News from Rici, a polish patient being operated

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby HappyPoet » Fri Feb 12, 2010 10:25 am

Rici, your saga is heartbreaking. Thank goodness you have great doctors, and I'm very glad to know that all your doctors will be consulting with each other about the operation. I'm praying that your operation goes well so you can feel better again ASAP. Will this be open neck surgery or angio?

Could you please explain a little more about this sentence?

Rici wrote:Exchange vein of regeneration valve.


Please, please keep us updated... look at the number of "views" of your thread -- we have clicked on your thread over 10,000 times!! Wow!!

Thank you, Rici. You are in our hearts.

~HappyPoet
.
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Postby Rici » Fri Feb 12, 2010 11:34 am

HappyPoet wrote:Rici, your saga is heartbreaking. Thank goodness you have great doctors, and I'm very glad to know that all your doctors will be consulting with each other about the operation. I'm praying that your operation goes well so you can feel better again ASAP. Will this be open neck surgery or angio?

Could you please explain a little more about this sentence?

Rici wrote:Exchange vein of regeneration valve.


Please, please keep us updated... look at the number of "views" of your thread -- we have clicked on your thread over 10,000 times!! Wow!!

Thank you, Rici. You are in our hearts.

~HappyPoet
.

Thank you very much for your warm words. Operation must be open. In Israel, are the greatest chances of success. After a day in Poland The definitive refusal, according to the instructions that follow Dr. Schelling. This is our good angel guardian. I know that is correct. Well, That has already started to settle in Israel. Sorry for mistakes in writing and greet
Rici
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Postby Rici » Tue Feb 16, 2010 7:34 am

Hello
Now I got the phone from Israel. Unfortunately, because of procedural can not perform surgery in Israel.
Regards
Rici :( :( :(
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Postby LR1234 » Tue Feb 16, 2010 7:53 am

Hey Rici, I am so sorry:( What do you plan to do next?
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Postby Cece » Tue Feb 16, 2010 8:43 am

This is heart-breaking...what next?
"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition
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Postby Rici » Tue Feb 16, 2010 8:47 am

Looking for another STATE, Where can I do this operation.

regards

Rici
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Postby HappyPoet » Tue Feb 16, 2010 9:11 am

Oh Rici,

I'm so, so, so sorry. You poor thing. You'll be in my thoughts and prayers.

Best of luck finding someone, somewhere who will be able to perform the surgery.

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Postby Cece » Tue Feb 16, 2010 9:11 am

I know your case is much more complex, but there have been some Canadians who have gotten their imaging done at False Creek and are headed to India for angio/stenting.
"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition
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Postby LR1234 » Tue Feb 16, 2010 9:12 am

Rici, Do you think that there is a blockage somewhere further down in your vascular system that could be causing the right vein to widen like that?

Have you had the veins in your spine etc checked with an MRV and dye?

I am no dr but it was just a thought.
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Postby Pepe » Tue Feb 16, 2010 9:21 am

I am terribe sorry Rici !

Do not give up ! You deserve win this battle !

All the best to you,

Pepe.
María was Dx RRMS 1996. SPMS since 2003; Dx CCSVI by Dr. Simka on Dec.-2009; Balloon angioplasty on Jan.-2010 in Katowice (Poland); Betaseron (2000-2009); Tysabri since June 2009. BBD since 2003. IBT since Jan.-2010.
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Postby Rici » Tue Feb 16, 2010 9:23 am

HappyPoet wrote:Oh Rici,

I'm so, so, so sorry. You poor thing. You'll be in my thoughts and prayers.

Best of luck finding someone, somewhere who will be able to perform the surgery.

.

TKS !
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Postby Vonna » Tue Feb 16, 2010 9:43 am

What an informative thread.

Rici, I hope you find relief soon.

I have added this information to the "Real people real events page" here:

http://ccsvivictory.club.officelive.com ... vents.aspx
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Postby Rici » Tue Feb 16, 2010 9:49 am

Thank you for your good wishes to all. I have already written. I must have said Jogularis vein plus venous valve. I am a professor of what can be done. But where?
regards
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Postby Rici » Tue Feb 16, 2010 9:52 am

Vonna wrote:What an informative thread.

Rici, I hope you find relief soon.

I have added this information to the "Real people real events page" here:

http://ccsvivictory.club.officelive.com ... vents.aspx

Tks, regards
Rici
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Postby Zeureka » Tue Feb 16, 2010 10:09 am

Vonna, that link is already excellent!
Rici sent you a private msg to ask sthg longer. Hope you will soon find s.o. that can help you! Can anyone get Rici's story somehow to the media? Or would that not be helpful at all to find another specialist? Sorry if already done so, then did not follow the issue enough...
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