Neck problems, tension shoulders, etc and CCSVI

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Neck problems, tension shoulders, etc and CCSVI

Postby Ernst » Mon Oct 12, 2009 11:52 am

I don't know if this has been disgussed here, but in Finnish forum there was some talking about neck problems, feeling of pressure in head, tension in neck/shoulder area -- and CCSVI? Is there any connection between these?
Looks like these pressure feelings in head and tension neck are quite common in MS?

- Ernst, who just massaged wife's neck :wink:
My wife's 3 yrs post video: http://www.youtube.com/watch?v=eLeqLps8XR8

Our family: http://www.youtube.com/watch?v=p_QCKxeQAlg
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Postby CRHInv » Mon Oct 12, 2009 12:10 pm

Good question Ernst. I have this issue too. What do you guys think?
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Postby Ernst » Mon Oct 12, 2009 12:51 pm

This "feeling pressure in head" was one thing that people were wondering - and some have though that could CCSVI cause this pressure feeling? Well, just a though.
My wife's 3 yrs post video: http://www.youtube.com/watch?v=eLeqLps8XR8

Our family: http://www.youtube.com/watch?v=p_QCKxeQAlg
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Postby Loobie » Mon Oct 12, 2009 1:36 pm

I've gotten great relief from the pressure headaches from the surgery; for real. However, now I have headaches related to my spinal accessory nerve being dinged up. But it is nice to know I won't have a constant headache once my shoulder comes back (fingers crossed).
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Postby CNClear » Mon Oct 12, 2009 3:31 pm

I have the same problem with the pressure, tension in my neck and shoulders...the tension got so bad that my head started pulling and 'sticking' on the left side and my neuro had to shoot a whole bunch of botox in there to get the spasms to stop...it affected my taste buds somehow for a couple of days, because i couldn't taste sweet and other things tasted off, too...after that the tugging stopped but the tension is still bad, just not as bad...I'm hoping that after I see Dr. Dake, that will be a non issue, too...

Lisa aka, CNClear
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Postby skydog » Mon Oct 12, 2009 8:46 pm

I have been having major neck pain and stiffness for the last several weeks. Sleeping with a neck pillow helps some. I have started to wear the neck brace. So far it feels like it will help. Time will tell as it is just day one with this collar/brace. I know I will be getting the what ya do to your neck ?'s but plan on giving it a go for awhile. Cheers, Mark
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Postby lobra » Tue Oct 13, 2009 5:17 am

Hi,

I remember the time before my wife`s ms was diagnosed. She suffered from heavy shoulder pain of the right side, and there were no tender points or other typical shoulder problems. So we were not able to find a useful therapy for it.
Knowing about CCSVI explains the problem... years later. The ms symptoms in general are much easier to understand now, and it gives hope that the (future) intervention will help.

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Postby sou » Tue Oct 13, 2009 12:19 pm

Hi.

The left side of my neck very often becomes stiff and painful. The pain extends to the head and is not relieved by ibuprofen. When the pain is very strong and lasts for days, it is a sign of an upcoming relapse for me.

sou
Shortest joke: "We may not be able to cure MS but we can manage its symptoms."
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Postby sewwhat » Tue Oct 13, 2009 4:55 pm

I get this pain also.
Its usually the left side shoulder and up into the neck that gets tight and very painful. Sometimes it gets to the point where there is also pressure at the top of my head (yesterday & today as a matter of fact) to where I can't bend forward or it feels like the top of my head is going to explode with pressure.

I do a lot of stretching exercises that helps ease the shoulder. It doesn't take it away but helps a bit. The head pressure will sometimes ease up if I can get my neck to adjust/pop.
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Postby HappyPoet » Tue Oct 13, 2009 5:07 pm

My problem isn't dystonia of the neck.

My problem is painful waves of spasticity that start at my shoulders squeezing them, go up my neck strangling it, and finish at the top of my head crushing it.

A trigger is any kind of shoulder, neck or face pain, so I'm beginning to realize I might not be a good candidate for stenting due to the pain people are describing.

~HappyPoet
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Head pain/pressure my main symptom !!!!

Postby ozarkcanoer » Fri Oct 16, 2009 5:04 pm

This is my first time on This is MS !!!!! I was dxed RRMS in Jan 2008 and am on Copaxone. I have NO symptoms below my neck. But I have terrible fatigue and headaches and feelings of pressure on the top and sides of my head plus I feel VERY STRONGLY the blood pulsing in my head. My husband gives me neck massages to relieve the pain and pressure. I have a great MS neuro, but I am now seeing a psychiatrist because I thought I was nuts with all these distressing symptoms. I have been so excited ever since I discovered CCSVI on an MSWORLD forum. All I do all day is look at all the CCSVI information that I can find on the web. Thank you all for keeping us informed. I am actually hopeful for the first time since way before my diagnosis. I am NOT crazy... I may just have stenosis in my jugular veins !!!!!!! YAY !!!!!
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neck and shoulder pain

Postby GiCi » Sat Oct 17, 2009 4:43 am

I just want to offer a consideration regarding spasticity of neck and shoulders.
Many MS patients have weakness of the lower limbs. During deambulation the muscles of the back and neck are under stress in the attempt to help lifting the legs from the floor and they ache.
Being conscious of this mechanism may help by trying to keep the back and neck as relaxed as possible while walking.
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Re: Head pain/pressure my main symptom !!!!

Postby Loobie » Sat Oct 17, 2009 9:23 am

ozarkcanoer wrote:This is my first time on This is MS !!!!! I was dxed RRMS in Jan 2008 and am on Copaxone. I have NO symptoms below my neck. But I have terrible fatigue and headaches and feelings of pressure on the top and sides of my head plus I feel VERY STRONGLY the blood pulsing in my head. My husband gives me neck massages to relieve the pain and pressure. I have a great MS neuro, but I am now seeing a psychiatrist because I thought I was nuts with all these distressing symptoms. I have been so excited ever since I discovered CCSVI on an MSWORLD forum. All I do all day is look at all the CCSVI information that I can find on the web. Thank you all for keeping us informed. I am actually hopeful for the first time since way before my diagnosis. I am NOT crazy... I may just have stenosis in my jugular veins !!!!!!! YAY !!!!!


Man, you sound like a good candidate to get this post haste. I was telling my wife this morning, as she was looking for the Aleve to get rid of HER pressure headache, that I don't wake up all congested and with a pressure headache anymore. She said she was jealous, and then she went and peed like niagra falls and then if was my turn to be jealous :lol: :lol:
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