The fear, I think, is coming from what will it do for your MS. I mean you're smart enough to know that fixing a plugged jugular is good to do regardless of MS. However, what is working for you now? That's the question I used to make the leap. My answer was this: nothing. So that's why I went for it. I am SP, I still feel like I have MS, but am taking no drugs and don't FEEL like I'm progressing. I feel very stable. Things flare up from lack of rest and over doing it, but nothing new has appeared and I haven't had a CRAB or a Ty infusion in 18 weeks. So, and I'm assuming here so tell me if I'm way off base, that the trepidation isn't necessarily in fixing a plugged jug. It's probably more of the emotional investment, which you already made in Rev., and now you may have to do it again for something unproven. Because reallly just fixing the jugs is pretty benign; the surgery hurts but you get over it. But the effect it will have on your MS is the sticky wicket.
As I"m sure you've heard me say, there's no parting of the clouds, or lifting of the veil of disability for me yet. However, I want to just quit all the damn drugs, and since they weren't working anyway, I may have done so with or without CCSVI surgery.
I'm sure your emotional investment was no small thing when you did Rev. I followed your blog every day and you were in it to win it that's for sure. You were all over it if memory serves. Now to sit down with another respected and brilliant doctor and do it all over again, but about something completely different. I mean we are all doing it for our MS, that's no secret. However, I've yet to hear Dr. Dake say "this is going to fix your MS right up". It may and it may not, but for me, I had to try something as I can't get any worse without needing some serious assistance and I think you're there too. I just can't call it the magic bullet yet, but I think folks who were 100% RR are doing so. Mel, Jeff, Mark, they were all RR and have responded wonderfully. People like Gici are who I really pay attention to because that's the boat I'm in. He says it takes serious time to notice, and that's what I have to do. So in doing this you probably won't have RR like results. You know I say that, but I remember from your Rev. blog that you did have enhancing lesions. So who knows? That's the million dollar question.