As you may know, our forum is followed by many people who never post but who read our materials with interest.
It may surprise some to discover that some of these people are interested physicians.
One of these people has contacted me and suggested that our tracking project would be more valuable if we used the MSIS-29 instead of the EDSS. This person also suggested that we include the Fatigue Severity Scale (FSS).
These are good suggestions for this reason. First the EDSS is heavily weighted toward ambulation, a symptom that once impacted is unlikely to change because it likely represents permanent nerve loss. Persons using a cane are likely to keep using a cane thus not change EDSS. However the MSIS is more quality of life centric, it has questions related to issues like going to the toilet urgently or sleeping as part of its questionnaire.
Second the Fatigue scale should show the dramatic differences people are seeing in their fatigue levels where this is invisible with the EDSS.
I have found a resource where we could have access to this for our purpose
The MSIS is at the END in the appendix.
the FSS is here
Shall we adjust to accomodate this request?
Can someone host these somehow in the thread so we have a resource right here on TIMS to look these up?
I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
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