News from Rici, a polish patient being operated

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby Pepe » Sat Nov 14, 2009 11:59 am

Once more time: Thanks Ana and Rici for the update.
Best wishes.
Pepe.
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Postby Ana » Thu Nov 19, 2009 3:52 pm

One month after the procedure:

"Sometimes it is better but now...
I couldn't sleep this night. At 2 a.m. there was a disturbance in the boiler of the central heating. The heat was at the maximum. And...for the first time since weeks I went to the cellar and no problem! Though there are some steep steps. I took down the temperature and went back upstairs. But after some minutes it was even warmer. I went to the heater but it was so hot that I couldn't touch it. But I could stand next to it without having the feeling that my head was exploding like I used to feel near the heater! I returned to the cellar and switched the boiler off.

So I went back to my bed. Then spasms started. I went upstairs (1rst floor) to drive on my bicycle and to take some Baclofen. But I started with walking in the room and corridor from window to window which is about 10 meters distance. And for the first time since many months I managed to walk about 100 meters without having to support myself at the wall! Then I had to hold the wall with my hands more often but kept on walking nevertheless. I always count how much I walk but I don't want to write it down. The whole distance I had walked was more than 200 meters! Thanks for your attention!"
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Postby CRHInv » Thu Nov 19, 2009 5:17 pm

Thanks for the update. This is really wonderful. I am so glad you are having so many improvements!
dx 4/09 * Stanford appointment 11/09/09 * One stent left, low jugular 11/10/09!<br />One year from treatment, I have my life back.  Placebo schmebo.
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Postby kinga » Thu Nov 26, 2009 12:42 pm

Here is Ricci's report after 1 month+1 week after the procedure:
1.He can now stand on one foot longer
2.He now can wash himself standing with no breaks for rest-doesn't feel exhausted in the middle of the process
3.He can bend over the sink to wash his face-no unwanted movements,no balance problems!
4.He can take longer steps,he can raise his feet higher,much less problems with putting his socks on
5.doesn't need to stabilize his body while sitting
6.Can stand straight with his eyes closed,not for long,but before it was impossible at all
7.Doesn't need help with standing up from sitting position.

So everything is better and better!
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Postby Pepe » Fri Nov 27, 2009 11:00 am

Bravo Ricci... and keep posting please...
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Postby pvns2005 » Fri Nov 27, 2009 6:01 pm

Did Ricci get stents or just balloning of veins?
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Postby muse » Fri Nov 27, 2009 6:33 pm

Rici got stents.
Best muse
http://www.csvi-ms.net/en
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Postby Ana » Wed Dec 09, 2009 11:44 am

"50 days after the procedure:

Still day by day everything keeps on getting better.

1) My problems with the bladder have practically vanished. I can sleep the whole night through without having to go every 2 hours to the bathroom.

2) Climbing up stairs has become better.

3) I can walk again faster.

4) I can stand heat again, i.e. I can eat or drink warm stuff again or stay in warm rooms.

5) My feet are less insensible.

6) I'm able to eat again in a normal way using both hands.

7) I'm able again to button my clothes, especially the sleeves, even with one hand!

8 ) No more constipation.

9) No more problems with standing up.

10) My balance has improved. I'm walking again erectly.

Best wishes

Rici"

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Postby wonky1 » Wed Dec 09, 2009 11:55 am

Ana, Rici, this is brilliant, really good news.
Keep it coming.
:D :D :D :D :D :D :D :D :D :D :D :D :D :D :D :D :D :D :D :D :D :D :D :D :D
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Postby ozarkcanoer » Wed Dec 09, 2009 11:58 am

Ana, I am so happy for you. It is great to have so many people who have had the Liberation Procedure doing so well. I give all the rest of us hope.

Thank you,

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Postby Ana » Wed Dec 09, 2009 12:03 pm

Hi ozarkcanoer,

I'm just the translator for Rici as he doesn't speak english. I haven't jet had the procedure but if everything keeps on going well I will have a mrt swi done soon.
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Postby Rainbolt » Wed Dec 09, 2009 12:11 pm

I am also reading this like it's a drug for my system! Please tell Rici thank you for me! Hearing these things gives me such intense real hope for a better tomorrow physically!!!
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Postby Sharon » Wed Dec 09, 2009 2:09 pm

Great news for Rici -- The improvements in the bladder and the constipation are not placebo. Someone knows when those have changed!
Ana, tell Rici thanks for the update and thanks to you for being his translator! You have done a marvelous job these past few months.

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Postby Edser » Wed Dec 09, 2009 2:29 pm

Good evening Rici,
Thank's very much for all the times you spoke with my (ANNA) on Skype.Last night was amazing,seeing you standing up & sitting down without any problem's.Respect Rici.
Slainte Mo Chara
Edser & Anna
Never judge a Book by it's cover.
Edss Before Procedure:6
Edss After Procedure:4
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Postby Ana » Sat Jan 09, 2010 6:23 am

Unfortunately Rici has new problems. Dr. Simka already did the liberation procedure concerning his left jugular but Rici still had some problems so they checked his veins again and found out that his right jugular is far too wide, about 3 cm!!! It is too wide to place a stent and Rici says that it's rather a water-hose than a vein. You can see it here, also the stent which is in the other side: http://img35.imageshack.us/img35/4845/20091221rici.jpg

It causes a strong reflux and that's why Rici needs to be operated again. Maybe an open operation is necessary.
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