Rhonda's Consultation and Surgery DAY!

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby bestadmom » Wed Oct 21, 2009 10:43 am

Feel better Rhonda. I hope you can sleep off the pain and wake up feeling better.
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Postby Shannon » Wed Oct 21, 2009 10:45 am

Rhonda - It's great to hear from you. I am sending you well wishes from michigan. Hope you start to feel better soon!
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Postby magoo » Wed Oct 21, 2009 11:18 am

I was able to keep some cereal down and took some pain meds. My right side feels great. I normally have pain and pressure there, that seems to be gone. My left side is in pain. I can't lift my left arm and I feel the stent.
Rhonda~
Treated by Dake 10/19/09, McGuckin 4/25/11 and 3/9/12- blockages in both IJVs, azy, L-iliac, L-renal veins. CCSVI changed my life and disease.
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Postby Sharon » Wed Oct 21, 2009 11:31 am

Rhonda -

You may not feel like it right now, but you are on the road to recovery.
I can't lift my left arm and I feel the stent.

Inflammation is going to affect the muscles and nerves which lead to the shoulder i.e your arm. Get some rest today. We have plenty of information on this forum to help you with your weak arm - thanks to all of us who have gone before you :wink: -- but, all that comes later. Concentrate on resting right now.

Woopie! It is over for you.
Sharon
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Postby magoo » Wed Oct 21, 2009 11:36 am

Thanks Sharon, thanks everyone. I will rest. Tomorrow will be better:)
Rhonda~
Treated by Dake 10/19/09, McGuckin 4/25/11 and 3/9/12- blockages in both IJVs, azy, L-iliac, L-renal veins. CCSVI changed my life and disease.
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Postby CRHInv » Wed Oct 21, 2009 12:19 pm

Hang in there Rhonda. I am sending you all the good thoughts I can! I am sooo glad to hear from you. I hope we hear from Rose soon too.
dx 4/09 * Stanford appointment 11/09/09 * One stent left, low jugular 11/10/09!<br />One year from treatment, I have my life back.  Placebo schmebo.
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Postby magoo » Thu Oct 22, 2009 11:03 am

Better today. I can lift my arm! Headaches are crazy bad, but I'm taking the pain medicine and keeping them at bay. My dreams have been amazing! I did dream before, but not like this!! I'm heading to my best friends house for 2 days, then home. I can't wait to be home. I am nervous about the 6 hour flight, ouch.
Rhonda~
Treated by Dake 10/19/09, McGuckin 4/25/11 and 3/9/12- blockages in both IJVs, azy, L-iliac, L-renal veins. CCSVI changed my life and disease.
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Postby Sharon » Thu Oct 22, 2009 11:15 am

Rhonda -

Get yourself a neck pillow for the flight home -- it will help to hold your head up on those "now" weak neck muscles.

Sharon
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Postby cheerleader » Thu Oct 22, 2009 11:16 am

magoo wrote:Better today. I can lift my arm! Headaches are crazy bad, but I'm taking the pain medicine and keeping them at bay. My dreams have been amazing! I did dream before, but not like this!! I'm heading to my best friends house for 2 days, then home. I can't wait to be home. I am nervous about the 6 hour flight, ouch.


Oh, honey. Really sorry....sounds exactly like Jeff. He had the nausea and really bad, bad headaches. But he felt "awake!" and his sleep was so much deeper, he also started dreaming again (he didn't even realize he'd stopped.) Glad you can lift the arm. Use the warm towel (we microwaved a wet dish rag in a gallon zip lock bag) to keep the shoulder muscles relaxed. It will get better everyday. Have a good visit with your friend, and keep us posted!
cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Postby CRHInv » Thu Oct 22, 2009 11:23 am

I am so glad to hear from you. Hope your traveling goes smoothly and as easily as possible. Take good care! Beth
dx 4/09 * Stanford appointment 11/09/09 * One stent left, low jugular 11/10/09!<br />One year from treatment, I have my life back.  Placebo schmebo.
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Rhonda!

Postby Rose2 » Sat Oct 24, 2009 5:01 pm

Glad you are done and on the road to feeling better soon
I wish you well in your travels. my headaches hit a zero for a short time today then back to horizontal in the pillow.
Maybe you can ask the airlines for an upgrade?? I did that after my spinal fusion in 94 when I had to fly alot right after surg for family emergencies. the upgrade seating saved me. truly. consider it an option?
good thoughts your way
rose
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Postby prof8 » Sat Oct 24, 2009 10:24 pm

Rhonda, I hope you feel better very soon!! :)

Cheer, is there a reason why Jeff used a wet dishrag in a ziplock heated instead of a heating pad?
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Postby magoo » Sun Oct 25, 2009 7:54 am

Home sweet home!!!!!!!!!!! I felt so much better yesterday and the flight was a breeze. I think I am seeing improvements. My family will be helping to judge my progress. So far...I have lost the constant right-sided pain that I have lived with for 6 years, my legs feel light, no more stiffness, my dreams have been amazing, and I think my fatigue is better. I am still recovering from the surgery, so I'm tired. I lost 6 pounds since I couldn't keep any food down for 4 days. I am very excited.
Rhonda~
Treated by Dake 10/19/09, McGuckin 4/25/11 and 3/9/12- blockages in both IJVs, azy, L-iliac, L-renal veins. CCSVI changed my life and disease.
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Postby CRHInv » Sun Oct 25, 2009 8:09 am

Congratulations! So good to hear you sound so encouraged. I have been waiting on pins and needles! Enjoy being home and let everyone take care of you so you can rest.
dx 4/09 * Stanford appointment 11/09/09 * One stent left, low jugular 11/10/09!<br />One year from treatment, I have my life back.  Placebo schmebo.
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Postby bestadmom » Sun Oct 25, 2009 8:13 am

I'm so happy that you are feeling better right away and that the flight home was easy. Remember to take it easy and don't try to over do it.
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