Procedure in Poland

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby SSG » Sun Jan 10, 2010 9:52 am

Left jugular stenosis. No stent, just baloon. Holding up well.
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Postby babiezuique » Sun Jan 10, 2010 10:20 am

Simka wrote me this morning... I have an apointement in january 2011 ;) I'm actually crying of joy.... thinking about the good results you had after the ''liberazione'' ......

Barbara from Montreal
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Postby vendredi5h » Sun Jan 10, 2010 11:07 am

Oh! Great news Barbara! You're making me jealous! ;) When did you wrote to Dr Simka? I wrote to him on January 1st and did not get a reply yet.

Yannick
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Postby Jaguar » Sun Jan 10, 2010 11:13 am

And I wrote to him in December with no response. Maddening is definitely the word for this.

good for you Barbara
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Postby Pepe » Sun Jan 10, 2010 11:27 am

Deleted.

Pepe.
Last edited by Pepe on Wed Jan 13, 2010 4:21 am, edited 1 time in total.
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Postby babiezuique » Sun Jan 10, 2010 11:29 am

Yannick, i wrote to Dr Simka the 21 of december....
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Postby Jaguar » Sun Jan 10, 2010 11:32 am

And I wrote on the 30th of December, so it seems he will get to me... eventually!
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Postby colapesce » Sun Jan 10, 2010 11:55 am

I wrote to him on the 22nd December. Still nothing.

Congrats to you though, Babi!
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Postby babiezuique » Sun Jan 10, 2010 12:22 pm

The feeling i'm testing out now is... peace... Since i know about the ''new'' (but not new because we know it is and old theory.... ) vascular paradigm ( since mid november...) I'm studying all day, from 5 to 10 hours everyday.... I'M reading about all i have been experiencing since so many years.... that now has an explaination... I'm on vacation... it is cold now in montreal... and i have no reason to go out... I'm studying from all of you here...

I'is astonishing for me to see how hight the lever of the research people here can do! I'm asking myself how i made it....since you all those years of ms.... felling so alone....
Barbara from Montreal ;)
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Postby babiezuique » Sun Jan 10, 2010 12:33 pm

oups... how i made it ''without you...'' i wanted to say ;(
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Postby babiezuique » Sun Jan 10, 2010 12:45 pm

TH Hello,

You are in the waiting list for "the liberation operation". The estimated time of the procedure is January 2011.

We will do our best to make the treatment possible earlier, but actually we receive more requests than we can manage in a proper time.

I will send you detailed information regarding date, hotels, payments etc. in a proper time

The hospital is in Katowice, the nearby airports are in Katowice and Krakow.

You should plan at least 7-days long stay in Poland (at least 3 days postop)You will get all necessary prescriptions and instructions how to use medications, as well as if and when to come for a follow-up (all these depends on the type of operation and patient's characteristics). In brief, postoperatively you should stay in the hospital overnight. The operation will not affect your mobility (it is only small puncture in the groin and nearly no pain).

We perform either balloning, or stenting, depending on particular characteristics of venous occlusion. Balloon angioplasty seems safer (lower probability of thrombotic event), but the possibility of restenosis is very high (~50%), so we prefer stenting, on condition that anatomic localization and characteristics of a planned stent looks safe. Anyway, in a case of doubt, we perform safer procedure (ballooning).



Best regards

Marian Simka, MD


is is the message i just received from Dr Simka :)
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Postby Brynn » Sun Jan 10, 2010 5:58 pm

Congratulations, babiezuique!! :D Regardless of the long wait ahead for us, isn't it SUCH a refief to be acknowledged and on the list?! :D Brynn
41 years old, dx 1998, current EDSS 6.5
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Postby Astrid1961 » Mon Jan 11, 2010 3:52 am

I send an email on 12 december 2009, and 2 weeks later i received one back from Dr.Simka, i also am on the waitinglist for januari 2011.

And i hope, when they start treatments in Paris/slowakije it will be sooner.
I think some people from the list will have their treatments in their own country.

Brynn, i like you name... :) our youngst sun is called: Brynan.

I live in Holland.

Astrid
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Postby pgm1 » Mon Jan 11, 2010 12:01 pm

Hi
I sent my e-mail back in November and am on the wait for a March procedure appointment.
I am still waiting to hear,its testing my patients

Happy waiting to you all :)

Pam :)
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Postby Greenfields » Mon Jan 11, 2010 12:07 pm

Does anyone have a cost for having the procedure in Poland?

Cheers
Brian
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