I go to Stanford tomorrow Oct 19/ Stenting Oct 20th if indicated.
I did write somewhere I would start a thread to enter my experiences if you want to read.
I just spent an hour writing this then pushed something and it disappeared, so I think this will be shorter. Lucky for you!
Dx 2001 RRMS still. Diagnosed and hospitalized for over a week in 2001 at Stanford so I do have a patient history there tho I know I did not get in any faster than alot of you that are traveling a long way.
My husband is pretty ill this week with a crappy chest cold, so I am keeping my distance and trying not to get sick. I am sure Radiology would not be able to do the scans with a cough like his.
My 27 yo son is driving me and I have another reason for that, also.
My son has been a surfer and diver since before he could walk. I like to say that he has surfed every continent except Antarctica, BUT he states surfing Ireland counts for that! hard to move in a 200 ml wetsuit! ha
Anyway, so we were all shocked when he had to drop out of the Santa Barbara Dive School (welding and such) when he was younger, when out of no where, he came down with some still undiagnosed ear issue that prohibits him from diving more than 15-20 feet!!
NO ONE, and I mean NO ONE from the most famous LA ENT on down has been able to ever determine a cause, cure or treatment.
But, the recent posts from those of you with ear and sinus issues and your posts have given my son the slightest hope that there may be a darn good reason for all of his 'weird' ear symptoms.
He even has days of CogFog now, tho he doesn't understand what I see in him when he has those days.
I hope you can read and understand what I am trying to say.
I have 2 maternal female cousins with MS, one RRMS and one PPMS.
I quit the Avonex 2 years ago after taking it for 5 years. I was just sick of being sick from it. I AM NOT ADVISING ANYONE TO DO THIS. I am just giving you some of my history. MY choice only. Everyone else did the freak-out dance and I have never felt better. I have had 2 episodes this calendar year so far tho, 1. Back and 2. Feet and leg. Just finished my 3 days of out pt IV Solumedrol about a month ago so I am still on the feel great, crazy lady 'high'.
There is no easy answer, as there is no answer, to this point, IMOHO,
so I am hopeful and prayerful for some insight tomorrow.
Sorry so long.
Thank You, Rose