Oh my Rose, I am so sorry that it happened that way! How dreadful overall! How indifferent that doctor seems to have been. that is not how it seems it should be.
Thank you for sharing your experience so others can learn, and for taking time to say how it was. I am just floored!
We have talked about making sure your home doc is on board before you go to Stanford in the past, how did we stop getting that information across for the newer people?
I really am not sure who would monitor me if it were not my MD? Would I have another choice? None I can think of, but if the Internist hated it so much why wouldn't they set up my Coumadin contact?
This is how it went with my doctor. I told her what I planned to do and that when I got back she'd be in charge of monitoring my coumadin. She liked the model very much and agreed to talk to me on the phone after my MRI if I wanted to chat about it. I called, explained the big occlusion, told her we planned surgery for the next day, and I'd be home Friday. She said come in Sat. and see me, and encouraged me that my decision sounded good. She called Dr Dake and spoke with him about the work and about me. I went in Saturday and she drew my blood for INR herself so we could get a stat check. She called me that night and told me I was low and to take another .5 for Sat and sun and Mon recheck Tues.
That is how it went for the whole 2 months. I am a nurse, but nothing was neglected and I feel terrible that it happened the way it did for you. We don't have a clinic here so I could not do that, but we need to share the clinic idea with others maybe let people know that when they talk to their own doctor they can ask about a clinic for the follow up instead of expecting the regular doc to keep track of it. That might take some pressure off if he doesn't like it so he can say (maybe with relief) yes, do the clinic. Docs won't be on the spot then maybe.
Here's the reason it can be a problem: the people get tested and the results are called in, a nurse or medical assistant takes it and enters it into the chart the doc has to review that chart every time and see what dose you are on and re calibrate the dose, then document it and get someone to tell you what dose to take now, document that, and when to recheck. THe person then has to order the recheck or at least set up a standing order for you to go in to the lab. It is VERY labor intensive and fraught with places for failure/missed data and potentially malpractice. Especially if a very high level happens and you get hurt from it if someone in the documentation chain dropped the ball that person is responsible. AND they can't charge for all this monitoring, so it is a lot of paperwork that demands it be done well for no real $$$. Doctors do not like it, it is a strain on staff, potentially risky, and demanding. I LOVE the clinic idea, that removes all the headache and puts it in a place where that is what they do all the time.
How can we make sure we share this with others so they are prepared?
I am loathe to offer another sticky, but maybe a coumadin sticky?
sorry for the hijack Rose but this is important--the nurse in me wants to give people the best information so they can be educated patients...People who know more are better patients.
A coumadin of 10.6 makes the hair on the back of my neck stand up....
I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
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