List of Those Who Had/Scheduled to Have Procedure-Stanford

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby CureIous » Tue Nov 24, 2009 6:26 pm

And I'll edit mine to keep the chatter down to a minimum lol. Mark.
Last edited by CureIous on Wed Dec 02, 2009 1:00 pm, edited 1 time in total.
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap
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Postby Ruthless67 » Wed Dec 02, 2009 12:57 pm

bump!
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Postby MaggieMae » Thu Apr 01, 2010 8:24 am

I thought I would just bump this list up. Many of the newbies will never recognize some of these names. This is a list of those who were tested and/or treated at Stanford, except for a few at the end of the list who I don't think ever made it to Stanford because things came to a hault.

Wish we would hear some updates from this Stanford group who haven't updated in awhile. It was good to hear from Jamie recently about how Mel is feeling. If anyone is lurking, let us know (good and bad) how you are doing.
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Postby Donnchadh » Thu Apr 01, 2010 11:14 am

catfreak wrote:Catfreak - Cindi 9/2/09


Catfreak,

I love your avatar! Did you make it? Really captures the true essence of "catness" lol

Donnchadh
Kitty says, "Take that, you stenosis!"

Got MS?.....Get Liberated!
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Postby catfreak » Thu Apr 01, 2010 5:46 pm

Catfreak,

I love your avatar! Did you make it? Really captures the true essence of "catness" lol

Donnchadh


Hi Donnchadh,

I was just hunting for a cool avatar and found this one. It looks just like my cat Amber. I don't remember where I got it now.

Cat
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9/3/09 Stanford - Dr Dake - Stent in R-J to unblock Arachnoid Cyst in Sigmoid Sinus. Stent in narrowed L-J. Balloon in narrowing where R & L Jugulars meet.
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Postby Cece » Thu Apr 01, 2010 6:24 pm

It's a smaller list than what it seemed reading back through old posts.
"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition
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Postby Rose2 » Thu Apr 01, 2010 6:27 pm

Maggie Mae,
I am one of the Stanford Stenters. Had the stents and angioplasty Oct 2009.
I am doing amazingly well. I do not have MS anymore.
I do not have any of the MS problems I had for 10 years.
No fatigue, heat sens, Cog Fog, muscle weakness, vision problems, stamina issues, muscle cramps, NO PAIN, etc.
NO pills. I take one baby aspirin once a day and Kapidex for my hiatal hernia.
I am active, non stop. I never have to sit down. EVER. I never have to look around for a place to plop my failing body.
I am better everyday as I continue to regain all the strength I lost doing nothing for 10 years. and now I know I had MS for years before the diagnosis, because I never felt THIS GOOD.
I am praying for everyone who wants this screening and indicated treatment to have it available.
I feel guilty for being able to have had it done and then it is so hard for everyone else. BUT, I want to be a vocal proponent.
Let me know if you have any questions. Sincerely, Rose ;)
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Postby prairiegirl » Fri Apr 02, 2010 9:36 am

Thanks for posting Rose2. So great to hear of your improvements-- very encouraging!
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Postby ozarkcanoer » Fri Apr 02, 2010 11:02 am

Rose2... Thanks for giving us more hope !!

ozarkcanoer
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Rosa

Postby rettahb » Sat Apr 03, 2010 9:38 am

Fantastic!!!

Dr. Dake called me on October 30 2009. And I've heard nothing since. I want to be you Rose2!
~retta
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Re: List of Those Who Had/Scheduled to Have Procedure-Stanfo

Postby MaggieMae » Sun Feb 24, 2013 7:02 am

I started this list over three years ago when the first patients were seen at Stanford. I thought about it the other day. Wondering how many (from this list) still read this forum and how they are doing today.
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Re: List of Those Who Had/Scheduled to Have Procedure-Stanfo

Postby PointsNorth » Sun Feb 24, 2013 2:59 pm

So for easy reference, can we refer to this group as "The Stanford 41" ?

PN
Last edited by PointsNorth on Sun Feb 24, 2013 10:09 pm, edited 1 time in total.
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Re: List of Those Who Had/Scheduled to Have Procedure-Stanfo

Postby magoo » Sun Feb 24, 2013 4:52 pm

I'm here and still doing pretty great overall. I pop over every now and then.
Rhonda~
Treated by Dake 10/19/09, McGuckin 4/25/11 and 3/9/12- blockages in both IJVs, azy, L-iliac, L-renal veins. CCSVI changed my life and disease.
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Re: List of Those Who Had/Scheduled to Have Procedure-Stanfo

Postby CureIous » Sun Feb 24, 2013 11:46 pm

Who us? ;)

Working, doing great, so many piles of stuff to do I had to actually start making LISTS. Oh the tragedy...

Never been better. Up at 4 am, get home 6:30 to 7. Last hour's as good as the first.

Proof's in the pudding as they say...
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap
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