My Turn!
My Turn!
I leave first thing Thursday morning. Testing scheduled for Friday 10/16. Consult and procedure scheduled for Monday 10/19. I do have to admit a case of nerves has hit me. I think it has more to do with leaving my family and traveling alone, than with the treatment. I wanted to post now because I'll be tying up a million loose ends tomorrow. I'll post my journey. Wish me luck!
Rhonda~
Treated by Dake 10/19/09, McGuckin 4/25/11 and 3/9/12- blockages in both IJVs, azy, L-iliac, L-renal veins. CCSVI changed my life and disease.
Treated by Dake 10/19/09, McGuckin 4/25/11 and 3/9/12- blockages in both IJVs, azy, L-iliac, L-renal veins. CCSVI changed my life and disease.
Go Magoo!
You Go Girl! I am right behind you, Mon/Tues 19/20.
I am more nervous that there won't be anything found on the MRV/MRIs.
wierd, huh?
Best to you. I know your support team will keep it all together while you are gone, so try to relax!
Rose
I am more nervous that there won't be anything found on the MRV/MRIs.
wierd, huh?
Best to you. I know your support team will keep it all together while you are gone, so try to relax!
Rose
Rose,
Believe me, I am worried about that too! How strange it is to think, there better be something wrong! I hope we get a chance to meet Best of luck to you too!!!! Thanks :):)
Believe me, I am worried about that too! How strange it is to think, there better be something wrong! I hope we get a chance to meet Best of luck to you too!!!! Thanks :):)
Rhonda~
Treated by Dake 10/19/09, McGuckin 4/25/11 and 3/9/12- blockages in both IJVs, azy, L-iliac, L-renal veins. CCSVI changed my life and disease.
Treated by Dake 10/19/09, McGuckin 4/25/11 and 3/9/12- blockages in both IJVs, azy, L-iliac, L-renal veins. CCSVI changed my life and disease.
((hUGS))
Back at you, Magoo with ((Hugs)).
Rose
Rose
Jay123
Jay,
Having been a patient at Stanford and my husband also for more than I want to list, you are never alone! Ever!
They are the best and make you feel like royalty (which does end when you come home), but trust that you will receive good care.
I do know what you mean, because we have all had to sit with loved ones in some facilities to make sure they get their ice chips, etc. but I have never found that to be the case at Stanford.
They will make sure you are cared for.
ALL of our experiences anyway. Rose
Having been a patient at Stanford and my husband also for more than I want to list, you are never alone! Ever!
They are the best and make you feel like royalty (which does end when you come home), but trust that you will receive good care.
I do know what you mean, because we have all had to sit with loved ones in some facilities to make sure they get their ice chips, etc. but I have never found that to be the case at Stanford.
They will make sure you are cared for.
ALL of our experiences anyway. Rose
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Good luck to both of you, Rose and Rhonda...
what a quick turnaround!
Jeff flew up for his stent procedure and 2 month ballooning by himself. He's also only a 1 on EDSS scale and gets around fine, and he felt better going in on his own than having me sitting in the waiting room, worried I stayed home with our son.
Everyone is different- but for him, he felt attended to at Stanford and it was empowering for him to do something so proactive for MS-
Five months later, he's still glad he did!
best,
cheer
what a quick turnaround!
Jeff flew up for his stent procedure and 2 month ballooning by himself. He's also only a 1 on EDSS scale and gets around fine, and he felt better going in on his own than having me sitting in the waiting room, worried I stayed home with our son.
Everyone is different- but for him, he felt attended to at Stanford and it was empowering for him to do something so proactive for MS-
Five months later, he's still glad he did!
best,
cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
Don't worry, my Mom is going to be with me!!!! She still lives in CA, which is where I am from. And I have friends who will visit and take care of me. My Mom has taken tons of time off and I will stay with her until the following Saturday. Then I will fly back home.
I AM glad to hear about the people at Stanford being so wonderful. I have such anxiety around doctors. Lots of bad experiences with stupid ones! LOL!
I AM glad to hear about the people at Stanford being so wonderful. I have such anxiety around doctors. Lots of bad experiences with stupid ones! LOL!
Rhonda~
Treated by Dake 10/19/09, McGuckin 4/25/11 and 3/9/12- blockages in both IJVs, azy, L-iliac, L-renal veins. CCSVI changed my life and disease.
Treated by Dake 10/19/09, McGuckin 4/25/11 and 3/9/12- blockages in both IJVs, azy, L-iliac, L-renal veins. CCSVI changed my life and disease.
Good, I'm glad you have people there.
My thoughts on having someone with you weren't for the time at the hospital, but more the time of traveling from the hospital, to hotel, airport, etc. after the operation. I have been planning all along that my wife will come with me to assist. Being on a limited budget I would rather have her go with me for the followup appt and maybe spend a couple of extra days.
BUT, knowing her she won't let me go alone for either appointment! She doesn't even trust me going to my regular appts alone, she thinks for some reason I have selective memory of what the doc says...imagine that.
She really wants to go to my next appt where we discuss my Stanford plans which I don't think my doc will be enthusiastic about.... plus my stopping tysabri because it doesn't seem to be slowing me down...
My thoughts on having someone with you weren't for the time at the hospital, but more the time of traveling from the hospital, to hotel, airport, etc. after the operation. I have been planning all along that my wife will come with me to assist. Being on a limited budget I would rather have her go with me for the followup appt and maybe spend a couple of extra days.
BUT, knowing her she won't let me go alone for either appointment! She doesn't even trust me going to my regular appts alone, she thinks for some reason I have selective memory of what the doc says...imagine that.
She really wants to go to my next appt where we discuss my Stanford plans which I don't think my doc will be enthusiastic about.... plus my stopping tysabri because it doesn't seem to be slowing me down...
THANK YOU
Thank you all for your support, prayers and thoughts as we all go thru this together.!
Rose
Rose