MS HISTORY :
diagnosed on 12/03/2008 after a severe left eye optic neuritis bout. First symptom was in 2004 when my fingertips went numb and remained like this ever since.
Date(s) & type of neurological diagnosis: RRMS (?) Who knows...dxed 2nd of December 2008 (worst day in my life...so far...)
Lesion locations (most affected side, if known), number: 2 In Cervical Spinal Cord (C2, C4-5)
MS treatments: 3 month regime of Campath 1-H right after dx with a total of 230 mg.
MS symptoms before stenosis intervention: severe left eye optic neuritis accompanied by nystagmus and scotoma, numbness in hands and feet, mild left side weakness, bilateral tinnitus, cog fog, dizzyness, balance symptoms and of course fatigue which comes and goes. Worst sy,ptom is that "poisoned mind syndrome" of mine.
Number of relapses before intervention (if applicable): 1
EDSS before CCSVI intervention (self-assessed or physician-assessed?):2
Are you using Inclined Bed Therapy I.B.T? (Y/N) N
STENOSIS PROCEDURE HISTORY
Date/location of testing/procedure: 05/02 Patra, Greece and 03/May/2010 Sofia, Bulgaria
Type of venographic study: (MRV, Doppler) Doppler
Diagnosis: both Dopplers showed critical stenosis of both jugulars
Type of procedure:
03/May/2010 PTA by dr Petrov.
No stents. They found stenoses in 2 places in my left jugular vein and a twisting, one mild (30%) in my right and one severe in my azy vein.
Procedure/drug related symptoms: NOTHING
Number of relapses since first CCSVI intervention: 0
Impact on your MS symptoms in words:
3 weeks pre op my left eyelead was dropping very often. Also, my wrists felt very weak without any real lack of power. These two last appeared symptoms seem to be milder but not vanished. My brain issues, which are the worst, are still there. Tinnitus, bad eyesight, numbness etc the same. No drastic, immediate improvements for me.
Instead, new symptoms appeared. Very mild tingling in 2 or 3 new places. I take it as it has something to do with altered blood drainage from my cervical spine, affecting already damaged nerves.
EDSS as of this update (self-assessed or physician-assessed?) 2 physician-assessed
For what it s worth here is my epicrisis:
Pre op doppler:
Highly advanced stenosis of both of the jugular veins with a minimum diameter of Left - 0.03 mm and Right - 0,3mm, V. Vertebralis sin. -2.5mm, V. Vertebralis dex. -3.2mm
Invasive diagnostic and therapeutic procedures performed:
Venography: V. Jugularis dex (i think this means right), -30% stenosis in the confluence, V. Jugularis sin (left) annuli in two areas, one near the bulbous and one near the confluence. V Azygous withhighly advanced stenosis. PTA and balloon dilation angioplasty was contucted with a 9/12 mm balloon on both jugular veins and 12/40 balloon on the Azygous.
Doppler post op:
Lying position: V Jugularis sin diameter 5mm and V Jugularis dex diameter 4.3mm
Sitting position:V Jugularis sin diameter 2.5mm and V Jugularis dex diameter 2mm
I will update if something changes for better or worse.
I am not on any MS drug.
There are some pics in my blog.
It is 2 month and a half post op. I had a follow up doppler a few days ago and my jugs are still functional. At least they are way better than pre op.
Symptom speaking i am a bit better. The dizzyness and that awful poisoned brain feeling are still here but not like before. On the down side, everything else is the same. Hopefully, i wont progress. I will update in 3 months.
I am sorry to report that my legs have started giving me trouble. A month ago when first noticed, i thought it was all in my mind. But it s not. Weakness is apparent. I am way better than pre op as far as it concerns brain issues. Also my arms are better. Go figure...
http://www.thisisms.com/ftopic-14005-da ... sc-60.html