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Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

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chrishasms
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PostPosted: Fri Oct 09, 2009 8:01 am 
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Last edited by chrishasms on Sat Dec 05, 2009 5:50 pm, edited 1 time in total.

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zap
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:D


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cheerleader
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PostPosted: Fri Oct 09, 2009 8:20 am 
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Let's stay on topic...Kings College, blood flow, Dr. Smith....
cheer

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Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS


Last edited by cheerleader on Fri Oct 09, 2009 8:34 am, edited 1 time in total.

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Loobie
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PostPosted: Fri Oct 09, 2009 8:25 am 
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You are so right. Remember Petakitty?

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LR1234
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PostPosted: Fri Oct 09, 2009 8:33 am 
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Following on from Marie's comments. I think it is madness that we are not treated with meds to help with blood flow along with the steroids. I think once it is accepted that there is a vascular link to MS hopefully there will be a dual approach.
We also need to see combination trials of vascular/immune system.

L
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fernando
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PostPosted: Thu Oct 15, 2009 8:11 am 
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Thanks LR.
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bluesky63
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PostPosted: Sun Oct 18, 2009 8:59 pm 
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Best wishes to everyone. :-)


Last edited by bluesky63 on Sat Feb 06, 2010 10:02 am, edited 1 time in total.

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cheerleader
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PostPosted: Sun Oct 18, 2009 9:14 pm 
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Hi bluesky-
nitroglycerin is a vasodilator. It opens up the blood vessels-
Quote:
Pharmacology: Nitroglycerin, in common with other nitrates, produces generalized vasodilation, thereby decreasing venous return and workload on the heart. Both arterial and venous dilation occur, although venous effects predominate.


makes sense in the CCSVI paradigm-your jugulars were given less of a load of blood to return to the heart, and were dilated. That would get rid of a headache from venous reflux-
cheer

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Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS


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bluesky63
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PostPosted: Sun Oct 18, 2009 9:19 pm 
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Hi there! Yes, it all fits! At the time I asked the medical people why it made me feel better since I thought it would hold some sort of clue to either what was wrong or to how to help, but no one seemed particularly excited besides me.

Even my hands were warm for the first time in ages. :-)
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whyRwehere
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PostPosted: Mon Oct 19, 2009 1:44 am 
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I think you should go back to those people and tell them what you know now. That might get some of them thinking.
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bluesky63
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I'm keeping the local neuro people informed here. I have always been much more interested in understanding the "why," not just in treatment, so this will get reported back too!
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Daisy3
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PostPosted: Mon Feb 14, 2011 6:44 am 
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Anybody know what happened with this study?

Did Prof Smith make contact?
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Perky
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PostPosted: Mon Feb 14, 2011 7:58 am 
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Does anyone else have the urge to get hold of some poppers to sniff and see what happens? :?
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Daisy3
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lol..lol.

Yes, i do!!! But i don't have MS,my husband does, and he is a very sensible sort who won't do that..lol
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elliberato
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I have been munching Viagra like m & m's but cant honestly say any of my symptoms improved? well maybe one! but thats it! Still numb hands, jumping eyes, etc..
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Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

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