Why not list CCSVI on Patients Like Me as a treatment?

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Why not list CCSVI on Patients Like Me as a treatment?

Postby Sarahbellum » Mon Oct 12, 2009 6:17 am

There are some posts about CCSVI but no members report this as a treatment.

Is there a specific reason why CCSVIers are not using that site to report? I find it a helpful site.
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Postby chrishasms » Mon Oct 12, 2009 8:05 am

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Last edited by chrishasms on Sat Dec 05, 2009 5:51 pm, edited 1 time in total.
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CCSVI as treatment

Postby GiCi » Mon Oct 12, 2009 9:19 am

CCSVI is an anatomical and physiological condition and cannot therefore be defined as a treatment. The treatment of CCSVI consists of dilatation of the strictures in the jugular veins or of the placement of stents to keep the veins open.
At the present the treatment of CCSVI cannot be called treatment of MS because the relationship between CCVI and MS, as a relationship of cause and effect, has not been proven.
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Re: CCSVI as treatment

Postby mose » Mon Oct 12, 2009 9:49 am

GiCi wrote:CCSVI is an anatomical and physiological condition and cannot therefore be defined as a treatment. The treatment of CCSVI consists of dilatation of the strictures in the jugular veins or of the placement of stents to keep the veins open.
At the present the treatment of CCSVI cannot be called treatment of MS because the relationship between CCVI and MS, as a relationship of cause and effect, has not been proven.
GiCi


beautifully put.
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Postby mormiles » Mon Oct 12, 2009 9:53 am

I believe Marie is reporting her CCSVI treatment in that forum. However, Marie's case is complicated by other factors and shouldn't be viewed as a typical representation of the treatment and recovery. Sorry, unless others start posting in the treatment forum, this forum is the best place to track CCSVI treatment. Others may feel as I do---that passage of time will hopefully give them more confidence in posting about it a little bit further afield.
Joyce (aka cypriane)~caregiver and advocate in Dallas for Steve (SPMS)----"Enter through the narrowgate..."
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Postby sou » Mon Oct 12, 2009 11:47 am

Hi.

Whatever the relationship, since CCSVI is present years before MS it can't be a result of it. How can restoring the blood flow to normal be harmful?

sou
Shortest joke: "We may not be able to cure MS but we can manage its symptoms."
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Postby Sharon » Mon Oct 12, 2009 1:15 pm

Sarabellum -

Is there a specific reason why CCSVIers are not using that site to report? I find it a helpful site.


TIME is my answer. I am on the site, but I do not follow it anymore. I choose to get away from the computer and do other things.

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