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Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

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GiCi
PostPosted: Wed Oct 14, 2009 11:30 am 
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I am back home following venogram and bilateral balloon dilatation of the jugular veins at 2 pm.
I feel well, my back is less stiff, my movements are quicker and my right leg feels already more powerful.
I am not on any blood thinners.
The procedure was carried out at the Royal Victoria Hospital in Belfast by the radiologist Dr Anton Collins while I was under the care of the vascular surgeon Mr Robin Baker.
All the team were extremely excited and believe in Zamboni's theory.
I sincerely hope that today represented a breakthrough and that many patients will benefit in Northern Ireland. The ice has been broken: I look forward to a bright future for MS sufferers.
Thank you all for the good wishes,
GiCi
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ErikaSlovakia
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PostPosted: Wed Oct 14, 2009 11:40 am 
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Location: Slovakia, Europe
Dear GiCi, I am so happy for you!
Excellent!
Erika

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Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
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Ernst
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PostPosted: Wed Oct 14, 2009 11:47 am 
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Dear Sir,

Wonderful news, just wonderful. I think this is very important happening, one big step forward with CCSVI. Very happy for you and always reading your wise comments with big interest.

Ernst, From Finland
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bestadmom
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PostPosted: Wed Oct 14, 2009 11:52 am 
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Gici,

I am so happy for you and am excited by your immediate improvements. Thank you for blazing the trail!

Michelle
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Needled
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PostPosted: Wed Oct 14, 2009 11:54 am 
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Gici, That's all great news. I'm glad it went well and you're feeling the benefits so quickly. I hope you continue to improve. Just amazing! :D
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Arcee
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PostPosted: Wed Oct 14, 2009 12:23 pm 
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GiCi, congratulations! How exciting for you, and how encouraging for folks in Northern Ireland and all around the globe. So glad you can share the information. Take care of yourself and enjoy the positive changes.

_________________
diagnosed RR in spring '04
1 stent placed in left jugular vein 7/15/09
on and off Copaxone
allergric to interferons and Tysabri
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Holz
 Post subject: Wee done
PostPosted: Wed Oct 14, 2009 12:29 pm 
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Location: Belfast northern ireland
Well done dad!!! So proud of you :) love you xxx
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Rokkit
 Post subject: Re: Wee done
PostPosted: Wed Oct 14, 2009 12:44 pm 
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Holz wrote:
Well done dad!!! So proud of you :) love you xxx


Now that's a cool post.

Congrats GiCi, for yourself, and for what you have started in the U.K.
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fernando
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PostPosted: Wed Oct 14, 2009 12:59 pm 
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Congratulations!

Forza GiCi!
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cheerleader
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PostPosted: Wed Oct 14, 2009 1:03 pm 
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Bravo, maestro!!!
Good work, GiCi. Now go enjoy your recovered zest and zeal!
salute,
cheer

_________________
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS


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radeck
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PostPosted: Wed Oct 14, 2009 1:58 pm 
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Fantastic news!
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Loobie
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PostPosted: Wed Oct 14, 2009 2:38 pm 
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Good work dude.

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http://myhopefuljourneyintoactualmsreco ... ogspot.com
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mrhodes40
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PostPosted: Wed Oct 14, 2009 4:08 pm 
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Gici, Congratulations on the successful procedure in Ireland, first Liberation outside of Italy! Wow, it is wonderful news for the entire world.

Thank you for being persistent and makeing this happen, and also for taking the time to share with us how you did it, we can all follow your example.

:D :D :D

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I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics


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gibbledygook
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PostPosted: Thu Oct 15, 2009 5:00 am 
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Location: London
Oh my goodness! This is FANTASTIC news. I hope that this procedure continue to benefit you and you recover well. Do you think other UK patients would be able to contact these doctors? Was the procedure on the NHS?!

best wishes for your speedy recovery

Alex

_________________
3 years antibiotics, 06/09 bilateral jug stents at C1, 05/11 ballooning of both jug valves, 07/12 stenting of renal vein, azygos & jug valve ballooning,
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LR1234
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PostPosted: Thu Oct 15, 2009 7:52 am 
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Hi Gici,
I am so pleased you had the procedure done in the UK!!!!
Thanks so much for opening the doors for us other UKer's

L x
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Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

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