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Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

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fiddler
 Post subject: Great news
PostPosted: Tue Dec 08, 2009 12:51 pm 
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Location: Fredericton, Canada
Edser, that's great news! I hope it continues to go well for you. And thank you for the information concerning check-ups.
...Ted
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cervin
PostPosted: Tue Dec 08, 2009 2:10 pm 
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hi all- first off congrats to all who have made forward progress on the CCSVI front, be it an appointment, the waiting list or the actual procedure. Hats off to you all!!
I'm writing because i feel super frustrated and alone on this one. Prior to Dr. Dake being shut down, i left message but never heard back in any capacity. While i celebrate for all who have heard back from Dr. Simka, i have not. i feel like my time frame matches others on the emailing, however i have not heard from Dr. Simka.
Besides being a baby (sorry everyone) I guess i just would like to know if i am as alone as i feel.
thanks
-ceci
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Mutley
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PostPosted: Tue Dec 08, 2009 2:12 pm 
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Hi Ceci, how long has it been?

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Mutley goes to Poland 1st symptom was Optic Neuritis in 1998, DX RRMS Jan 2001, DX SPMS 2007. Last EDSS by doctor 7.5
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cervin
 Post subject: Contacting Dr. Simka
PostPosted: Tue Dec 08, 2009 2:18 pm 
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it was only last Monday. i know that is not very long. The only reason i even mention it is because some of the other member writing in to say they heard from Simka and they emailed a little later in the week than i did.
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Edser
 Post subject: CCSVI
PostPosted: Tue Dec 08, 2009 2:21 pm 
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Location: Co.Cork.Ireland.
Good evening Cervin.
Relax take a deep breath.Dr Simka will get back to you.He & his team are just up the walls.Don't worry be happy. :D
Slainte Mo Chara
Edser & Anna

_________________
Never judge a Book by it's cover.
Edss Before Procedure:6
Edss After Procedure:4
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Mutley
 Post subject: Re: Contacting Dr. Simka
PostPosted: Tue Dec 08, 2009 2:24 pm 
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cervin wrote:
it was only last Monday. i know that is not very long. The only reason i even mention it is because some of the other member writing in to say they heard from Simka and they emailed a little later in the week than i did.


I'm sure it will be fine. He is a very busy man receivig lots of enquiries. Maybe send him another email if you still haven't heard back by Friday.

Best wishes.

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Mutley goes to Poland 1st symptom was Optic Neuritis in 1998, DX RRMS Jan 2001, DX SPMS 2007. Last EDSS by doctor 7.5
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cervin
 Post subject: Thanks everyone
PostPosted: Tue Dec 08, 2009 2:49 pm 
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taking a deep breath.
Patience grasshopper, patience ... :)))
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Edser
 Post subject: CCSVI
PostPosted: Wed Dec 09, 2009 6:17 am 
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Joined: Mon Oct 26, 2009 4:00 pm
Posts: 152
Location: Co.Cork.Ireland.
Good afternoon TiMS,
Yesterday i brought a cup of Tea & a plate of Sandwhich's from the Kitchen to the sitting room without realising that i done it & now i just finished doing some hoovering up stairs :D :D :D WOW what is happening :D :D :D
Slainte Mo Chara
Edser & Anna

_________________
Never judge a Book by it's cover.
Edss Before Procedure:6
Edss After Procedure:4
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ClaireParry
 Post subject:
PostPosted: Wed Dec 09, 2009 7:47 am 
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Location: Worcestershire, U.K
Wow Edser,

Thats great.

Hearing your progress really keeps us going. I'm waiting for a reply with dates from Dr Simka myself.

Keep us posted!!

Claire
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swibe
 Post subject:
PostPosted: Wed Dec 09, 2009 6:31 pm 
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Posts: 6
Hi all ...

can folks from the States get into the good doctor in Poland? Anyone know how payment goes in this case?
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Edser
 Post subject: CCSVI
PostPosted: Thu Dec 10, 2009 4:03 am 
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Joined: Mon Oct 26, 2009 4:00 pm
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Location: Co.Cork.Ireland.
Liberation Treatment/Translated English-Polish
http://www.youtube.com/watch?v=XwXQwOAd-PQ&NR=1
Slainte Mo Chara
Edser & Anna

_________________
Never judge a Book by it's cover.
Edss Before Procedure:6
Edss After Procedure:4
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Edser
 Post subject: CCSVI
PostPosted: Thu Dec 10, 2009 2:02 pm 
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Joined: Mon Oct 26, 2009 4:00 pm
Posts: 152
Location: Co.Cork.Ireland.
ERROR

_________________
Never judge a Book by it's cover.
Edss Before Procedure:6
Edss After Procedure:4


Last edited by Edser on Thu Dec 10, 2009 6:33 pm, edited 1 time in total.

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kayalena
 Post subject:
PostPosted: Thu Dec 10, 2009 4:02 pm 
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Joined: Tue Oct 27, 2009 4:00 pm
Posts: 3
Location: Citrus Springs, Florida
Dear All,
Please see some pics documenting Edser's "Liberation Journey" to Poland:

Image

Image

Image

Image

Image

Image

Image Image

Image

Description to these pictures is coming. Edser&Anna, your turn.

Regards,
Damian (on behalf of Anna&Edser)
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ozarkcanoer
 Post subject:
PostPosted: Thu Dec 10, 2009 4:12 pm 
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Location: St. Louis, Missouri
:D These pictures are just so cool !!! I am happy for Edser. And Dr Simka looks very handsome. I love the picture with all three of you !!
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Edser
 Post subject: CCSVI
PostPosted: Thu Dec 10, 2009 6:40 pm 
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Joined: Mon Oct 26, 2009 4:00 pm
Posts: 152
Location: Co.Cork.Ireland.
ozarkcanoer wrote:
:D These pictures are just so cool !!! I am happy for Edser. And Dr Simka looks very handsome. I love the picture with all three of you !!

Dr Tomasz Ludyga,Edser,Anna Pojasek.
Slainte Mo Chara
Edser & Anna

_________________
Never judge a Book by it's cover.
Edss Before Procedure:6
Edss After Procedure:4
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Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

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