Procedure in Poland

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby pgm1 » Mon Jan 11, 2010 12:13 pm

Hi Brian
Thi is what i was e-maild

Hello,
You are in the waiting list for "the liberation operation". The estimated time of the procedure is March 2010.
We will do our best to make the treatment possible earlier, but actually we receive more requests than we can manage in a proper time. I will inform you about exact time of the examinations and potential operation in 1-2 weeks.
Best regards
Marian Simka, MDOffer for patients suffering from MS
-vascular specialist consultation with non invasive diagnostic procedure (color doppler and MRV) ..............................................................................................................................300 euro
-vascular specialist consultation with non- and invasive diagnostic procedures (angiography)
.....................................................................................................................................1100 euro
-vascular specialist consultation, all necessary examinations and an endovacular procedure (PTA)............................................................................................................................3500 euro
-vascular specialist consultation, all necessary examinations and an endovascular procedure
(1 stent implantation)..................................................................................................4200 euro
-vascular specialist consultation, all necessary examination and an endovascular procedure (2 stents implantation)................................................................................................4700 euro

Pam :)
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Postby Greenfields » Mon Jan 11, 2010 1:52 pm

Thanks Pam

I am going to need to save my pennies....just over 20 grand Canadian. Pretty cheap actually.

Thanks again
Brian
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Postby Johnson » Mon Jan 11, 2010 4:39 pm

Greenfields wrote:Thanks Pam

I am going to need to save my pennies....just over 20 grand Canadian. Pretty cheap actually.

Thanks again
Brian

Brian - that is 4700 euros for the whole deal if 2 stents are needed. 1 stent = 4200 Euro, etc. That includes the scans and consultation.

4700 Euros = 7 048.2057 Canadian dollars on January 11th 2010
My name is not really Johnson. MSed up since 1993
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Dr. Samik Po;and

Postby Val1964 » Tue Jan 12, 2010 3:41 am

Hi can anyone tell me how to contact Dr. Samik in Poland???
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Dr Simka

Postby Badger » Tue Jan 12, 2010 3:48 am

mariansimka@poczta.onet.pl and +48-322120498

He does take time to reply to emails but did answer the telephone and just asked for everyone to be patient, no pun intended!!

:wink:
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Postby Val1964 » Tue Jan 12, 2010 4:02 am

Thank you so much for that badger
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Postby IbRiz » Tue Jan 12, 2010 5:51 am

Pepe - you asked about the CD from the MRV scan. I got mine when the scan was over - the number on my cd is 5004 / M2 / 2009 - and then the date 7.12.2009.

If you didn't get your wifes CD - maybe you can write dr Hartel and ask him to mail it to you?

How is your wife doing by the way? Is she okay with the inclined bed?

Christian
RRMS Dx'd 2009
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Postby Greenfields » Tue Jan 12, 2010 6:42 am

"Brian - that is 4700 euros for the whole deal if 2 stents are needed. 1 stent = 4200 Euro, etc. That includes the scans and consultation.

4700 Euros = 7 048.2057 Canadian dollars on January 11th 2010[/quote]"


I have Scots in me, and I like your numbers better than mine... :lol:

Cheers
Brian
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Postby cheerleader » Tue Jan 12, 2010 8:38 am

Wanted to alert folks going to Poland of a scam by a Canadian, promising to get folks in to see Dr. Simka right away if you send his company a large amount of money. I deleted 15 of his posts on the FB page. He is being reported to the authorities. The only way to reach Dr. Simka is thru his e-mail-
Dr. Simka is a very conscientious and dedicated doctor-
Please be careful, folks. The weasels start crawling out if they see money and desperation-
cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Postby Greenfields » Tue Jan 12, 2010 8:52 am

Why doesn't the above surprise me? Sometimes I hate humans.

Cheers
Brian
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Thanks...

Postby fiddler » Tue Jan 12, 2010 9:00 am

for catching and following up on this, cheer. I expect that there will be a lot more scams on-line in the next while. As well, we have already seen some clinics professing to do CCSVI testing (at high prices) though their people are not trained to recognize the various ways that CCSVI presents itself. In the latter case, they probably aren't being consciously dishonest because they truly believe that "it can't be that hard to find occluded veins". However, we have heard in TiMS of many cases of people being misdiagnosed. Perhaps we need to start up a list of scams, suspected scams, and incompetent (with respect to CCSVI) clinics.
...Ted
Dx SPMS in 2004.  Liberated 29/04/2010.
My blog: www.my-darn-ms.blogspot.com
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Liberazione

Postby RichTar » Tue Jan 12, 2010 2:32 pm

[quote = "babiezuique"] Simka napisał mi dziś rano ... Apointement Mam w styczniu 2011 r.;) Jestem naprawdę płakała z radości .... myślenia o dobre wyniki trzeba było po''Liberazione''......

Barbara z Montrealu [/ quote]

Hi Barbara,
have you sent any medical documentation before they've accepted your application for opperation in the clinic?
Regards
RichTar
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Postby Brynn » Tue Jan 12, 2010 4:20 pm

Hi Astrid, thank you. I enjoy my name since it is unusual, but most people here insist on adding an A, thinking my name must be Bryan, thus making me a man! LOL :D I am sure that our wait will get shorter as more doctors come on line with the procedure. Brynn
41 years old, dx 1998, current EDSS 6.5
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Documentation

Postby fiddler » Tue Jan 12, 2010 4:41 pm

Hi RichTar,
No medical documentation has been requested by Dr. Simka. In a way that makes sense, because he is not "fixing MS" per se, but rather testing for and, if appropriate, fixing CCSVI. I suppose if you have some special medical documentation related to tests already performed for CCSVI he might want to see them, but documentation is not a precondition to being scheduled for an appointment.
...Ted
Dx SPMS in 2004.  Liberated 29/04/2010.
My blog: www.my-darn-ms.blogspot.com
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Postby Astrid1961 » Wed Jan 13, 2010 1:08 pm

I also hope that before next year doctors in our country will do the scanning en the liberationtreatment. I think they can do it now, but they have to dare. ( i hope i spell it right, my Englisch is not very good).

And about the name, i now exectly what you mean, at first they think always our son's name is Bryan. But it is like your name, but than with an A in between. ( and it does not sound like Bryan, more like Brian Laudrup, footballplayer from Denmark)
I don't now anyone with this name in Holland.

Astrid
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