This Is MS Multiple Sclerosis Community: Knowledge & Support

Welcome to the world's leading forum on Multiple Sclerosis research, support, and knowledge. For over 10 years, This is MS has provided an unbiased community dedicated to Multiple Sclerosis patients, caregivers, and affected loved ones.
It is currently Fri May 24, 2013 2:53 pm


All times are UTC - 8 hours [ DST ]




Post new topic Reply to topic  [ 106 posts ]  Go to page Previous  1 ... 4, 5, 6, 7, 8  Next
Author Message
 Post subject:
PostPosted: Fri Feb 12, 2010 11:25 am 
Offline
Family Elder
User avatar

Joined: Thu Jul 09, 2009 3:00 pm
Posts: 1274
Rici, your saga is heartbreaking. Thank goodness you have great doctors, and I'm very glad to know that all your doctors will be consulting with each other about the operation. I'm praying that your operation goes well so you can feel better again ASAP. Will this be open neck surgery or angio?

Could you please explain a little more about this sentence?

Rici wrote:
Exchange vein of regeneration valve.


Please, please keep us updated... look at the number of "views" of your thread -- we have clicked on your thread over 10,000 times!! Wow!!

Thank you, Rici. You are in our hearts.

~HappyPoet
.


Top
 Profile  
 
 Post subject:
PostPosted: Fri Feb 12, 2010 12:34 pm 
Offline
Family Elder
User avatar

Joined: Thu Nov 12, 2009 4:00 pm
Posts: 283
Location: Poland Bialystok
HappyPoet wrote:
Rici, your saga is heartbreaking. Thank goodness you have great doctors, and I'm very glad to know that all your doctors will be consulting with each other about the operation. I'm praying that your operation goes well so you can feel better again ASAP. Will this be open neck surgery or angio?

Could you please explain a little more about this sentence?

Rici wrote:
Exchange vein of regeneration valve.


Please, please keep us updated... look at the number of "views" of your thread -- we have clicked on your thread over 10,000 times!! Wow!!

Thank you, Rici. You are in our hearts.

~HappyPoet
.

Thank you very much for your warm words. Operation must be open. In Israel, are the greatest chances of success. After a day in Poland The definitive refusal, according to the instructions that follow Dr. Schelling. This is our good angel guardian. I know that is correct. Well, That has already started to settle in Israel. Sorry for mistakes in writing and greet
Rici


Top
 Profile  
 
 Post subject:
PostPosted: Tue Feb 16, 2010 8:34 am 
Offline
Family Elder
User avatar

Joined: Thu Nov 12, 2009 4:00 pm
Posts: 283
Location: Poland Bialystok
Hello
Now I got the phone from Israel. Unfortunately, because of procedural can not perform surgery in Israel.
Regards
Rici :( :( :(


Top
 Profile  
 
 Post subject:
PostPosted: Tue Feb 16, 2010 8:53 am 
Offline
Family Elder

Joined: Wed Feb 11, 2009 4:00 pm
Posts: 1420
Location: California
Hey Rici, I am so sorry:( What do you plan to do next?


Top
 Profile  
 
 Post subject:
PostPosted: Tue Feb 16, 2010 9:43 am 
Offline
Family Elder

Joined: Mon Jan 04, 2010 4:00 pm
Posts: 8511
This is heart-breaking...what next?

_________________
"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition


Top
 Profile  
 
 Post subject:
PostPosted: Tue Feb 16, 2010 9:47 am 
Offline
Family Elder
User avatar

Joined: Thu Nov 12, 2009 4:00 pm
Posts: 283
Location: Poland Bialystok
Looking for another STATE, Where can I do this operation.

regards

Rici


Top
 Profile  
 
 Post subject:
PostPosted: Tue Feb 16, 2010 10:11 am 
Offline
Family Elder
User avatar

Joined: Thu Jul 09, 2009 3:00 pm
Posts: 1274
Oh Rici,

I'm so, so, so sorry. You poor thing. You'll be in my thoughts and prayers.

Best of luck finding someone, somewhere who will be able to perform the surgery.

.


Top
 Profile  
 
 Post subject:
PostPosted: Tue Feb 16, 2010 10:11 am 
Offline
Family Elder

Joined: Mon Jan 04, 2010 4:00 pm
Posts: 8511
I know your case is much more complex, but there have been some Canadians who have gotten their imaging done at False Creek and are headed to India for angio/stenting.

_________________
"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition


Top
 Profile  
 
 Post subject:
PostPosted: Tue Feb 16, 2010 10:12 am 
Offline
Family Elder

Joined: Wed Feb 11, 2009 4:00 pm
Posts: 1420
Location: California
Rici, Do you think that there is a blockage somewhere further down in your vascular system that could be causing the right vein to widen like that?

Have you had the veins in your spine etc checked with an MRV and dye?

I am no dr but it was just a thought.


Top
 Profile  
 
 Post subject:
PostPosted: Tue Feb 16, 2010 10:21 am 
Offline
Family Elder
User avatar

Joined: Sat Oct 17, 2009 3:00 pm
Posts: 141
I am terribe sorry Rici !

Do not give up ! You deserve win this battle !

All the best to you,

Pepe.

_________________
María was Dx RRMS 1996. SPMS since 2003; Dx CCSVI by Dr. Simka on Dec.-2009; Balloon angioplasty on Jan.-2010 in Katowice (Poland); Betaseron (2000-2009); Tysabri since June 2009. BBD since 2003. IBT since Jan.-2010.


Top
 Profile  
 
 Post subject:
PostPosted: Tue Feb 16, 2010 10:23 am 
Offline
Family Elder
User avatar

Joined: Thu Nov 12, 2009 4:00 pm
Posts: 283
Location: Poland Bialystok
HappyPoet wrote:
Oh Rici,

I'm so, so, so sorry. You poor thing. You'll be in my thoughts and prayers.

Best of luck finding someone, somewhere who will be able to perform the surgery.

.

TKS !
Rici


Top
 Profile  
 
 Post subject:
PostPosted: Tue Feb 16, 2010 10:43 am 
Offline
Family Elder
User avatar

Joined: Mon Jan 04, 2010 4:00 pm
Posts: 170
What an informative thread.

Rici, I hope you find relief soon.

I have added this information to the "Real people real events page" here:

http://ccsvivictory.club.officelive.com ... vents.aspx

_________________
Together, our voices are louder!
http://ccsvivictory.club.officelive.com/default.aspx


Top
 Profile  
 
 Post subject:
PostPosted: Tue Feb 16, 2010 10:49 am 
Offline
Family Elder
User avatar

Joined: Thu Nov 12, 2009 4:00 pm
Posts: 283
Location: Poland Bialystok
Thank you for your good wishes to all. I have already written. I must have said Jogularis vein plus venous valve. I am a professor of what can be done. But where?
regards
Rici


Top
 Profile  
 
 Post subject:
PostPosted: Tue Feb 16, 2010 10:52 am 
Offline
Family Elder
User avatar

Joined: Thu Nov 12, 2009 4:00 pm
Posts: 283
Location: Poland Bialystok
Vonna wrote:
What an informative thread.

Rici, I hope you find relief soon.

I have added this information to the "Real people real events page" here:

http://ccsvivictory.club.officelive.com ... vents.aspx

Tks, regards
Rici


Top
 Profile  
 
 Post subject:
PostPosted: Tue Feb 16, 2010 11:09 am 
Offline
Family Elder
User avatar

Joined: Thu Jan 14, 2010 4:00 pm
Posts: 481
Location: Italy
Vonna, that link is already excellent!
Rici sent you a private msg to ask sthg longer. Hope you will soon find s.o. that can help you! Can anyone get Rici's story somehow to the media? Or would that not be helpful at all to find another specialist? Sorry if already done so, then did not follow the issue enough...


Top
 Profile  
 
Display posts from previous:  Sort by  
Post new topic Reply to topic  [ 106 posts ]  Go to page Previous  1 ... 4, 5, 6, 7, 8  Next

All times are UTC - 8 hours [ DST ]


Related topics
 Topics   Author   Replies   Views   Last post 
There are no new unread posts for this topic. Rici has multiple myeloma

1eye

1

372

Wed May 23, 2012 8:57 am

Cece View the latest post

There are no new unread posts for this topic. Some Polish Phrases

broomdancer

13

1686

Sat May 29, 2010 5:16 am

broomdancer View the latest post

There are no new unread posts for this topic. I need a translator italian -polish

annased24

2

750

Tue Jul 06, 2010 5:07 am

annased24 View the latest post

There are no new unread posts for this topic. Has anybody tried to contact non-polish Euromedic clicics?

frodo

3

849

Wed Jul 21, 2010 3:08 pm

frodo View the latest post

There are no new unread posts for this topic. Question for Polish patients treated with stents....

Donnchadh

2

910

Tue Apr 20, 2010 1:39 am

moochsid View the latest post

 


Who is online

Users browsing this forum: No registered users


You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum

Search for:
Jump to: