Appointment with neurologial surgury researcher !!!!

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Appointment with neurologial surgury researcher !!!!

Postby ozarkcanoer » Fri Oct 23, 2009 10:05 am

Hi,

Yesterday I contacted one of the top brain researchers at Washington University Medical School in St. Louis Missouri !!!! Google "Thomas A Woolsey" and you will find lots of hits about him. I told him that I was interested in volunteering for Dr. Haacke's SWI/MRV study and wanted his opinion.

Well, Dr. Woolsey replied to my email this morning. He is looking into CCSVI for himself and will reply to me today or tomorrow with more information. PLUS, he is going to meet with me personally !!!!! I am super excited. This guy is the REAL THING... He wrote "The Brain Atlas" You will also find Dr. Woolsey's book when you Google his name.

I'll keep you all posted....

Oh, also Google "Hope Happens", a non-profit neurological research organization in St. Louis that focuses on diseases like MS, ALS, Alzheimers, etc. etc.

Ozark
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Postby bestadmom » Fri Oct 23, 2009 10:12 am

Woohoo! Great news. We are going to get this to move east, one state at a time.

Keep up in the loop on how your meeting goes.
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Postby mrhodes40 » Fri Oct 23, 2009 10:44 am

Oh my that is an exciting development for certain. He seems like a really great possibility with his apparent interest in new approaches and new ideas. I can't wait for your feedback!
I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
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Postby Arcee » Fri Oct 23, 2009 11:33 am

Excellent! Eager to hear what he has to say, and wonder if he has comments about what to do about all the iron :?
Maybe it's time to get t-shirts and coffee mugs printed :D
diagnosed RR in spring '04
1 stent placed in left jugular vein 7/15/09
on and off Copaxone
allergric to interferons and Tysabri
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Postby MaggieMae » Fri Oct 23, 2009 11:36 am

Arcee,

Love the idea. Maybe we can donate the money to one of the CCSVI funds - Dake or Haacke. :D
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Postby Arcee » Fri Oct 23, 2009 11:41 am

Anyone out there a graphic designer?
diagnosed RR in spring '04
1 stent placed in left jugular vein 7/15/09
on and off Copaxone
allergric to interferons and Tysabri
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Postby bestadmom » Fri Oct 23, 2009 12:08 pm

Arcee,

My husband is a commercial photographer, graphic and web guy, although not a freehand artist. Should we put him to work? He's out there selling CCSVI on every doctor and dentist apointment he's on. He gets it!
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Postby Arcee » Fri Oct 23, 2009 12:25 pm

Fine by me. How about we talk about it on Monday during our regional conference call? That also will give others a couple of days to step forward.
diagnosed RR in spring '04
1 stent placed in left jugular vein 7/15/09
on and off Copaxone
allergric to interferons and Tysabri
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Postby ozarkcanoer » Fri Oct 23, 2009 1:33 pm

Hi, Dr. Woolsey told me he would email me this afternoon (it's Friday 3:23 here in St. Louis) or tomorrow (Sat Oct 24) to give me some input and/or set up our meeting. I am going to bake a cake to take when/if we meet, LOL. I haven't heard from him yet, but I'll let you guys know as soon as I hear from him.

The following is from his email to me (this is not the whole response):

"One thing I need to spend more time with is the background for CCSVI and I hope to get what I need to answer your co questions regarding CCSVI by tomorrow afternoon. Would that be soon enough?

I plan to send you an answer tomorrow afternoon or on Saturday morning.

Warm regards,


Thomas A. Woolsey, MD"

Ozark

PS : HE asked ME if that would be soon enough, LOLOLOLOL !!!!!!
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Postby Sharon » Fri Oct 23, 2009 2:21 pm

This is great news - good work on finding another doctor who is interested in CCSVI ----it is a slow process, but we are all making progress.

Sharon
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Postby CNClear » Fri Oct 23, 2009 2:26 pm

Oz...That is sooo great!! Keep it up!!

BTW, When he said he is looking into it for himself...did he mean to get the procedure because he has MS, or looking into it research-wise, or to do the surgery?

Also, Do you really have a regional conference call??? We ought to set up a video party sometime...
<div>Lisa aka, CNClear<br />RRMS dx 1983, age:50<br />Got my dates for Stanford: Dec 8th & 9th!!</div><br />
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Postby cheerleader » Fri Oct 23, 2009 2:26 pm

Great job, Ozark! So glad you got a good response...he looks like a terrific, curious and energetic doc to look into CCSVI. Keep us posted.

Arcee wrote:Fine by me. How about we talk about it on Monday during our regional conference call? That also will give others a couple of days to step forward.


Go for it, gals!!! Let the CCSVI merchandising begin. My input is that the logo (t-shirt, mug, lunch box) has a punchy, catchy phrase...like zap's "the veins that drain the brain..." and no creepy art work (like Dr. Zamboni's website...sorry) but something hip and fun- like-
http://www.spectrumgenerations.org/Serv ... lation.asp

I know, what's so fun about MS....but we're talking about rebranding a disease, right??? You are the media savvy women....go for it!
cheer
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dx dual jugular vein stenosis (CCSVI) 4/09
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Postby ozarkcanoer » Fri Oct 23, 2009 2:40 pm

Dr. Woolsey is an MD and professor at the Washington University Medical School in St. Louis. He is NOT an MS patient, but a kind man and a researcher and very very respected in his field. As I said, just Google "Thomas A Woolsey".

Also Google "Hope Happens" and follow the links there. Dr. Woolsey is on the Board of Directors of this very important nonprofit here in St. Louis that funds research on neurodegenerative diseases. This organization received $10 million dollars last year from the Danforth Foundation. "Hope Happens" was founded in honor of Chris Hobler who died from ALS.
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