I am sorry that I failed to mention,I was the first U.S. patient in CCSVI's preliminary study. If I had to go back & do it again,my answer is YES,YES,YES.
In January 2009, I left my home & country and went to Italy for Liberation at the University of Ferrara Vascular DiseasesCenter,all in hopes to help my brothers&sisters around the globe end the suffering!
3 years in to my MS diagnosis, tried Avonex, MANY IV's Steroids,Copaxone, GammaGuard-IVIG and CellCept.
First night after of liberation(1/12/09) I was able to get undressed & dressed standing in middle of room w/o holding on to chair or having to sit down.
Which has not happened for me in 3 years. I have also driven approx 10 times which I was not able to do before the liberation and I missed my 4X4,that's for sure! My last neuro visit was better news,I have to share first I dropped an entire point off my EDSS rate and second,shared how I believe this happened. My mobility has improved and I keep the body moving with my WiiHab@home. I use the Wii Fit& Wii Active and truly enjoy the challenges in the games yes,even on the easy settings it is still challenging.
HUGS from your sister around the globe. GOD BLESS
UPDATE 3/24/10- Visit w/neuro. brought news of two new lesions on brain,very tiny but new. huh..I don't feel worse than I did over 14 months ago. I am still able to do more than I did before Liberation!! I will continue w/WiiHab @ home,sorry Nintendo Wii. Yes, I did start out w/bowling but have added Wii Fit,Fit+ &Wii Active to continue working/moving the body and having fun doing so. HUGS
Last edited by jennifero
on Wed Mar 24, 2010 2:06 pm, edited 3 times in total.