the following link: http://www.mult-sclerosis.org/fatigueseverityscale.html
MSIS before CCSVI intervention:
[To calculate MSIS rating , click the following link: http://healingpowernow.com/msis.htm
Are you using Inclined Bed Therapy I.B.T? Y
Have you had testing (and possibly procedure) for blockage yet: Y
STENOSIS PROCEDURE HISTORY
Date/location of testing/procedure: jan 2010, Barrie
Type of venographic study: Doppler
Diagnosis: Venous insufficiency was evident with reflux in the internal right jugular and vertebral veins at 90 degrees.
Type of procedure: Venography and ballooning
Procedure/drug related symptoms: a lot of pain during ballooning part of the procedure, brutal!! back in hotel now, slight ache in neck, feels like bruising, no big deal.
Number of relapses since first CCSVI intervention:0
Impact on your MS symptoms in words (include date in brackets if there have been multiple updates): the day of treatment immediately following: able to look up at the ceiling and not be dizzy and light headed (have not been able to do this in 17 months), no tinnitus!! ( I have had tinnitus every day for the past 6 months, it especially kicks up a notch at 4pm each day, it is now 9pm and no sign of it! ), I can stand with my feet together and my eyes closed and not fall over after 5 seconds! ( I tried this test the day before the procedure and could not do). Anyway that's it for now. Will carefully monitor how I feel over the next days and months.
EDSS as of this update (self-assessed or physician-assessed?) Self assessed 0, no symptoms at all, but its only been 8 hours! I am cautiously optimistic. Hoping for the best, preparing for the worst. : )
FSS as of this update:
MSIS as of this update: