I have plenty. I was still going to the occasional soccer game. However, I would have my wife pull up as close as she could get to the field, hop out with my chair, and go sit until the game was over; in a diaper even though I had cathed right before I went. That one I wrote about was significant because not only did I stand and watch the game, but I didn't cath before the game, didn't wear a diaper and walked to the bathroom twice during the game and was still able to drive home. That much walking would have required at least a 1/2 hour of serious down time before my dizziness would have allowed me to drive.
I am a 4.5 on the EDSS. I'm still ambulatory, meaning I can walk by myself, but it hasn't been very far. I could walk from my car to my office. From my office to the bathroom and stuff like that pretty normally. Any more than that and I would start to stumble and limp pretty badly and actually get to the point where I just simply had to stop. Also, bladder (2 things; over active and sphincter/bladder muscle dissynergy), bowels, optic neuritis, very bad dizziness, balance, cognitive issues, constant pain in my lower legs, disorgasmia, mild ED, headaches. That's all I can think of now. Pretty much the full monte except I'm still on my feet. I have put my cane away for now and haven't had it out since the surgery (a little during recovery, but just to make sure I didn't go down).
So I had piled up quite a list and it was getting tough to manage all of that and still try and live a life not 100% taken over by management of my disease. I was literally getting home from work and not moving. I would plop on the couch and have everything brought to me (including a urinal) because mine is like that. The function I do have doesn't last all day. Since the surgery, and in a vacuum of exercise due to my shoulder, I have gained enough endurance to function at home after work. Not normally, but enough to not be consumed by pain, and enough to allow me to move about the house and interact with my family. I ain't cured by any stretch and don't know that some of this disability I've had for 8 years will ever go away. I don't really know that any of it will fully abate. I just want to stop progressing and try and exercise to a sweat again. That's my goal. Things like bowel function and stuff like that work SOOOO much better when you can work out to a sweat.
Damn glad I did it, but upset that my shoulder is all screwed up and I can't start working out hard yet. I'm walking about a 1/4 mile now for my exercise, and that just isn't enough to make me sweat, so I'm not there yet! Might not get there, but that's why I did all of this. So I could have a choice in what I do or don't do. Right now it's just so extremely limited.
Hope I answered, now let's give this thread back to Boopie's ? about the incision site!