CCSVI Surgery & MS Constipation question

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Yay!

Postby Boopieup » Fri Oct 30, 2009 1:23 pm

mrhodes40,
Good for you that things are starting to get back to normal.

Do you attribute things getting back to normal to the CCSVI procedure alone?

It is amazing that the medical profession that I've come across thinks that constipation=impaction at the doorway. Not so in my case that's for sure.

Maybe eating jalapenos would do the trick or make me poop fire. Ah, a new meaning to the phrase "fire in the hole".

Holy bats%^*, Robin!



As you can tell I'm feeling better today after a healthy dump. Oh we start to appreciate the little things in life once they are taken away,
DX w/ RRMS 2004. Self DX PPMS. I don't sit here feeling sorry for myself; I just sit here. View my Blog--history and current events in my life at
http://boopieupsmsjourney.blogspot.com/
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Postby Sharon » Fri Oct 30, 2009 2:01 pm

I do not have any problem with constipation - use to when I was working a desk job. I think things started changing when I retired and I was able to start being more active with a good exercise routine which includes Pilates and strength training.
Here is a link to constipation and yoga. It is the twisting form which stimulates your bowels.
http://tinyurl.com/ykvuvjx
Go to "How to Cure Constipation with Yoga"

Try it - could help. You can do the twisting form sitting in your bed if it is hard for you to get up from the floor.

Sharon
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Postby Ruthless67 » Thu Nov 05, 2009 10:15 pm

Sharon,
I looked at the yoga exercises and my Osteopath has me doing the 2nd exercise already and a different one lying down to twist me. I will add the #1 sitting stretch/twist to my morning exercises. Thanks for that link.

Boopieup,
I thought I was alone out there, but now I find there are others with bowel issues. Over the last few years, I was having greater difficulty eliminating the poop. I was not constipated, but like you said, “soft serve (for lack of a better term”, but I wouldn’t go for 3 or 4 days at a time. And sometimes I knew I needed to go, but, I could never MAKE myself go, the shit came when IT damn well wanted to! And heaven help me if I wasn’t where a bathroom was available because it had begun to be very painful to eliminate as well as my having to have a yin & yang argument with the sphincter muscle every time, but when I couldn’t go shit the first time when IT wanted me to, the second time was much more painful. I had to bear down so hard I thought I’d bust blood veins in my head and all the time fighting with my sphincter muscle to just let go and open the damn door!!!
I’ve never had to lay down after an experience like that, but they are definitely no picnic. I will say I sure do feel better after all that crap is out of me and my jeans fit more comfortably too, lol.
I started on a candida cleansing diet 2 years ago and just this last year I have virtually eliminated sugars & alcohol from my diet. I have noticed in the last 3 months that it’s usually 1 to 3 days between movements now and sometimes my movements are not as painful. I still can’t choose the time to make it happen, nor can I coax or push the shit out, but when I do go shit it is sometimes not painful and I’m not having to bear down as often.
I’m inclined to think that the way I’m eating now and the fact that I cleared up my candida overgrowth have something to do with the improvements in the performance of my bowels. I can give links or information to anyone who is interested. It’s a hard diet to stick with, so it is hard to recommend to others, but I feel better overall and in a few other ways, and the bowels were a “biggie”.
I also have an overactive bladder and have to wear a “just-in-case” pad. I strategically plan my route when I drive into town to do errands. I’m sure a couple of you will relate. I’ve gotten pretty good at keeping the “pee dance” at bay by planning ahead. I’m thinking the urgency issue is a little better, though I’m definitely not in complete control there either.
Ah the joys, lol
Just had to add my 3 cents……….
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Postby catfreak » Thu Nov 05, 2009 10:38 pm

Ruth,

I nearly pee'd myself reading your post!! LMAO!!

Cat
Holly - Shine On You Crazy Diamond - Pink Floyd

9/3/09 Stanford - Dr Dake - Stent in R-J to unblock Arachnoid Cyst in Sigmoid Sinus. Stent in narrowed L-J. Balloon in narrowing where R & L Jugulars meet.
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Postby Loobie » Fri Nov 06, 2009 5:54 am

Boy that's me right there. It's staged and ready and just behind Door #1 but that smooth muscle just won't relax! As far as the pee thing, I wear those just in case pads, but I have become an expert (I'm a guy of course) at stealth peeing. I can be in the parking lot of the grocery store and be just behind my open door and act like I'm looking for something in the car or in the map pocket! I have peed in crowds of people with my buddies making a ring around me, I've probably been close to getting busted for indecent exposure more times than I can count! But hey, I've yet to have a full on public accident, but lord has it been close!

I'll telll you Ruthless, establishing a set time everyday where I just drop 'trou and sit down regardless of whether there's an urge or not I believe has sort of 'trained' my bowels. Read up on making a bowel routine. It really helped me to get in the groove of doing it at the same time, whether it happens every day or not.
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Postby wonky1 » Fri Nov 06, 2009 6:29 am

I have some shitty tales to tell.
Constipation was a big problem, I used to go several days, then all of a sudden I would pass one as thick as your arm. This caused tearing and I would regularly block the u bend, especially if I was out somewhere. This caused maximum embarrassment.
I now use regucol, which is psylum husk and bacteria.
This has stopped me being constipated and I can time my going much better.

I also had an irritable and retentative bladder. I have had a botox treatment on it and although I now have to use an intermittent catheter as a result, life is much easier.
I'm going to be having the liberation procedure in December with Dr Simka. Can anyone who has had it done tell me if there is an improvement down below? Loobie, how has it affected you?
Thanks
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Postby Loobie » Fri Nov 06, 2009 8:33 am

That is the one area where I really have seen no change. I say that now remembering that I was peeing the bed alot at night before the procedure, despite pre bed cathing, and I'm not now, so maybe there was a little uptick in that department. However, I still only void about 200 ml per pee and leave about 250 behind, and that's not changed. I'm also still chronically constipated, but I also know that since my accessory nerve got banged so bad, that my vagas nerve did also, and that could be masking any improvement in the bowel arena.
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As the poop continues

Postby Boopieup » Fri Nov 06, 2009 11:14 pm

Wow. I’m not the only one in the shit boat.

I was always a bit too bashful to talk about it until now.

A few years ago, when I was still walking and after diagnosis of MS, I had a major blowout. It was one of those loafs that was at the door but wouldn’t/couldn’t get out. It was so big and painful that it was like eventually passing a brick and tore things up on the way out. I had to work on that one and didn’t have something at the door that big before or since. The tears healed eventually, but I had a very sore asshole for at least a week.
Now here’s something weird. I have "soft serve" every 7 or 10 days when my system decides it’s tired of hanging onto it. I do go 3 times per week when I take vitamin D3 2000IU. The poops are heavy pony poops/road apples. Go figure on that one. It happens every time. At least the pony is poopin’ …whew!

My mom was here the other day and I took yet another healthy dump just for her…not that I had the choice. She marveled at the circumference of it (she emptied the potty chair) and asked “does that hurt”? My response. Uh. No. I continued to tell her about the blowout from the past. So when I do let go of the pony poops it will plug a regular toilet. Thankfully, we just got a special ADA toilet with a 4” trap. So far it flushes everything.

As far as the yoga goes---I do some twisting in bed (that’s where I am all day anyway), but have to be careful not to fall off the bed.

So that’s my poop tale for the day.

P.S. Because I think it is better to laugh than cry, I was thinking of creating a club named the Non-Crappers Club or the Constipation Club (anal retentive individuals welcome too).
DX w/ RRMS 2004. Self DX PPMS. I don't sit here feeling sorry for myself; I just sit here. View my Blog--history and current events in my life at
http://boopieupsmsjourney.blogspot.com/
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Postby Ruthless67 » Fri Nov 06, 2009 11:25 pm

:lol: :P :) :D :lol: :P If we couldn't laugh at ourselves, we'd be an awful sorry lot, lol :P :o :lol: :roll: :) :D
I'm so glad I found you guys, I think I'm finally home....... :lol:
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Dr. Mehmet Oz on constipation

Postby lyndacarol » Mon Nov 16, 2009 6:51 pm

Today I watched Dr. Mehmet Oz on his TV program.

To an audience member's question about constipation (she said she had a bowel movement only about once per week), he suggested that she try about two shot glasses of aloe vera juice in a glass of orange juice to correct the problem.

I have not tried this drink, I cannot recommend it, I am only passing along what I saw on TV.
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