CCVI outcomes and other approaches

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

CCVI outcomes and other approaches

Postby samish » Wed Oct 07, 2009 9:52 am

I am very curious about the operation and how it ties in with diet, heavy metal poisoning, supplements and Lymes disease and if patients outcomes are different when tied into any of these other approaches. I am due to have the operation at Stanford in November. I follow the Best Bet Diet, take supplements, incorporate Dr. Wahl’s advice (www.terrywahls.com) don’t smoke or drink, am currently being treated for Mercury poisoning and the only drug I take is LDN. I’ve had MS for 35 years and it’s moved into spms, currently I can “furniture walk”. I think it is important to compare the outcomes with other approaches a patient is taking. I know all our MS is different but I was curious if this had any impact and if it is important to track.
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Postby mrhodes40 » Wed Oct 07, 2009 1:51 pm

I am not sure what you mean so I will do it this way:

If you mean: do people take other approaches along with CCSVI like the BBD and supplements, most people do seem to choose to do something along side it appears, without going through every post and tallying it, that most stay with what they did before (ie, if you did LDN and BBD, you tend to do it afterwards too) This is true of me. I have certain supplements I like and have taken for a long time, any improvements I feel afterwards are new and NOT due to the fish oil or anything like that.

If you are asking "has anyone studied which supplements would best maximize results with this surgery" the answer is no. Cheer was interested before this research came out in strengthening the endothelial lining of the blood vessels and compiled a list of supplements that might aid in strengthening the endothelium, but that is not a scientific study per se.
I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
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Postby samish » Wed Oct 07, 2009 3:00 pm

What I meant was has anyone looked at the difference in recovery with the operation between patients who followed some kind of alternative approach and those who just did MS drugs. Just curious.
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Postby cheerleader » Wed Oct 07, 2009 3:35 pm

samish wrote:What I meant was has anyone looked at the difference in recovery with the operation between patients who followed some kind of alternative approach and those who just did MS drugs. Just curious.


No specific research yet, Samish. Way early. Dr. Zamboni did say, in Bologna during the pre-congress meeting, that endothelial disrupters- like chronic Cpn, EBV, saturated fats, cigarette smoking, heavy metals, excessive alcohol, toxins etc... ARE BAD within CCSVI, because they will cause vasoconstriction and further closing of the stenosis. A heart healthy cardiovascular lifestyle is the best bet...pun intended!
Jeff has stayed on the endothelial health program and is going strong, five months out from stenting.
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Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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