Name : Jim
Date(s) & type of neurological diagnosis: PPMS November 2007
Lesion locations (most affected side, if known), number: 5 lesions in brain 1 at top of spinal cord.
MS treatments: Copaxone, Prednisone, clonazepam
MS symptoms before stenosis intervention: Weak right side, right drop foot, can't hold on to things for any length of time with my right hand, weak right leg, bowel and bladder urgency.
Number of relapses before intervention (if applicable): 0
EDSS before CCSVI intervention (self-assessed or physician-assessed?): Self Assessed 6
FSS before CCSVI intervention: Self assessed 6.4
MSIS before CCSVI intervention: Self Assessed 94
Are you using Inclined Bed Therapy I.B.T? (Y/N) No
Have you had testing (and possibly procedure) for blockage yet: Yes
STENOSIS PROCEDURE HISTORY
Date/location of testing/procedure: 9/13/201 Albany, NY
Type of venographic study: (MRV, Doppler) Catheter Venography
Diagnosis: 100% blockage in left juggular, large collateral above blockage taking most of the blood flow. Over 50% blockage in right juggular. No Blockage found in Azygous.
Type of procedure: Balloon angio on right side, stent placed on left side. Plavix for 6 months.
Procedure/drug related symptoms: None
Number of relapses since first CCSVI intervention: 0
Impact on your MS symptoms in words (include date in brackets if there have been multiple updates):
(9/22) one week post procedure, more ability to move right arm, feel more clear in my thinking. Still can't move my right toes. Grasping with my right hand still difficult. Overall color is better. Giving it some time
EDSS as of this update (self-assessed or physician-assessed?)
FSS as of this update:
MSIS as of this update:Update 09/22/2011
It has been a year since this ride started by travelling to Albany, NY.
After multiple procedures, my left internal jugular is open, due to the covered stent placed there by a good friend.
I have moved my big toe on my right foot
how cool is that?
I awoke this morning at 5 am and went to breakfast w/out using an alarm. I love feeling awake in the morning!
My right hand and foot are normal size, no swelling.
Still have right drop foot.
Walked over a mile, not a triathlon (yet) but it is activity.Update 02/22/2012
Left jugular still open, still on the blood thinner Arixtra. I am hoping after my next good US appointment I can kick the habit.
Still have right drop foot and right arm/hand weakness. Still feeling more awake and over all a healthy energy level.
Still on blood thinner, still feeling good. Had a procedure 5/2 to open up narrowing at the top of the stents in the left jugular. Heat no longer affects me, I have begun to sweat again. Cold causes my right arm to behave badly still. Right leg still has spasm's at night. Can walk/limp a mile no problem.
Left jugular closed, right jugular still open. I can still sweat, right leg spasms still persist, MS stable, can still walk/limp a mile (even in high heat and high humidity)
Left jugular is completely closed still. Right side still open, still have the ability to sweat, can still walk/limp a mile. Still play golf one armed. I had lost the ability to sweat and be active in the heat and humidity. I gained the ability to regulate my temperature and am still thankful for CCSVI.