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Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

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magoo
PostPosted: Mon Oct 19, 2009 7:33 am 
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I'm leaving soon to meet with Dr. Dake. Sharon has offered to post for me as soon as I can update her. Wish me luck!

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Rhonda~
Treated by Dake 10/19/09, McGuckin 4/25/11 and 3/9/12- blockages in both IJVs, azy, L-iliac, L-renal veins. CCSVI changed my life and disease.
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Needled
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PostPosted: Mon Oct 19, 2009 7:50 am 
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LUCK!!!! :D :D :D :D
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Arcee
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PostPosted: Mon Oct 19, 2009 7:51 am 
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Oh these moments are long and unforgettable! Best of luck, and glad you have arranged for Sharon to post.

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diagnosed RR in spring '04
1 stent placed in left jugular vein 7/15/09
on and off Copaxone
allergric to interferons and Tysabri
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CureIous
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PostPosted: Mon Oct 19, 2009 8:31 am 
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Reload page. Reload page. Reload page.... :)

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RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap
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magoo
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PostPosted: Mon Oct 19, 2009 11:30 am 
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Narrowing/stenosis in both jugulars. 30 minutes to pre-op!!!

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Rhonda~
Treated by Dake 10/19/09, McGuckin 4/25/11 and 3/9/12- blockages in both IJVs, azy, L-iliac, L-renal veins. CCSVI changed my life and disease.
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CureIous
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PostPosted: Mon Oct 19, 2009 12:00 pm 
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magoo wrote:
Narrowing/stenosis in both jugulars. 30 minutes to pre-op!!!


That's great! Good luck. Look forward to hearing about your experiences.

Mark.

_________________
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap
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CRHInv
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PostPosted: Mon Oct 19, 2009 12:41 pm 
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Woohoo on the stenosis! :D
(We are a sick bunch, huh?) 8O

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dx 4/09 * Stanford appointment 11/09/09 * One stent left, low jugular 11/10/09!<br />One year from treatment, I have my life back.  Placebo schmebo.
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bluesky63
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PostPosted: Mon Oct 19, 2009 1:56 pm 
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Good luck to you! :-)
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Sharon
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PostPosted: Mon Oct 19, 2009 2:58 pm 
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Rhonda was able to update everyone about her stenoises in both juggulars. I am now waiting for her to get out of surgery and to her hospital room for another update. I will post as soon as I hear something from her.

Sharon
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CRHInv
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PostPosted: Tue Oct 20, 2009 7:35 am 
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Rhonda, I'm thinking about you. Hope all is well. Beth

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dx 4/09 * Stanford appointment 11/09/09 * One stent left, low jugular 11/10/09!<br />One year from treatment, I have my life back.  Placebo schmebo.
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Sharon
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PostPosted: Tue Oct 20, 2009 8:50 am 
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Just wanted everyone to know, that I have not received a text message or email from Rhonda as of early Tuesday morning.

Sharon
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Sharon
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PostPosted: Tue Oct 20, 2009 7:17 pm 
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An email from Rhonda
Quote:
Hi Sharon,
I have had so much nausea and tremendous headaches. It has been a rough couple
of days. Hoping to feel better soon.
Rhonda



Rhonda,Sending good thoughts and prayers your way - things will get better.

Sharon
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CRHInv
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PostPosted: Wed Oct 21, 2009 1:20 am 
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Rhonda, So good to hear from you. Take good care and I hope each day gets better. I am thinking of you!
Sharon, thanks so much for helping post!
Beth

_________________
dx 4/09 * Stanford appointment 11/09/09 * One stent left, low jugular 11/10/09!<br />One year from treatment, I have my life back.  Placebo schmebo.
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kinga
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PostPosted: Wed Oct 21, 2009 7:17 am 
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Rhonda I hope You will be better soon !
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magoo
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PostPosted: Wed Oct 21, 2009 10:40 am 
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Morphine and percoset made me sick all through the night. Pain is unbelievable. Wish I had good news, but for now I just need rest. Dr. Forrester did my procedure with Dake guiding. I really liked Forrester. When they opened those stents the pain was killer. I think I have some nerve impingement on left. Going back to bed. Wish I was home.

_________________
Rhonda~
Treated by Dake 10/19/09, McGuckin 4/25/11 and 3/9/12- blockages in both IJVs, azy, L-iliac, L-renal veins. CCSVI changed my life and disease.
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Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

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