My Turn!

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby catfreak » Tue Oct 13, 2009 7:00 pm

Woo Hoo Magoo!!!!

Way to go!! I will be praying for you and your trip, testing procedure, ect...

Cat
Holly - Shine On You Crazy Diamond - Pink Floyd

9/3/09 Stanford - Dr Dake - Stent in R-J to unblock Arachnoid Cyst in Sigmoid Sinus. Stent in narrowed L-J. Balloon in narrowing where R & L Jugulars meet.
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Postby Shannon » Wed Oct 14, 2009 4:03 am

Magoo and Rose - Best wishes for your upcoming procedures (hopefully)! I am still awaiting the call from Alex with approval from my Ins.. Can't wait to hear more. Goodluck!
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Postby Needled » Wed Oct 14, 2009 4:23 am

Good luck to both of you -- very, very exciting. :D
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Postby Sharon » Wed Oct 14, 2009 6:48 am

Rose and Magoo - good luck to both of you as you start the CCSVI journey. No need to worry about the staff at Stanford -- they are incredible --- they will take care of you.
Do you have your GP's on board for when you get home? Remember you need someone for the INR testing.
Keep us updated - are either one of you taking a laptop?
Sharon
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Postby mormiles » Wed Oct 14, 2009 9:30 am

Dear Rhonda and Rose, I don't believe in luck, so you'll have my prayers. Please be aware that there will be some distances involved between appointments in different buildings. If both of you have good mobility, it shouldn't be a problem---there will be plenty of time in between each one. God bless you both.
Joyce (aka cypriane)~caregiver and advocate in Dallas for Steve (SPMS)----"Enter through the narrowgate..."
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Postby magoo » Wed Oct 14, 2009 11:24 am

Rose, are you ready??!! Here we GO!
Early to bed for me so I can get up for an early flight. I have my worst symptoms when I wake up, boy do I hope that improves! I have all my stuff packed and I will be spending tonight hugging my boys like crazy!!!
Thanks for the support and wishes, they mean a LOT!
I'll update as I go. I won't have any results until Monday morning when I have my consult with Dr. Dake. I will be trying to squeeze some info out of the techs on Friday though. Wish me luck :) Surgery is scheduled at 2:00 on Monday.
Thanks to everyone here. You all have made this possible for me. I feel so prepared thanks to everyone answering all of my questions and providing their experiences.
Okay...here I go!!!!!!
Rhonda~
Treated by Dake 10/19/09, McGuckin 4/25/11 and 3/9/12- blockages in both IJVs, azy, L-iliac, L-renal veins. CCSVI changed my life and disease.
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Postby mrhodes40 » Wed Oct 14, 2009 4:25 pm

YAY RHONDA and ROSE!!! sleep well and have a great trip...
I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics
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Postby CRHInv » Wed Oct 14, 2009 4:27 pm

Rhonda, I am thinking of you!
Rose, Are you going to start a separate thread?
Take care,
Beth
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Postby Jamie » Wed Oct 14, 2009 5:44 pm

To paraphrase Mormiles ..... I don't believe in prayer so I wish you luck!!!

( I am aware of the philosophical contradiction there by the way! )

Anyway, I hope its everything you hope for and that your recovery is swift.
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New Thread?

Postby Rose2 » Thu Oct 15, 2009 6:43 am

Jamie, thank you for all positive thoughts, energy, everything.
CRHInv: Sure, I will start a new thread if you think it could help.
I am a little intimidated about how informed all of you are, however, but most happy to share my experiences.
Rose
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Postby Sharon » Thu Oct 15, 2009 6:58 am

Rose -
I am a little intimidated about how informed all of you are, however, but most happy to share my experiences


We learn from each other - do not feel intimadated - we will learn from you.

Sharon
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Thank You

Postby Rose2 » Thu Oct 15, 2009 7:05 am

Thank you.
I will start a thread for my upcoming testing and procedure with Dr. Dake.
Rose
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Postby gibbledygook » Thu Oct 15, 2009 7:19 am

Good luck!
3 years antibiotics, 06/09 bilateral jug stents at C1, 05/11 ballooning of both jug valves, 07/12 stenting of renal vein, azygos & jug valve ballooning,
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thank you

Postby Rose2 » Thu Oct 15, 2009 7:37 am

thank you very much.
Rose
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FRiday is here!!

Postby Rose2 » Thu Oct 15, 2009 7:05 pm

Magoo!
I am sure you are here in the Stanford area. I hope your flight went well and you are resting.
I have been holding you in my thoughts all day! Can't wait for you to get to your testing tomorrow.!!
Right behind you!
Rose.
ps. sorry if Magoo has posted somewhere else today and I didn't see it.
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