Blood flow and remission in MS: a new interpretation

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby chrishasms » Fri Oct 09, 2009 8:01 am

123
Last edited by chrishasms on Sat Dec 05, 2009 5:50 pm, edited 1 time in total.
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Postby zap » Fri Oct 09, 2009 8:04 am

:D
Last edited by zap on Fri Oct 09, 2009 11:38 am, edited 1 time in total.
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Postby cheerleader » Fri Oct 09, 2009 8:20 am

Let's stay on topic...Kings College, blood flow, Dr. Smith....
cheer
Last edited by cheerleader on Fri Oct 09, 2009 8:34 am, edited 1 time in total.
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Postby Loobie » Fri Oct 09, 2009 8:25 am

You are so right. Remember Petakitty?
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Postby LR1234 » Fri Oct 09, 2009 8:33 am

Following on from Marie's comments. I think it is madness that we are not treated with meds to help with blood flow along with the steroids. I think once it is accepted that there is a vascular link to MS hopefully there will be a dual approach.
We also need to see combination trials of vascular/immune system.

L
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Postby fernando » Thu Oct 15, 2009 8:11 am

Thanks LR.
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Postby bluesky63 » Sun Oct 18, 2009 8:59 pm

Best wishes to everyone. :-)
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Postby cheerleader » Sun Oct 18, 2009 9:14 pm

Hi bluesky-
nitroglycerin is a vasodilator. It opens up the blood vessels-
Pharmacology: Nitroglycerin, in common with other nitrates, produces generalized vasodilation, thereby decreasing venous return and workload on the heart. Both arterial and venous dilation occur, although venous effects predominate.


makes sense in the CCSVI paradigm-your jugulars were given less of a load of blood to return to the heart, and were dilated. That would get rid of a headache from venous reflux-
cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Postby bluesky63 » Sun Oct 18, 2009 9:19 pm

Hi there! Yes, it all fits! At the time I asked the medical people why it made me feel better since I thought it would hold some sort of clue to either what was wrong or to how to help, but no one seemed particularly excited besides me.

Even my hands were warm for the first time in ages. :-)
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Postby whyRwehere » Mon Oct 19, 2009 1:44 am

I think you should go back to those people and tell them what you know now. That might get some of them thinking.
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Postby bluesky63 » Mon Oct 19, 2009 1:54 pm

I'm keeping the local neuro people informed here. I have always been much more interested in understanding the "why," not just in treatment, so this will get reported back too!
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Postby Daisy3 » Mon Feb 14, 2011 6:44 am

Anybody know what happened with this study?

Did Prof Smith make contact?
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Postby Perky » Mon Feb 14, 2011 7:58 am

Does anyone else have the urge to get hold of some poppers to sniff and see what happens? :?
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Postby Daisy3 » Mon Feb 14, 2011 8:47 am

lol..lol.

Yes, i do!!! But i don't have MS,my husband does, and he is a very sensible sort who won't do that..lol
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Postby elliberato » Mon Feb 14, 2011 11:11 am

I have been munching Viagra like m & m's but cant honestly say any of my symptoms improved? well maybe one! but thats it! Still numb hands, jumping eyes, etc..
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