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 Post subject: CCSVI
PostPosted: Sun Dec 06, 2009 5:27 am 
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Joined: Mon Oct 26, 2009 4:00 pm
Posts: 152
Location: Co.Cork.Ireland.
Thank's Erika :D
Hello People on TiMS
Lot's of people have asked me what they might need to bring with them to Poland.In my honest opinion i beleive you need to bring nothing with you,only yourself & your MS.My reason for this answer is simple.All the exam's are done in Poland, MRI,MRV,Blood Test,Urine Test,Eye Test,Colour Doppler,Heart Test & Blood Pressure,PROCEDURE,Heart Test & Blood Pressure,Colour Doppler.1 1/2 - 2 Day's in Hospital.
Slainte Mo Chara
Edser & Anna

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Never judge a Book by it's cover.
Edss Before Procedure:6
Edss After Procedure:4


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 Post subject:
PostPosted: Sun Dec 06, 2009 5:41 am 
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Posts: 113
Congratulations Edser, looking forward to the updates.
Yeah things you need bring, toothbrush maybe, I had no towel, they even supplied one of those.
Wonky

:D :D :D :D :D :D :D :D :D :D :D :D :D :D :D :D :D :D :D :D :D :D :D :D


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 Post subject:
PostPosted: Sun Dec 06, 2009 6:07 am 
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Joined: Wed Jul 29, 2009 3:00 pm
Posts: 1099
Location: Slovakia, Europe
wonky1 wrote:
I had no towel, they even supplied one of those.
Wonky

:D :D :D :D :D :D :D :D :D :D :D :D :D :D :D :D :D :D :D :D :D :D :D :D

Ha - ha this is funny. I forgot to bring towel as well. :D
I just thought it would be good to have some cream or gel against bruises in hospital already - at least in a hotel. There was a pharmacy in front of the Hotel Franz Josef so I bought it there as well as some Absorbent adhesive dressing for my mini wound in my groin. I had one small drop of blood so I wanted to change it.
Maybe I am just too spoilt. :D
Erika

_________________
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse


Last edited by ErikaSlovakia on Sun Dec 06, 2009 6:12 am, edited 2 times in total.

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 Post subject:
PostPosted: Sun Dec 06, 2009 6:07 am 
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Joined: Mon May 18, 2009 3:00 pm
Posts: 722
Location: CT
Hi Edser,

I'm glad to hear you are ok. I've been thinking about you, and have been hoping for a great outcome. I can't wait to hear about your improvements.

Michelle


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 Post subject:
PostPosted: Sun Dec 06, 2009 6:21 am 
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Joined: Mon Sep 07, 2009 3:00 pm
Posts: 93
Location: Germany
Congratulations from me, too!!!!! :D


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 Post subject:
PostPosted: Sun Dec 06, 2009 6:53 am 
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Joined: Fri Nov 20, 2009 4:00 pm
Posts: 13
Location: Poland
super Edser :D / I be glad very

I wish fast convalescing and greetings for Anna


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 Post subject:
PostPosted: Sun Dec 06, 2009 7:23 am 
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Posts: 1273
Location: St. Louis, Missouri
This is great new for you Edser and for all of us !! Another patient helped and another positive for CCSVI !! Take care and keep us informed.

ozarkcanoer


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 Post subject: CCSVI
PostPosted: Mon Dec 07, 2009 6:23 am 
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Joined: Mon Oct 26, 2009 4:00 pm
Posts: 152
Location: Co.Cork.Ireland.
Day 5
All i can say is WOW.Thing's are looking positive +++
If anybody from the EU are heading to Poland,i would advise you to look into getting a E111 card.This will help you get your Prescription after the procedure at a fraction of the price :D & if your Neuro will sign you off you should try for the E112.Your country pays for the procedure once you live in Europe & they are not doing the procedure in your country.
Slainte Mo Chara
Edser & Anna

_________________
Never judge a Book by it's cover.
Edss Before Procedure:6
Edss After Procedure:4


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 Post subject:
PostPosted: Mon Dec 07, 2009 10:03 am 
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Joined: Mon Nov 30, 2009 4:00 pm
Posts: 24
Congrats Edser

Glad everything went well for you. Hoping to get on list in Poland this week. I haven't told my gp about my intentions yet. I do need to do I for aftercare etc and to get that E112 form that covers the cost for Europe.

Are you on bloodthinners there is a report in all papers today about a new blood thinner which is much better than warfarin that will be on the market shortly. Does one have to take it long term?

thanks & Regards

Maureen


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 Post subject:
PostPosted: Mon Dec 07, 2009 11:09 am 
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Firstly, to Johnson, thank you so much for replying. Didn't have access to a computer on the weekend so just now catching up. Edser (and Anna) - WOW! keep posting so we know how you are. It's wonderful to hear that this can be done. I will get my husband to send off an e-mail to Dr. Simka in the hopes that he may be able to perhaps see us in the not too distant future. This is wonderful news and confirmation that Dr. Z. is really onto something with CCSVI. Take care all. :D


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 Post subject:
PostPosted: Mon Dec 07, 2009 11:26 am 
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Posts: 141
Congrats Edser and Ana,

I have just arrived to Psczyna... tomorrow morning will be the appointment with Dr. Simka.

I will tell everybody what happens...


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 Post subject: Follow-up Checkup
PostPosted: Mon Dec 07, 2009 11:41 am 
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Joined: Wed Dec 02, 2009 4:00 pm
Posts: 398
Location: Fredericton, Canada
Congratulations, Edser!

I noticed in one posting some mention of a follow-up checkup. Is this something that everyone must do and, if so in what time frame and how often? I understand, Erika, that you are to have a follow-up, but I wonder if it was specific to your situation. How about those farther away (such as Edser)? For those of us across the Atlantic, this could prove quite difficult.


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 Post subject:
PostPosted: Mon Dec 07, 2009 6:02 pm 
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Joined: Wed Feb 11, 2009 4:00 pm
Posts: 1419
Location: California
.......


Last edited by LR1234 on Tue Mar 06, 2012 1:39 am, edited 1 time in total.

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 Post subject:
PostPosted: Tue Dec 08, 2009 3:00 am 
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Joined: Mon Oct 26, 2009 4:00 pm
Posts: 152
Location: Co.Cork.Ireland.
LR1234 wrote:
Pepe, I am in Poland on Wednesday and seeing Dr Simka Thursday. Will you still be there?

L

Best of luck Lad's,enjoy the experience :D
Slainte Mo Chara
Edser &Anna

_________________
Never judge a Book by it's cover.
Edss Before Procedure:6
Edss After Procedure:4


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 Post subject: Re: Follow-up Checkup
PostPosted: Tue Dec 08, 2009 6:46 am 
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Joined: Mon Oct 26, 2009 4:00 pm
Posts: 152
Location: Co.Cork.Ireland.
fiddler wrote:
Congratulations, Edser!

I noticed in one posting some mention of a follow-up checkup. Is this something that everyone must do and, if so in what time frame and how often? I understand, Erika, that you are to have a follow-up, but I wonder if it was specific to your situation. How about those farther away (such as Edser)? For those of us across the Atlantic, this could prove quite difficult.

Good afternoon Fiddler,
Yes i've a follow up appointment in 2-3 month's or whenever Dr Simka deceides that it is necessary to see me.I'm taking everything that has been pescribed for me,Areplex,Asprin,Fraxiparin & Helcid.So far so good,it's early day's but i appear to be a NEW man.
Slainte Mo Chara
Edser & Anna

_________________
Never judge a Book by it's cover.
Edss Before Procedure:6
Edss After Procedure:4


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