radeck's Stanford experience
radeck's Stanford experience
I had an MRV Wed night and have have an appointment with Dr. Dake Monday morning (hey Rhonda and Rose, hope to run into you...).
Not much informative to say at this point, except that the technician doing the MRA said afterwards that I breathed really regularly and that made the images come out crisp. I wasn't aware that this mattered, so y'all might want to practice some deep breathing before the next scan. I asked Greg if he saw anything interesting, and he said he wasn't allowed to tell me even if he saw something and knew what it meant. I wasn't able to check out a CD because the hospital was closed, so couldn't take a peek myself.
Not much informative to say at this point, except that the technician doing the MRA said afterwards that I breathed really regularly and that made the images come out crisp. I wasn't aware that this mattered, so y'all might want to practice some deep breathing before the next scan. I asked Greg if he saw anything interesting, and he said he wasn't allowed to tell me even if he saw something and knew what it meant. I wasn't able to check out a CD because the hospital was closed, so couldn't take a peek myself.
Last edited by radeck on Fri Jan 22, 2010 11:12 am, edited 1 time in total.
YAY!! you are on your way Rad! My guess is that you wil discover something is in there to treat, it seems to be going that way...
I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics
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I have sent everything in to Stanford and have talked with Dr. Dake. I'm just waiting on hearing back from Alex about hopefully scheduling a visit. Travelling out there and not finding anything is my biggest fear. As I have said half jokingly to my wife, this is the only group in the world that hopes for blocked jugs!
Hey rad, We all like to think of ourselves as exceptional, but that's stinkin' thinkin' in this case. I'll admit I had the same fears for Steve, but I talked myself out of them by recalling that almost every MS patient imaged did have the venous anomalies and were treatable.
I'll be praying for you to be very un-special. Try to relax and have a restful weekend. God bless you,
I'll be praying for you to be very un-special. Try to relax and have a restful weekend. God bless you,
Joyce (aka cypriane)~caregiver and advocate in Dallas for Steve (SPMS)----"Enter through the narrowgate..."
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Hey radeck...
Congrats on the good MRV pics, and getting to see the doc on Monday. It's nice you live close enough you could split up the visit- although this weekend will drag, I'm sure. Make sure to have some fun and keep us posted on Monday.
cheer
Congrats on the good MRV pics, and getting to see the doc on Monday. It's nice you live close enough you could split up the visit- although this weekend will drag, I'm sure. Make sure to have some fun and keep us posted on Monday.
cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
Radek - I was surprised to see you had your test on Wednesday and consult on Monday ---- then realized you are a resident of N. California.
Glad the images are "crisp" - you are correct -- the breathing makes a difference in the quality of the image.
Have a nice weekend - hopefully, the weather is nice so you can get out and enjoy and not be thinking about juggulars Keep us posted on Monday
Sharon
Glad the images are "crisp" - you are correct -- the breathing makes a difference in the quality of the image.
Have a nice weekend - hopefully, the weather is nice so you can get out and enjoy and not be thinking about juggulars Keep us posted on Monday
Sharon
Tube
Good Radek!!
1/2 way there! Hope to see you, too.
Sounds like you smiled real nice for all your pictures!
Did they tell you to breathe smoothly before the MRI for better results, or did she just happen to mention it when you were all done? Thanks for the tip.
How long were you in Testing all together? Ballpark?
Good Luck Monday.
I am in afternoon.
Rose
1/2 way there! Hope to see you, too.
Sounds like you smiled real nice for all your pictures!
Did they tell you to breathe smoothly before the MRI for better results, or did she just happen to mention it when you were all done? Thanks for the tip.
How long were you in Testing all together? Ballpark?
Good Luck Monday.
I am in afternoon.
Rose
Rose, Greg (the technician doing the scans) didn't ask me to breath in any particular way but he told me afterward that I was breathing very regularly, and when I asked how he could tell he said because the scans came out very clear. I don't know why this is the case. I'm just guessing it's because when you breathe regularly you usually also breathe more slowly, so there's less jitter?
He said it would take an hour and a half but I think it was 15 minutes more than that.
Thank you all for the encouraging words! I'm coping with the wait and am really happy that I can get the testing. Whatever the outcome I'll know more about myself afterwards.
He said it would take an hour and a half but I think it was 15 minutes more than that.
Thank you all for the encouraging words! I'm coping with the wait and am really happy that I can get the testing. Whatever the outcome I'll know more about myself afterwards.
Thanks
Thanks Radec,
That will give me something to keep my mind on, and a job to do, keeping my breathing regular.
You were probably more comfortable in the machine than some patients that have never been in one before. Maybe someone who is unfamiliar or uncomfortable with it breathes differently, or at least not as relaxed.
I have been in enough of them, it feels like my own safe cocoon, so I hope I get good crisp scans.
Congrats on a job well done!
Rose
That will give me something to keep my mind on, and a job to do, keeping my breathing regular.
You were probably more comfortable in the machine than some patients that have never been in one before. Maybe someone who is unfamiliar or uncomfortable with it breathes differently, or at least not as relaxed.
I have been in enough of them, it feels like my own safe cocoon, so I hope I get good crisp scans.
Congrats on a job well done!
Rose
Pins and needles
radeck, Knowing your appointment with Dr. Dake is THIS MORNING, just letting you know our prayers are with you. Can't wait to hear from you...today hopefully.
Joyce (aka cypriane)~caregiver and advocate in Dallas for Steve (SPMS)----"Enter through the narrowgate..."