First liberation procedure in UK

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

First liberation procedure in UK

Postby GiCi » Wed Oct 14, 2009 10:30 am

I am back home following venogram and bilateral balloon dilatation of the jugular veins at 2 pm.
I feel well, my back is less stiff, my movements are quicker and my right leg feels already more powerful.
I am not on any blood thinners.
The procedure was carried out at the Royal Victoria Hospital in Belfast by the radiologist Dr Anton Collins while I was under the care of the vascular surgeon Mr Robin Baker.
All the team were extremely excited and believe in Zamboni's theory.
I sincerely hope that today represented a breakthrough and that many patients will benefit in Northern Ireland. The ice has been broken: I look forward to a bright future for MS sufferers.
Thank you all for the good wishes,
GiCi
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Postby ErikaSlovakia » Wed Oct 14, 2009 10:40 am

Dear GiCi, I am so happy for you!
Excellent!
Erika
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
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Postby Ernst » Wed Oct 14, 2009 10:47 am

Dear Sir,

Wonderful news, just wonderful. I think this is very important happening, one big step forward with CCSVI. Very happy for you and always reading your wise comments with big interest.

Ernst, From Finland
My wife's 3 yrs post video: http://www.youtube.com/watch?v=eLeqLps8XR8

Our family: http://www.youtube.com/watch?v=p_QCKxeQAlg
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Postby bestadmom » Wed Oct 14, 2009 10:52 am

Gici,

I am so happy for you and am excited by your immediate improvements. Thank you for blazing the trail!

Michelle
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Postby Needled » Wed Oct 14, 2009 10:54 am

Gici, That's all great news. I'm glad it went well and you're feeling the benefits so quickly. I hope you continue to improve. Just amazing! :D
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Postby Arcee » Wed Oct 14, 2009 11:23 am

GiCi, congratulations! How exciting for you, and how encouraging for folks in Northern Ireland and all around the globe. So glad you can share the information. Take care of yourself and enjoy the positive changes.
diagnosed RR in spring '04
1 stent placed in left jugular vein 7/15/09
on and off Copaxone
allergric to interferons and Tysabri
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Wee done

Postby Holz » Wed Oct 14, 2009 11:29 am

Well done dad!!! So proud of you :) love you xxx
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Re: Wee done

Postby Rokkit » Wed Oct 14, 2009 11:44 am

Holz wrote:Well done dad!!! So proud of you :) love you xxx


Now that's a cool post.

Congrats GiCi, for yourself, and for what you have started in the U.K.
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Postby fernando » Wed Oct 14, 2009 11:59 am

Congratulations!

Forza GiCi!
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Postby cheerleader » Wed Oct 14, 2009 12:03 pm

Bravo, maestro!!!
Good work, GiCi. Now go enjoy your recovered zest and zeal!
salute,
cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Postby radeck » Wed Oct 14, 2009 12:58 pm

Fantastic news!
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Postby Loobie » Wed Oct 14, 2009 1:38 pm

Good work dude.
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Postby mrhodes40 » Wed Oct 14, 2009 3:08 pm

Gici, Congratulations on the successful procedure in Ireland, first Liberation outside of Italy! Wow, it is wonderful news for the entire world.

Thank you for being persistent and makeing this happen, and also for taking the time to share with us how you did it, we can all follow your example.

:D :D :D
I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics
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Postby gibbledygook » Thu Oct 15, 2009 4:00 am

Oh my goodness! This is FANTASTIC news. I hope that this procedure continue to benefit you and you recover well. Do you think other UK patients would be able to contact these doctors? Was the procedure on the NHS?!

best wishes for your speedy recovery

Alex
3 years antibiotics, 06/09 bilateral jug stents at C1, 05/11 ballooning of both jug valves, 07/12 stenting of renal vein, azygos & jug valve ballooning,
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Postby LR1234 » Thu Oct 15, 2009 6:52 am

Hi Gici,
I am so pleased you had the procedure done in the UK!!!!
Thanks so much for opening the doors for us other UKer's

L x
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